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    1STATEOFDENIAL   143,946
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1STATEOFDENIAL's Blog Entry Summary View

Woah, randomly came across a possible diagnosis...

Wednesday, August 15, 2012      6 comments

I don't want to get any hopes up, but I just came across another condition for my doctors to consider. I have such a wide range of conditions that don't seem to fit together well, though the last genetics doctor I saw believes there's some 'umbr... Read more

There's been a lot going on, so here's a long update.

Tuesday, August 14, 2012      7 comments

I haven't blogged in awhile, even though I've been meaning to. I end up getting so focused on one thing or another that I forget other things I want to do. So here's what's been going on: My last blog I was so upset because I was told ... Read more

August 2nd, 2012

Thursday, August 02, 2012      6 comments

*****WARNING***** This blog is incredibly emotional and negative. I'm talking about the bad realities I'm facing. This touches on very tough topics, including some things many of you don't know about me. It's also very long. Feel free to NO... Read more

Updates: OpEd, Milwaukee, and more paperwork

Wednesday, August 01, 2012      6 comments

Thank you to my sparkfriends who commented about the OpEd piece I wanted to write. I haven't submitted it yet because of the comments that I should wait a few days then look at it again, but I spent the end of the week and weekend in Milwaukee s... Read more

My OpEd piece about adult bullies

Monday, July 23, 2012      6 comments

I'd like to get some feedback from others before I submit this OpEd (opinion/editorial) piece I want to send to the local newspaper. I'm normally not someone who is willing to write an OpEd, but I'm so absolutely angry right now that I want this... Read more

A song in honor of my sparkfriends

Friday, July 20, 2012      4 comments

Here's a song to brighten your day, strenthen your resolve, and hopefully help you take a few extra steps towards your goals! I was listening to this song and it made me think of a lot of my spark... Read more

My review of the movie Magic Mike

Wednesday, July 18, 2012      8 comments

I finally got over to the movie theatre to watch Magic Mike, the male stripper movie starring Channing Tatum. So here's a short blog with my thoughts on the movie. I'm attempting to avoid giving spoilers, so most of what I say you'll learn quick... Read more

If it's not one thing, it's 3 others.

Monday, July 16, 2012      5 comments

My PICC was removed on Friday and right away my arm opened back up and bled for awhile. The 'fun' was apparently not over. On Sunday at 4am I realized my arm was really itching again. I needed to get the gauze and dressing off. Turns out I was b... Read more

Long blog about the concert and my week

Sunday, July 15, 2012      5 comments

Tuesday was the concert I was waiting for. Previously I explained how well I know the band and why I really wanted to go. It wasn't easy at all, but I was able to get there and enjoyed myself. It was hard on me and I had several things derail my... Read more

Doctor agrees - goodbye TPN and PICC! (in a few days)

Monday, July 09, 2012      5 comments

My primary doctor agreed that it's time for the TPN to end - so I'm finishing today's bag and having another on Thursday or Friday, then I've gotta find out how to get the PICC removed. My home nurse is coming on Wednesday so I'll ask if they ca... Read more

I'm miserable today.

Saturday, July 07, 2012      6 comments

This doctor ordered high sodium diet is kicking my butt. My entire body from head to toes is a mess of cramps, and my entire abdomen and chest especially is a mess of knives and vices. All this and it's not even bringing up my blood volume, bloo... Read more

A few small updates

Friday, July 06, 2012      9 comments

My bloodwork looked fine again this week (as it always does) so they've agreed to put me down to 2 days a week of TPN. I'm ready to be done with it. Even if I lose weight at this point the TPN is over and I'll be going to a J-tube. I got ab... Read more

I figured out what was causing the allergic reaction.

Sunday, July 01, 2012      2 comments

I think I figured out what I was having an allergic reaction to: the softgel casing around the CoQ10. I'm back to taking all of the new meds and last night and this morning I squeezed out the CoQ10 liquid onto food (it's kinda gross, but food fl... Read more

What I'd like to wear to the show

Thursday, June 28, 2012      9 comments

I bought this dress a year and a half ago. With the weight I lost it was too loose for awhile, but now it fits well again (it's a size small, but fits more like a medium). It ... Read more

Social worker & TPN update, & hoping for a night out

Thursday, June 28, 2012      3 comments

The social worker I was assigned finally called today. She's coming to my house on the 3rd to help me with paperwork and going over everything. I'm glad she'll be able to see me face to face and see what it's really like for me. As much as I hat... Read more

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