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    1STATEOFDENIAL   135,157
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Good news today

Thursday, December 22, 2011      4 comments

Saw a liver specialist today. He walked in and said I'm his easiest patient for the day. He looked at the records of the CT and MRI scans of my liver from April and last month and said there wasn't a change, the lesion (haemangioma - a large blo... Read more

Good things today

Wednesday, December 21, 2011      2 comments

I saw my primary care doctor today. She was open to the condition I brought to her condition that almost exactly matches my symptoms and issues (I showed her and explained the symptoms/signs I have before telling her the name of the condition). ... Read more

Check out my new sparkteam!

Sunday, December 18, 2011      0 comments

I'm still working on setting it all up, but I just created a new sparkteam I'm hoping some of my friends will join in on. http://teams.sparkpeople
.com/doalittlebetter The point to the team is to encourage everyone to do... Read more

The exhaustion just keeps getting worse.

Tuesday, December 13, 2011      3 comments

I think I'm getting more exhausted every day. I'm desperately wishing I could stop working for a few weeks//months while my health issues get figured out. Within 2 hours of getting to work I'm already fighting to not fall asleep or collapse from... Read more

A few results are back and I'm starting treatment.

Friday, December 09, 2011      5 comments

Quick entry: got some results today. Doctor added yet another test, but they were able to get me right in today (even though the test took a long time). This one was drinking barium and having them take pictures and watch it flow through my dige... Read more

I'm unique, but I'm also abnormal

Thursday, December 08, 2011      3 comments

Today I had an esophageal manometry (manometry is testing the muscles and pressure in an area of the body) and rectal manometry. Both were difficult and very painful for me. Still I kept trying to crack little jokes and keep my spirits up. Then ... Read more

emptying study today, 4 tests tomorrow

Wednesday, December 07, 2011      4 comments

The gastric emptying study was today. Since this is my 3rd, I think I have an idea of what's going on when looking at the pictures (not that I'm sure I'm right) but after 3 hours it looked like everything was sitting at the bottom of my stomach ... Read more

Feeling a little better today

Tuesday, December 06, 2011      5 comments

First test is done: lactalose breath test. I'm still pretty tired today, but not as bad as yesterday. Tomorrow is the gastric emptying study. When I had the one at Mayo I ate sparingly beforehand and they said it was 'completely normal'. I've ba... Read more

First appointment

Monday, December 05, 2011      3 comments

I'm horribly exhausted from today. The initial appointment went well. But after having 8 tubes of blood drawn I was incredibly weak. We got back to the hotel and I dozed a bit. I had to force myself to get up and walk around the halls a little t... Read more

Quick run-down of the past few days

Sunday, December 04, 2011      1 comments

The past few days have continued to get more and more crazy. There is so much I could tell all of you, but I'm quite exhausted. Instead, here's a quick run-down. I put in 44 hours of work M-F this week. My boss got upset about her computer ... Read more

Emotional and whirlwind day - Temple next week!

Wednesday, November 30, 2011      3 comments

When I was in the hospital last week, I was told I would get a call to schedule an appointment with a liver specialist. I haven't gotten the call. Yesterday I called to try to get it set up and about 1245 I was told 'you'll get a call soon'. At ... Read more

Quick update for today

Friday, November 25, 2011      2 comments

So after being up for 39.5 hours straight, I got some sleep by taking meds, felt sick most of the day yesterday, then was hoping to get some sleep and try to go to work today. Instead, I got about 2 hours of fitful sleep and feel horrible again ... Read more

I'm home now

Wednesday, November 23, 2011      2 comments

So apparently the ER wanted to scare me. They told me I had a blood clot in my liver and sent me to another hospital. After spending the entire night awake (I've been awake for 37 hours straight - and I'm not heading to bed just yet) I finally g... Read more

Bad things tonight, will update soon.

Tuesday, November 22, 2011      2 comments

I'm sorry to post this blog, because I know my sparkfriends will be very worried. Hopefully i'll be able to update quickly. For years, especially in the last year and a half (since I was diagnosed with gastroparesis) I get coughing fits tha... Read more

Let's put the thanks back in Thanksgiving!

Monday, November 21, 2011      2 comments

Let's bring back the meaning of Thanksgiving! Thanksgiving is not all about the food or the black friday deals. It is not about a day off of work and sleeping in. It is about remembering what is good in our lives. We can't stop the stores f... Read more


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