I'm starting to consider begging for TPN. I'm feeling sicker and sicker, with more and more pain, and it's harder and harder to be the 'showrunner' (so to speak) for my health. My insurance company has a nurse line and I called to see if I can f... Read more
This weekend my mother and I got a caringbridge started for me. It's nice to see some extended family and my parent's friends interested in my health. Though, to be honest, I like the support here on SP and I'll end up telling more here than I w... Read more
Bad news first: my insurance company is continuing to deny paying for my pantoprazole (PPI). I have another chance - this morning I had to lodge an appeal by stating my case over the phone. I was half asleep, so hopefully I got the point across ... Read more
...to find yet another link showing I have a connective tissue disorder. Looks like we found the problem with my foot: www.epodiatry.com/chilbl ains.htm If you read the last star carefully, it says:
* a very rare occasions ... Read more
Today is one of those days where I feel like I'm fighting the battle against my body all by myself. So many people are being negative saying "you can't get that treatment", "you think it's hard getting short term disability, try getting social s... Read more
Not trying to start a political debate, but I thought I'd share this link because I can relate it in a funny way to a show I'm a fan of.
www.slate.com/articles/b usiness/moneybox/2012/01/r omney_income_calculator_ho w_much_d... Read more
This has totally been a crazy week. There is so much going on and I'm getting so overwhelmed.
Last week Wed my left leg started not working well. This has happened before, but the fact that each time it gets a little worse is starting to ma... Read more
It's a lot more than physical strength, because there's also emotional strength. Yet, what is the definition of emotional strength?
What makes a person strong? For those of us who have significant medical conditions, people call us strong f... Read more
So those who read my blog yesterday, thank you. I'm still working towards figuring all that out, but I greatly appreciate the support. It's so hard to feel so out of control of my health, my job, and my life.
This morning my leg was still n... Read more
I have a big decision to make and it's really weighing on me. As my sparkfriends know, my health has been failing and I've not been doing well. I'm struggling every day not only with my health, but trying to do a job that is quite stressful with... Read more
If you never ask for help, if you never talk about a medical condition, and if you keep everything to yourself, who will know that you need help or how to help if they want to?
Case in point, my father would rather not tell a lot of people ... Read more
Even when you do your best, plenty of things will continue to stand in your way to slow your progress. It is up to each of us to decide what is worth fighting for and against, and what you attempt to side step.
Today my mother went overboar... Read more
In my last blog I said the newest results from Temple was possibly an edge piece to the puzzle that is me. Today was definitely an edge piece.
I saw a rheumatologist for the first time. Turns out I didn't have to be as defensive as I've had... Read more
I got my biopsy results back from Temple today. It's been almost a month and I'm still waiting for 1 more set of results to come back.
The biopsies were taken during the endoscopy and took samples from my esophagus, stomach, and the first p... Read more
Wishes, wants, and resolutions - all things I suck at. I hate holidays because they almost always turn out horribly crappy. It's easier for me to treat all days as 'normal' days and avoid holiday hype. Plus lately my health is so horrible it's h... Read more