SMIDGON's SparkPeople Blog SMIDGON's Blog on SparkPeople, home of free diet plans and a healthy living community Johns acceptance of BAD NEWS. John realizes that Chemo is his only option. <BR> <BR> He talks freely of death and Heaven. There are places he wants to see and places to eat. That is something he has control over. Whatever he wants and we possibly can do, we will see he gets what he wants. <BR> <BR> Lord, have Mercy! Sat, 21 May 2016 15:27:56 EST BAD NEWS ! The bottom fell out of our world this afternoon. <BR> <BR> John is now STAGE 4 <BR> <BR> All three suspicious spots on his liver are cancerous. <BR> <BR> He will have to have Chemo. Indefinitely. <BR> <BR> He will start June 1st.. Wed, 18 May 2016 16:41:26 EST NEWS I thank you all for your prayers. <BR> <BR> we got a call that John goes back to the oncologist next Wednesday for the result of the last testing. He has been complaining about his back hurting. Oh, Lordy, NO! <BR> <BR> please <BR> PRAY, PRAY, PRAY,!!! <BR> <BR> Fri, 13 May 2016 15:02:31 EST biopsy Johns biopsy is next week. <BR> <BR> We got a call from our youngest late afternoon yesterday Hubby's B-i -L passed away. He was near 80 (same age as hubby). He had had a stroke on tuesday. About 20yrs. Ago he had had one that left him partially paralyzed. <BR> <BR> That is the third death in hubby's family since last August. The other two were in their 50s. <BR> <BR> Today is HHC. Busy, busy, busy. Meanwhile our house remains much the same! <BR> <BR> OUR 'BABY' is 49 yrs. Old t... Tue, 3 May 2016 06:19:11 EST LORD HAVE MERCY Well, we took John to the oncologist yesterday afternoon. <BR> <BR> There was some areas, but, the oncologist felt they were scar tissue and such. He will be watching them. <BR> <BR> However, there are 3 suspicious spots on his liver! He will be having a biopsy. Then, if confirmed, he will have to have Chemo. . Surgery and Radition is NOT a option. In some cases Chemo is indefinitely. <BR> <BR> He took it quite well! For an Autistic man, you wouldn't have spotted the Autism. <BR> ... Thu, 28 Apr 2016 06:11:45 EST TODAY Yesterday when Hubby took John to the urologist. The urologist said, depending on the report today from the oncologist, then he would decide on whether to remove the Stent and not replace, or to replace it. <BR> <BR> You see, they have to be dealt with every three months! <BR> <BR> We go to the oncologist this afternoon. He wants to eat out afterwards. I did tell him, if for some reason, he is too tired to eat out; we will do it another day! <BR> <BR> Regardless which way it goes, w... Wed, 27 Apr 2016 09:57:47 EST ANOTHER ONE! WHAT IN God's name is going on? <BR> ANOTHER ONE.! <BR> <BR> A young family man belonging to our Church Gatherings was ill. Instead of getting better, he steadily got worse. This past Sunday he went to the ER.. after much testing, he was admitted to the ICC in critical condition come to find out; he has a fast growing lung cancer. <BR> <BR> Yesterday a special prayer session was called for yesterday evening. Hubby and I felt compelled to attend. He is in mid twenties (???).with a wife... Tue, 26 Apr 2016 06:42:39 EST WHAT S UP? Well, today starts Johns testing. <BR> <BR> As you know, he finished his Chemo.. <BR> <BR> Today he had his blood work drawn. <BR> This next Monday he has his colon/abdominal cavity /kidney/and pelvis area CT SCAN done. Also, they added the second CT SCAN for his chest. <BR> On Tuesday of next week he has his kidney Stent either replaced or removed completely. <BR> <BR> On Wednesday of next week he goes back to the oncologist, to find out if the Chemo. Did it's job. <BR> <BR> I am aski... Thu, 21 Apr 2016 18:08:18 EST LOOK WHAT I FOUND! All this stress is starting to take its toll on hubby and I! <BR> <BR> the signs keep rearing their ugly heads. But, that's neither here nor there. I try to outsmart everything that comes along. <BR> <BR> Anywoo, yesterday before I went down to Johns I went to "Dollar Tree ". I wanted to get a few things, plus see what new Spring articles they had out. Mostly things for my Secret Sister at Church. Also, there is also my oldest daughters ex-girlfriend. I've been helping her at Church.... Thu, 14 Apr 2016 10:03:59 EST WHOA, NELLIE We woke up to 3-4" of snow overnight! <BR> Underneath it all, ICE ! <BR> It is to be in the 20 ' s all day! <BR> <BR> John and I are staying in all day, because of our weak bones! <BR> <BR> Hugs, <BR> Lexie and Janet Sat, 9 Apr 2016 09:27:33 EST #TIBET Yesterday I went to the dr. Due to almost impossible weight bearing! <BR> They took an x-ray. I was concern because of neuropathy and because of osporsporous (???) <BR> But, it is similiar to my long - x back problems. Wear and tear of joints! I am determined NO SURGERY. So I got a call from the pharmacy saying my insurance didn't cover it. Out of pocket it would be $205.00 ! Can you believe it. I kindly told them to keep it. I opted for a topical 3 x a day. Also my allotment of no... Fri, 8 Apr 2016 08:37:06 EST TIBET We spent the morning in a legal conference call for Special Needs Trust Fund. <BR> <BR> Anyone done this? Wed, 6 Apr 2016 16:34:52 EST ONCOLOGIST This past tuesday I took John to see his oncologist. I was very upset not knowing what John and I were going to hear! He told John he had done everything he could for him at this time. <BR> <BR> He told John that at least for the x being he was done with Chemo.. <BR> The last week of April he has more blood work; an CT scan and another Oncologist appt. <BR> <BR> He said it was a massive cancer. They had their fingers crossed as to whether they had gotten it all! The surgeons had done a... Thu, 31 Mar 2016 14:35:54 EST HELP! I just lost my very important blog I just posted. <BR> <BR> Is there any way I can get it back? Mon, 28 Mar 2016 20:31:43 EST IT'S A BEAUTIFUL DAY! By golly, it looks like Spring. <BR> <BR> HAPPY EASTER to one and all! <BR> <BR> Hugs, <BR> Lexie and Janet Sat, 26 Mar 2016 15:51:17 EST SPRING IS HERE! First of all, HAPPY EASTER! <BR> <BR> Hubby had his colonscopy yesterday morning. <BR> He is x with Diverticulosis. Now the rest is up to hi m! <BR> <BR> I am exhausted. Going to get my hair done shortly. Slow day planned for today. This evening am going to pick up Church Meal of homemade Chicken and Dumplings for the three of us. That's it! <BR> <BR> HOPEFULLY!!! <BR> <BR> LEXIE AND JANET <BR> <BR> <BR> <BR> <em>449</em> Wed, 23 Mar 2016 09:51:08 EST AN OPEN COMMENT I have encountered a issue that I wonder if anyone else has ever! Surely I'm not the "Lone Ranger'! <BR> <BR> I became 'friends' with this wonderful person I met in the Summer of 2010. We 'bonded' from Day 1. Through thick and thin. It's hard for me to become BFF. There are just some things that are hard for me to share. It takes me awhile to trust that well. Slowly that trust developed. I was there for her through thick and thin. Through family proplems; through health issues (both... Thu, 17 Mar 2016 07:05:54 EST TODAY HAPPENINGS! what a day this has been! John had his last Chemo. His appt. Was 9a.m.. until they finished doing his blood work, and weighing him , it was 12noon before they got his Chemo. started. <BR> <BR> They hooked up his last bag at 2p.,.. We backed out our parking space at 3:05! After got home, he called and said he was so tired. I wondered if my voice sounded as tired as his. <BR> <BR> I just wanted to let you all know about today. <BR> <BR> John sees the oncologist in two weeks after his b... Tue, 15 Mar 2016 20:25:30 EST I'm back! QUESTION: <BR> Has anyone else have to reenter their password on SP? That popped up several days ago. <BR> I was reclining and too exhausted to get up and get my paper out. But, I knew I would have to do it, so I finally did this morning. So, here I am. <BR> <BR> Now for the updates! <BR> <BR> John has his last treatment next week. I probably will be having to take him. I go from x to x anyway. <BR> <BR> Then they will schedule his tests. <BR> <BR> Hubby finally got his appt. For his... Fri, 11 Mar 2016 08:58:09 EST info. Thanks to all asking if I am okay! <BR> <BR> Son is approaching the end of his treatments, then testing. He says no more surgery nor Chemo.. <BR> <BR> Hubby is ill and is convinced he too has colon cancer. Has to wait to get son in Respite Care before Che king himself out! <BR> <BR> My 12.7yr old Yorkie became ill took her to vet. MOST of her problem is aging. <BR> <BR> Hubby took care of me, now I have no one! But, I'll be okay! <BR> <BR> THANKS AGAIN. Sun, 6 Mar 2016 17:33:26 EST WONDERFUL GET-TOGETHER Well, the celebration has been over for several hours now! <BR> <BR> We had a wonderful get-together! Older daughter and her family weren't there. Younger daughter and her two daughters a ND our 'pending ' grandson - in-law were there. We had 4 assorted pizza;bread sticks;tossed salad; cake;and ice cream sandwiches. Our 11yr. Old granddaughter is a character. Not at all the timid, shy older daughter was at that age! <BR> <BR> You could tell John thoroughly had a good x. He stayed up f... Sat, 20 Feb 2016 20:12:00 EST ANOTHER BUSY DAY! Busy getting ready for John and our older daughters b.d. get-together. <BR> <BR> Our 54yr. Old won't be here, sorry to say! <BR> <BR> Our older granddaughter and her hubby were planning on being here, however, he received notice yesterday he has to be at a different city to get his Security clearance papers in order for deployment later in the year! He is an officer with the In. National Guard. <BR> <BR> This is one of those days you wonder how your going to get everything done! <BR> <B... Fri, 19 Feb 2016 06:43:25 EST WANT TO SHARE? Your weather is like??? Ours is frozen mist!!! <BR> <BR> I had intended to go with John to his Chemo. Today. But, he called his MaMa and said I better stay home and take care of Lexie. Sweet guy! <BR> <BR> His Dad stays with him after Chemo for two nights, then. He has to keep checking on him all night his temp. And BP and such. I am capable of doing that, but there is another young man sharing the apartment, and I just don't know what his caseworker and/or parents may feel about that... Tue, 16 Feb 2016 09:04:29 EST THE BOTTOM FELL OUT TODAY! Well, the bottom fell out today. HOME HEALTH CARE released John today! Said they were no longer needed. It all falls on Larry! He can't do it forever. I can't physically. No suggestions on where to get help. He is in the 'grey' area and doesn't qualify for <BR> Anything. So what do we do? For heavens if you see someone needing help. If you can't yourself, at least try to help them in some small way!!! <BR> <BR> John says no more surgeries. Now he says no more Chemo! He has two... Thu, 11 Feb 2016 16:34:35 EST HAPPENINGS TO DATE Well, I will see if I can post this x around! <BR> <BR> Things are hanging on here. Johns platelets have dropped for the past four sessions of treatments. Next tuesday, if they have fallen further (75)they will send him home. Then, he'll return the next Tuesday to see if they have come up any. They cannot risk giving it if it gets any lower. <BR> <BR> when the HOME HEALTH CARE NURSE was there this past Wednesday she said he had two more visits coming. Then she will decide if any more ... Fri, 29 Jan 2016 19:25:02 EST TROUBLE POSTING. I just wanted to post about Johns condition; plus the weather. <BR> <BR> It was rejected! <BR> <BR> Anyone else having problems? Sat, 23 Jan 2016 06:35:09 EST A OTHER DAY Just an update on LIFE! <BR> <BR> John did get his Chemo and pump today. <BR> <BR> Lexie got me up about 3a.m.. she had to go out and poo! Between then and 6a.m. I had her out 5xs. Only one more poo. Wouldn't eat or drink as usual. I had to force water down her! She has bacteria in her gut. So, she is on some meds.. <BR> <BR> I told the dr. She had been acting so weird. I was suspec ting what the vet said! Lexie is starting with dementia! Like in humans, at xs they are completel... Tue, 5 Jan 2016 19:57:34 EST OFF TO A GOOD START! LOL! I stay so tired all the time. So, Lexie and I got ready for bed early. Hubby watched TV in his bed room. I turned TV OFF at 10pm. <BR> <BR> I suddenly got awake. I heard sirens, and, Care Flight go overhead. I listened for the clock to strike. It was midnight. I laid awake until around 3am. I got awake when hubby got up at 5am. So much for the first night of the new year! <BR> <BR> I have 'p uttered ' around until lunch. <BR> <BR> Now dishes are done. I discovered my ba... Fri, 1 Jan 2016 12:55:19 EST TO ALL MY SPARK FRIENDS! HAPPY NEW YEARS, <BR> <BR> JANET Thu, 31 Dec 2015 17:48:16 EST TO ALL MY SPARK FRIENDS! MERRY CHRISTMAS to one and all. <BR> <BR> And, a blessed NEW YEAR Thu, 24 Dec 2015 17:54:47 EST A LITTLE EARLY I know we have a little bit left until Christmas. How Ever, under the circumstances, with getting ready and Chemo and all, I want to: <BR> <BR> WISH EVERYONE A VERY MERRY CHRISTMAS <BR> and <BR> A HAPPY NEW YEAR ! <BR> <BR> Love and hugs to everyone. <BR> Janet and Lexie Mon, 7 Dec 2015 17:27:38 EST PRAYERS <BR> <BR> <BR> <BR> "PRAY WITHOUT CEASING" Fri, 4 Dec 2015 05:40:44 EST A NEW TRADITION Today, Lexie and I are starting a new tradition. <BR> <BR> "Think what a better world it would be if we all the whole world had cookies and milk about three o'clock every afternoon and then lay down on our blankets for a nap. " <BR> <BR> -Barbara Jordan- <BR> <BR> That's what we shall do, even tho Lexie is my canine companion,. <BR> Thu, 3 Dec 2015 08:32:57 EST Ever feel like your lost in a desert? To begin with, we had sleet, then light snow! <BR> <BR> Being where hubby and I are now, is a lonely place! I, for one feel like I have moved in the middle of a desert. Where no one knows either of us! The only telly calls are the Son, a d telamarkers. No one checking on us or even emailing! <BR> <BR> I know there is a lesson to be learned here. <BR> <BR> Whenever something happens to you, see what you can learn from it. You may just be surprised. Wed, 2 Dec 2015 19:32:54 EST MUSINGS I don't know what happened with the last paragraph of the previous blog. <BR> <BR> I get a different outlook on life over the holidays. <BR> <BR> I have mentioned how ones thought were long x friends. Have walked away from me. <BR> I has been said that they don't know what to say. How about a touch on the arm, a hug, or if they really know you, a smooth on the cheek? Or, a simple "I'm sorry ", "GOD BLESS YOU EVEN "I'm praying for you ". <BR> <BR> In going over my teams, I have no... Fri, 27 Nov 2015 09:07:06 EST WHAT TO DO . HELLO ALL <BR> We all are still hanging in there. It seems like the week between chemo s are his best time! <BR> <BR> But, wouldn't you know both weeks of Thanksgiving Giving and the week of Christmas are both Chemo weeks,! Thanksgiving Day is when he gets the pump take out. And, that is Thanksgiving at our DAUGHTER 2. AND, Christmas eve day he gets the pump out. Christmas day we can have our usual get together as we have that and he can lay down. <BR> <BR> We have the schedule ... Thu, 5 Nov 2015 11:30:12 EST JOHN PRAYERS for John <BR> <BR> please prayers for John. <BR> <BR> This morning he is running a temp.. <BR> First it was 100.5 <BR> Then, 99.5 <BR> Now, 100,9 <BR> <BR> THANKS <BR> janet <BR> Wed, 28 Oct 2015 09:37:26 EST GOTTA VENT ! Things are getting more hectic every day! <BR> I am getting to where I can eat nothing w/O it tearing up my stomach. Some would say, go to the dr.. the dr. Has health problems himself so, he is only in the ofc one day a seek. I have checked and there is only one other dr. Close. He is in the same complex as our dr.. so, he won't accept us switching to him! <BR> <BR> The stress level is unbelieveanle. <BR> <BR> The reh. Health care nurse took thurs. And Fri off. A sub came yesterday. ... Sat, 24 Oct 2015 16:32:50 EST UPDATE ON JOHN #2 Oh, where do I start? <BR> Its been very hectic for all of us. <BR> This past tuesday John got his first chemo. Also the pump in the port <BR> Brought him back to the nursing faculty. Within a few hours we were notified that the nursing faculty was unable to keep him. Reason? State law to have a pump there has to be an registered nurse on duty all night! Their third shift only has linseed practical nurses. So, what do they do? They discharge them and send them home with out even Hom... Thu, 15 Oct 2015 08:02:56 EST SONS HAPPENINGS Today was another visit to the nursing faculty. Thank goodness it is only 6blks. from home. <BR> Most of the x hubby goes in the morning, me in the afternoon. Every day. Some days you can tell he doesn't feel well. Other days we see the personality that has always been hidden. His sisters have always said that when they call him, he will said very few words and say goodbye, then hang up! Now, he'll even carry on a conversation! Where that ability has been all these years,, I don't k... Fri, 9 Oct 2015 18:00:24 EST MAYBE THINGS ARE GETTING BETTER! HOORAY! <BR> <BR> We got it set up today an appt.for tomorrow so <BR> John can get paperwork done to start his chemo.. <BR> <BR> Also, his insurance has taken his situation back into review. Tue, 29 Sep 2015 18:24:20 EST ANOTHER UPDATE ON JOHN UP DATE <BR> <BR> John was transported to a local nursing faculty last night to begin his Chemotherapy at a nearby hospital. <BR> <BR> It is now all in God's hands! <BR> <BR> Will keep you posted! Fri, 18 Sep 2015 06:19:13 EST UPDATE on JOHN It appears to be something different every day! They get one thing working again, then, something else stops or slows down! First they take the drainage tube that goes from his nose to his stomach out, then when they okay a liquid diet, he vomits it up and back in goes the tube. <BR> Then, he has good bowel sounds, then, maybe the next day, the bowels go to sleep! One day, his kidneys are working fine, they take cather out, the next they are not working, and the cather goes back in!!! I c... Sun, 13 Sep 2015 06:32:26 EST PRAYERS for John I am here asking for PRAYERS big x . <BR> <BR> Our 51 yr old Autistic son had been getting I'll for several weeks. He would be ill, get better go awhile, get sick again. <BR> <BR> He lives in a supported living home. <BR> <BR> He called us at 4 05 a.m. a week ago this past saturday. He took him to the ER. They were there for a good 5 hrs. They found what they thought 3 masses. They transported him to the hospital. Over the next few days they confirmed it. They transported him to a t... Mon, 7 Sep 2015 06:43:13 EST Home from dr. appt. Hello All <BR> I got back from the dr appt. a bit ago! Ate lunch and here I am! <BR> <BR> The dr. wants me to have a chest ex ray a Mr I then till then it will be x for the neurologist appt.. he upped my meds, so we shall see. <BR> <BR> This x around the Dr's and nurses have gone all out to get me help! The other dr. Said he'd do this and that, but, did nothing. <BR> <BR> I will keep in touch! Mon, 10 Aug 2015 13:24:00 EST HERE IT IS !!! Well, this is Monday ! Ready or not. <BR> <BR> Each week brings it own set of events and goals to meet. I thought it would be the usual start of the week. <BR> <BR> Yesterday started off with Church. After, I came home and fed my fut-baby, Lexie. <BR> <BR> Then hubby finished his chores as head usher. <BR> <BR> We went to brunch. We went to "Big Boy". I got the Cobb Salad. I like that, as you can mix together what ingredients you want. I always bring a good 1/2 salad home. Tha... Mon, 20 Jul 2015 06:10:26 EST The BIG week-end !!! It's been a whirlwind of events around here ! Some pleasurable and others not so; but, things that had to be done. <BR> <BR> Tomorrow one of my classes will be over. Then two weeks from Tuesday, another one over. The third one has another month to go. <BR> <BR> I start a different one on Sept. 01. hubby and I 53 rd. Ann., <BR> So, it will go for the rest of the year. <BR> <BR> But, with that, some changes also! For one, hubby will be 79 yrs. old Tuesday. Boy, time flies, doesn't it? <B... Sat, 18 Jul 2015 16:16:36 EST HAPPY FOURTH of JULY <img src=""> <BR> <BR> I wish YOU and everyone a 'safe' and 'fun-filled' day ! <BR> <BR> Have fun, BUT, in view with all that's going on, BE ON YOUR GUARD ! <BR> <BR> GOD BLESS US ALL ! <BR> <BR> Hugs, Janet <em>232</em> <em>283</em> <em>195</em> Fri, 3 Jul 2015 08:30:30 EST SURPRISE! I decided to 'pop' in and surprise you all! <BR> <BR> I am sitting here, watching the battery slowly losing power. So, if suddenly I am gone; it's because I ran out of juice. <BR> <BR> Nothing really new here; just your 'boring' existence! <BR> <BR> Yesterday, it was hubby, Lexie and I here. We had a quiet neighborhood. I guess either everyone was gone; or, holed up in their houses. Of course we are under possible T-storms watches through Saturday! Maybe we are just on our guard! <B... Tue, 26 May 2015 06:41:25 EST Lexie's Easter pics. To see Lexie's Easter finery; check out my Gallery! Mon, 6 Apr 2015 11:09:29 EST