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Ups and downs of today
Monday, January 09, 2012      2 comments

Even when you do your best, plenty of things will continue to stand in your way to slow your progress. It is up to each of us to decide what is worth fighting for and against, and what you attempt to side step. Today my mother went overboar... Read more
Today was an edge piece
Thursday, January 05, 2012      3 comments

In my last blog I said the newest results from Temple was possibly an edge piece to the puzzle that is me. Today was definitely an edge piece. I saw a rheumatologist for the first time. Turns out I didn't have to be as defensive as I've had... Read more
Biopsy results back from Temple
Tuesday, January 03, 2012      3 comments

I got my biopsy results back from Temple today. It's been almost a month and I'm still waiting for 1 more set of results to come back. The biopsies were taken during the endoscopy and took samples from my esophagus, stomach, and the first p... Read more
Already having a not so great start to 2012.
Sunday, January 01, 2012      5 comments

Wishes, wants, and resolutions - all things I suck at. I hate holidays because they almost always turn out horribly crappy. It's easier for me to treat all days as 'normal' days and avoid holiday hype. Plus lately my health is so horrible it's h... Read more
Imagine Sister Christian as a polka song...
Thursday, December 29, 2011      1 comments

On Christmas Eve I received a CD in the mail from my friends Quietdrive. They created a project called Your Record Our Spin in which fans funded an album of cover songs then got to vote what songs would be included. The funding and voting happen... Read more
Good news today
Thursday, December 22, 2011      4 comments

Saw a liver specialist today. He walked in and said I'm his easiest patient for the day. He looked at the records of the CT and MRI scans of my liver from April and last month and said there wasn't a change, the lesion (haemangioma - a large blo... Read more
Good things today
Wednesday, December 21, 2011      2 comments

I saw my primary care doctor today. She was open to the condition I brought to her condition that almost exactly matches my symptoms and issues (I showed her and explained the symptoms/signs I have before telling her the name of the condition). ... Read more
Check out my new sparkteam!
Sunday, December 18, 2011      0 comments

I'm still working on setting it all up, but I just created a new sparkteam I'm hoping some of my friends will join in on. http://teams.sparkpeople
.com/doalittlebetter The point to the team is to encourage everyone to do... Read more
The exhaustion just keeps getting worse.
Tuesday, December 13, 2011      3 comments

I think I'm getting more exhausted every day. I'm desperately wishing I could stop working for a few weeks//months while my health issues get figured out. Within 2 hours of getting to work I'm already fighting to not fall asleep or collapse from... Read more
A few results are back and I'm starting treatment.
Friday, December 09, 2011      5 comments

Quick entry: got some results today. Doctor added yet another test, but they were able to get me right in today (even though the test took a long time). This one was drinking barium and having them take pictures and watch it flow through my dige... Read more
I'm unique, but I'm also abnormal
Thursday, December 08, 2011      3 comments

Today I had an esophageal manometry (manometry is testing the muscles and pressure in an area of the body) and rectal manometry. Both were difficult and very painful for me. Still I kept trying to crack little jokes and keep my spirits up. Then ... Read more
emptying study today, 4 tests tomorrow
Wednesday, December 07, 2011      4 comments

The gastric emptying study was today. Since this is my 3rd, I think I have an idea of what's going on when looking at the pictures (not that I'm sure I'm right) but after 3 hours it looked like everything was sitting at the bottom of my stomach ... Read more
Feeling a little better today
Tuesday, December 06, 2011      5 comments

First test is done: lactalose breath test. I'm still pretty tired today, but not as bad as yesterday. Tomorrow is the gastric emptying study. When I had the one at Mayo I ate sparingly beforehand and they said it was 'completely normal'. I've ba... Read more
First appointment
Monday, December 05, 2011      3 comments

I'm horribly exhausted from today. The initial appointment went well. But after having 8 tubes of blood drawn I was incredibly weak. We got back to the hotel and I dozed a bit. I had to force myself to get up and walk around the halls a little t... Read more
Quick run-down of the past few days
Sunday, December 04, 2011      1 comments

The past few days have continued to get more and more crazy. There is so much I could tell all of you, but I'm quite exhausted. Instead, here's a quick run-down. I put in 44 hours of work M-F this week. My boss got upset about her computer ... Read more

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