I haven't been blogging lately because of all I've been going through. I've gotten down to 113 lbs (at 5'7", this is BAD), have been getting weaker, and I'm constantly exhausted. Even being on more and more medications to try to help with the ga... Read more
A lot has been going on again, and next week will be a crazy busy week too. I didn't hear from my GI specialist for several days, so I emailed again and said I was desperate. My doctor called me a short time later and submitted 2 different nause... Read more
My health is still deteriorating and it is disheartening. I haven't heard from my GI's office and my primary doctor said she can't order TPN so if I'm feeling this bad I should be going to the ER. Both of my short term disability policies are dr... Read more
I'm starting to consider begging for TPN. I'm feeling sicker and sicker, with more and more pain, and it's harder and harder to be the 'showrunner' (so to speak) for my health. My insurance company has a nurse line and I called to see if I can f... Read more
This weekend my mother and I got a caringbridge started for me. It's nice to see some extended family and my parent's friends interested in my health. Though, to be honest, I like the support here on SP and I'll end up telling more here than I w... Read more
Bad news first: my insurance company is continuing to deny paying for my pantoprazole (PPI). I have another chance - this morning I had to lodge an appeal by stating my case over the phone. I was half asleep, so hopefully I got the point across ... Read more
...to find yet another link showing I have a connective tissue disorder. Looks like we found the problem with my foot: www.epodiatry.com/chilbl ains.htm If you read the last star carefully, it says:
* a very rare occasions ... Read more
Today is one of those days where I feel like I'm fighting the battle against my body all by myself. So many people are being negative saying "you can't get that treatment", "you think it's hard getting short term disability, try getting social s... Read more
Not trying to start a political debate, but I thought I'd share this link because I can relate it in a funny way to a show I'm a fan of.
www.slate.com/articles/b usiness/moneybox/2012/01/r omney_income_calculator_ho w_much_d... Read more
This has totally been a crazy week. There is so much going on and I'm getting so overwhelmed.
Last week Wed my left leg started not working well. This has happened before, but the fact that each time it gets a little worse is starting to ma... Read more
It's a lot more than physical strength, because there's also emotional strength. Yet, what is the definition of emotional strength?
What makes a person strong? For those of us who have significant medical conditions, people call us strong f... Read more
So those who read my blog yesterday, thank you. I'm still working towards figuring all that out, but I greatly appreciate the support. It's so hard to feel so out of control of my health, my job, and my life.
This morning my leg was still n... Read more
I have a big decision to make and it's really weighing on me. As my sparkfriends know, my health has been failing and I've not been doing well. I'm struggling every day not only with my health, but trying to do a job that is quite stressful with... Read more
If you never ask for help, if you never talk about a medical condition, and if you keep everything to yourself, who will know that you need help or how to help if they want to?
Case in point, my father would rather not tell a lot of people ... Read more