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    1STATEOFDENIAL   143,635
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To say I've had a hurtful day is an understatement.

Sunday, September 22, 2013      4 comments

I've just gotten slammed with a bunch of bad today. Over a month ago I fired my LTD lawyer. She was spending far more time telling me there was nothing she could do than fighting my case. She had excuses for why it wasn't worthwhile to hold... Read more

5 steps to best deal with pain

Monday, September 16, 2013      3 comments

This link is on the Ehlers Danlos National Foundation website but it is not specific to EDS and could be used by anyone who lives with chronic pain and frequent bouts with acute pain. www.ednf.org/index.php?o
ption=com_content&tas... Read more

The fun of trying to do chores with Ehlers Danlos

Monday, August 12, 2013      4 comments

The person who was coming to help me is apparently not coming anymore. So tonight I did some chores. It's been 6 weeks and things really needed to get done. Also, I'm seeing the new neurologist for the 2nd time tomorrow (the one I had to email t... Read more

How to be a contortionist... I am a zebra.

Monday, August 05, 2013      7 comments

(Yes, my blog title is to get your attention; but, if you stick with me for a moment you might understand why I wanted to grab your attention like this.) Have you ever seen a contortionist? They bend and move in 'freaky weird' ways that loo... Read more

Sometimes, no matter how horrible I feel I have to put my kitty first.

Monday, July 15, 2013      12 comments

I often wonder if things will ever get easier on me (it'll never be easy, but any easier would be helpful). Today was a harder day, for sure. I sent an email to the new neurologist because I really feel he didn't do a good job when I saw hi... Read more

This week has been hard on me.

Thursday, July 04, 2013      6 comments

Today is my 1,000th day on SP. Every day for the last 1,000 days I've logged in and participated in a variety of actions. Even when I was in a different state for doctor appointments, tests, and procedures or in the hospital, I signed on every d... Read more

Have you ever done bicycle touring?

Saturday, June 29, 2013      4 comments

I sure haven't and never will due to my disabilities (and it doesn't interest me). But a few of my family members have done several bike tours around the US. If you'd like to read up on their adventures, check out their website: benthub.c... Read more

Another up and down day - new GI appt & a scary incident!

Thursday, June 27, 2013      7 comments

What an up and down day, again! I met with a new gastroenterologist today, who was pretty good. He listened to me, paid attention, trusted what I said, and we came up with a plan. I'm going to have another endoscopy for a biopsy to see if the eo... Read more

OMG what a roller coaster day!

Wednesday, June 19, 2013      5 comments

First, I wake up with an email from my LTD lawyer who is saying the Hartford is being jerks again and breaking contract rules and laws yet again, but after 6 months they're STILL working on part of my claim. Then, I go to the orthopedic app... Read more

An update, plus a difficult day with a scary incident

Thursday, June 13, 2013      5 comments

I started typing about my day in a message thread in a team, but realized it was getting very long. I should probably also use this time to update people with what I'm currently dealing with. So I'll update then talk about the insane and scary d... Read more

Come to my Sparkpeople birthday party!

Thursday, June 06, 2013      12 comments

Today (Weds, June 5th) was my 32nd birthday. Last year, I threw a pool party here on SP to celebrate, and I want to do something similar this year. I'm posting this late in the day, but the beauty of an SP party is there's no start or end time, ... Read more

This is what it's like to be in my shoes.

Thursday, May 23, 2013      4 comments

Here's a taste of what it's like to be me, for anyone who is interested in the symptoms of my multiple medical conditions. Last night I got involved in a discussion on twitter while doing other things online, and I ignored my body yelling a... Read more

Turns out my new approach is right on the money.

Friday, May 17, 2013      6 comments

Recently I started participating in an Ehlers Danlos page on Facebook, as well as the Ehlers Danlos National Foundation. The information I'm gathering from these pages is INCREDIBLE and amazingly validating. So much of what they're posting about... Read more

I need to try a new approach.

Wednesday, May 15, 2013      5 comments

Before I get to my blog, I want to say I'm very thankful for the comments on my last blog. I was honestly worried that I would get a lot of hate and backlash for posting about my joy, but I was pleasantly surprised at all the positive comments. ... Read more

Live and let love. I am proud to be a Minnesotan today.

Monday, May 13, 2013      12 comments

This blog is going to be a bit controversial. I am not posting it to start an argument or to put down anyone else. My beliefs are my own and you are welcome to yours; I just hope that we can agree to disagree and have respect for each other. Tha... Read more


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