SEAGLASS1215's SparkPeople Blog SEAGLASS1215's Blog on SparkPeople, home of free diet plans and a healthy living community January 18 - The More I Move.... ...the better I feel. It snowed a bit last night and I went out to shovel, despite having a head cold and feeling weaker overall. The fresh air really perked me up, the bending and lifting went slowly but I didn't try to overdo it and it felt really nice to be outside, helping DH clear the walks and deck. Unfortunately the roads are slick, I kind of wanted to continue that good feeling by taking a walk but I don't need to fall and get hurt. I have been doing hand weights and some other exer... Wed, 18 Jan 2017 07:31:26 EST January 17 - I Definitely Have the Cold Woke up with an extremely bad sore throat, nasal congestion, stuffed sinuses behind my fever but I have to stay on top of that. My blood counts are low this week so fighting this cold will be harder on my body than normal. I think I should put a call in to the doctor just to let him know what is going on, see if I need to do (or not do) anything in particular. <BR> <BR> That make-up / beauty thing yesterday was fun but the make-up samples they had were very high quality but the odd... Tue, 17 Jan 2017 08:03:19 EST January 16 - Sore Throat, No Fever, Football So I definitely feel kind of like I have a cold - sneezing more and definitely a sore throat - but not really congested, no fever, just blah....I'll keep an eye on my temp and drink extra orange juice and hopefully this doesn't turn into anything nasty. <BR> <BR> Great football game yesterday - we are Patriots fans here but my brother in law is a Packers fan and so we were rooting for them on his behalf. My husband was rather vocal at the end and when he yelled he scared the dog who started ... Mon, 16 Jan 2017 06:37:19 EST January 15 - Good Day Yesterday Got a lot done yesterday - saw my son's house for the first time in a few months as they have been fixing it up and I hadn't seen the progress in's coming together very nicely. Picked up two new books from the library, went food shopping with DH, made dinner, stayed up late watching football...and overall had lots of laughs, it was a really nice day. <BR> <BR> Woke up with a sore throat and slightly stuffy head - hoping it is just the result of staying up too late and not a cold ... Sun, 15 Jan 2017 07:06:58 EST January 14 - Weekend Plans My stomach is still off, not horrible, but I like being nearby my own bathroom just in case. With the weekend here, DH will be home and hopefully find some way to keep himself occupied and out of my way because although I love him dearly, I need my alone space. Perhaps I can figure out a few errands to send him on. <BR> <BR> I woke up feeling pretty good again, knock wood - I hope this can last. Maybe I can go to the library later, I finished the book from the other day, and it's not too... Sat, 14 Jan 2017 05:55:59 EST January 13 - Week One is Over Overall the first week after chemo went surprisingly well. I thought I would suffer with more side effects but then again, this is a day by day thing, one never knows how one will feel in 24 hours. Yesterday I had a mouth sore pop up while eating breakfast - a swish of baking soda and water and it disappeared. So I swished during the day and have not had another one. I am proactively using moisturizer on my skin head to toe (a little self care I never managed to find time for before except on... Fri, 13 Jan 2017 08:31:25 EST January 12 - Blood work, Rash, Heartburn My blood levels - white count, red count - are dropping which is expected, they are still "normal" but at the way bottom of the scale. By next week I'll be in "Nadir" which is when they will be extremely low and I will be more susceptible to infections. <BR> <BR> I have a slight pimply rash on my forehead and apparently it is on my scalp also, rather itchy - normal side effect, she prescribed hydrocortisone cream and an antibiotic pill to relieve the rash and the itch. Most likely my hair wi... Thu, 12 Jan 2017 06:05:07 EST Janaury 11 - Blood Work This Afternoon Yesterday I met with the doctor who implanted the port in my chest, he said it looks great and recommended using an antibiotic cream to reduce scarring. The scar does not bother me at all but I suppose someday I'll be glad if I listen to his advice now. I was feeling so good yesterday, I could probably have functioned at work if I'd gone in -- had the appointment, went to the grocery store, filled my car with gas, went to the library, then after lunch I cleaned out a drawer and made dinner. M... Wed, 11 Jan 2017 07:27:46 EST January 10 - I Feel "Normal"??? Woke up feeling the best yet, did not oversleep, clear headed...could actually function at work if I had to go in, that's how good I feel right now! Which is a blessing, since DH has a head cold and I need to get myself to a doctor's appointment and I don't want to be in the car with him while he is sneezing and coughing - last thing I need is his germs - my ability to fight infections is dropping so even a slight head cold could be dangerous for me. He is aware of this and keeping himself l... Tue, 10 Jan 2017 05:51:48 EST January 9 - Symptoms are Still Manageable Besides feeling tired and a bit achy (kind of like the flu but not even as bad as that) I am managing the side effects of chemo quite well so far. I keep waiting to feel worse, maybe that will happen, maybe not, taking it a day at a time... <BR> <BR> Yesterday I ate more than usual since I started, food tasted a bit better...but water tastes odd, which is strange, since it really has no taste. Been flavoring that with lemon. Need to drink more, I was doing well with that, but slacked off a b... Mon, 9 Jan 2017 07:37:05 EST January 8 - Slower Today Yesterday I finished that crochet bag and worked on some hand quilting - nothing too intense, my brain feels foggy. Slept until 8 AM today which I never do, feeling "off" but not exactly sick, just not myself. Mouth is drier, food tastes a bit weird...might check back in later, hard to write now, people are milling about. Sun, 8 Jan 2017 08:55:53 EST January 7 - Feeling Okay So Far Yesterday was a very good day overall....I thought I might have some side effects but I actually did well - slightly dry eyes, food tasted a bit different, a little lightheaded -- but for the most part I can not complain at all. I've felt worse on days when I didn't have chemo streaming thru my blood system! I got lots of little chores done around the house, actually that may have helped fend off some nausea and fatigue, just keep moving. Of course, that doesn't mean I won't start to feel wor... Sat, 7 Jan 2017 05:57:48 EST January 6 - First Chemo Treatment Yesterday was my first chemo treatment and overall I cannot complain - wonderful people, I had no side effects during the treatment (kept me well infused with anti nausea drugs), they provided a nice lunch...and talk about a small world, one of the other patients at the center is the mom of one of my DD's friends - she is about a month ahead of me with treatments, she found out she had cancer 10 days after her own mother passed away, talk about life giving someone a lot to deal with all at on... Fri, 6 Jan 2017 07:45:01 EST January 5 - Chemo Starts Today & I Got a Wig Today has finally arrived, I am not thrilled about it but will be glad to have it over and done with. Still feels very surreal - I was getting fitted for the wig yesterday and stared at myself in the mirror still not believing what I was doing. I did find a wig that looks just like my regular style & color (only it stays nicely styled instead of drooping when I touch it!) and also bought a scarf, a sleep cap, and a few turban wrap things. They don't look as ghastly as I thought. DD did not go... Thu, 5 Jan 2017 06:24:01 EST January 4 - Bag Packed, Room Ready Spent most of yesterday cleaning/setting up my son's room to be "my" room for when I'm not feeling well. Bed is freshly changed, clutter is removed, night table is set up with meds and remedies for potential side effects...Also packed a bag with things to bring for chemo -- puzzle magazine, book, crochet, Zentangle, blanket, dry mouth spray, medications, tea bags, lemon drops...the appointment is at least 6 hours long, the ladies auxillary prepares lunch for us, I've read up on what to bring ... Wed, 4 Jan 2017 06:04:03 EST January 3 - Sugar Overload Yesterday I am ashamed to even write this but I truly went off the deep end and had the most giant sugar binge you can imagine yesterday - one of the worst things I could do, since cancer feeds on sugar - I felt so out of control, part of me didn't even care (I was in that "what's the use of trying" mindset) and another part of me was horrified at what I was doing and felt helpless to stop. I have been reading a book called "The Sugar Smart Diet" and it's very good, but perhaps I am starting to panic ... Tue, 3 Jan 2017 06:28:59 EST January 2 - Started Taming my Fabric Stash Spent some time yesterday sorting my fabric scraps by color then moved on to ironing them (red is done, blue is about half way done). Anything close to a quarter yard is folded, as are larger pieces. Smaller pieces will get trimmed to useable sizes, either strips or squares. Trying to decide on how best to use up the smaller bits in some sort of scrap quilt - I like working on smaller scale items like wall hangings, table toppers, etc. Perhaps I could make some crazy multicolored placemats. ... Mon, 2 Jan 2017 06:07:33 EST January 1 - Hello 2017 Welcome to the New Year! <BR> <BR> <em>249</em> <em>412</em> <em>408</em> <em>107</em> <em>411</em> <em>409</em> <BR> <BR> I wasn't able to stay awake until midnight but that's okay, I never was one to get all excited watching a crowd in New York City cheer and carry on as if the world completely changed with the drop of a's still cold outside, my house still needs to be cleaned, my life is no different today than it was 24 hours ago. Still - it IS a new year, a... Sun, 1 Jan 2017 07:03:24 EST December 31 - Goodbye 2016 What a year - I've lost some people in my life and gained new weight went down in the beginning of the year but it's back up health has certainly taken a turn I didn't expect...the world has lost some influential people and then there was the political stuff that just about tore this country many changes and yet, some things I hoped would change remained the same. I'd like to write down a few goals/plans for the upcoming months -- my life is taking a drastic t... Sat, 31 Dec 2016 07:40:57 EST December 30 - Last Day of Work Today is officially my last day of work before I go on leave of absence. Talk about a surreal feeling, part of me is thrilled to be giving up the stress for awhile, another part of me is already worried about the changes that I'll miss and have to catch up on when I return. The won't let me check email or anything if I am on an LOA so I can't even keep up just by reading those...debating about going into the office today or working again from home...snow is stopped, roads look to be plowed en... Fri, 30 Dec 2016 05:24:23 EST December 29 - I am A Pin Cushion but Surgery went Well Just a quick follow up to yesterday's blog - my relatives DO know about my situation, they are all very religious and have been praying for me, they never fail to post daily about God or their latest health crisis or kid's accomplishments so that is why I was a bit upset -- I know they saw the post, because others - even friends of my daughter's - had some words of encouragement. <BR> <BR> So yesterday was the port surgery, went very smoothly other than the fact my veins were not cooperating... Thu, 29 Dec 2016 06:58:34 EST December 28 - Port Surgery Coming Up Another day for a reality check - more surgery, this time implanting a port in my chest wall to make IVs and blood draws easier. It seems some people find these very helpful but I guess it might be a little more uncomfortable than I was anticipating...well, nothing could be as bad as that sentinel node biopsy, that was horrendous! <BR> <BR> An interesting side note - my daughter posted a video of her escapade when she went to get her hair cut off - all her friends commented, very supportive,... Wed, 28 Dec 2016 07:20:44 EST December 27 - Daughter Shaved her Head! Yesterday my sister-in-law (L) gave me a super short haircut - it kind of does these little spikey things when I run my fingers thru it, doesn't look awful but it was still quite short compared to my previous style, which wasn't long by any means, not even past my ears! So my daughter was supposed to go with me and have her ends trimmed - her hair reached to the middle of her back - but right before we left, she insisted we take two cars and then insisted I be at my other sister-in-law's (D) ... Tue, 27 Dec 2016 05:26:27 EST December 26 - Yesterday was Great! - Planning for the Days Ahead What a fantastic holiday - from carefully chosen gifts to great food and the love of family, everything went perfectly! My handmade quilts and stockings were quite a hit, everyone had such a good time, truly was a wonderful day all around. <BR> <BR> I know the doctors said I should not try to lose weight during chemo but the last thing I need or want to do is see the scale go up and the drugs they are planning to give me could cause me to gain weight. Since I have no idea how I will be feeli... Mon, 26 Dec 2016 06:58:13 EST December 25 - And So this is Christmas... ...and my husband snored so loudly I have been up since 2:30 AM....definitely feel a nap in my future before we go to the sister-in-law's house! <BR> <BR> Organized all my paperwork yesterday in terms of cancer resources, LOA and work stuff, chemo treatment, receipts, etc. Felt good to be in control of something, at least. Had some alone time in the house which was nice to let out some emotions that I don't like to let others see - I get to cry as loud as I want and the family isn't distress... Sun, 25 Dec 2016 05:11:02 EST December 24 - Christmas Eve Thank goodness for the Internet or that "teach" appointment about what to expect from chemo would have had me running for the hills - the potential side effects seem worse than the disease but they have to warn you about all possibilities. And they suggested I keep track of what I go thru so they can adjust medications as necessary, or give me a blood transfusion, or rehydrate me...excuse me, did they say "track" ??? Me?? The self-professed hater of tracking my food, they now want me to trac... Sat, 24 Dec 2016 06:03:06 EST December 23 - Busy Day Ahead I might just get my baking done today - I have to prep the twice baked potatoes for Christmas day so I may as well make a mess in the kitchen only one time. I promised DH cookies and I usually make a candy treat called "crack" each year so.....what the heck, why not? I have my appointment at the hospital today for blood work and for them to teach me what to expect during chemo treatments...need to get to the bank too, to stuff some cash in those mason jars I'm giving for gifts! Also need to ... Fri, 23 Dec 2016 06:17:20 EST December 22 - My Son Surprised Me I got home after a thoroughly miserable day of work followed by an equally miserable grocery shopping experience and in my "spot" on the kitchen table was a small velvet box from my son, who was out and about with friends. Inside was a religious medallion of St. Peregrine (never heard of him) but apparently he is the patron saint for people who have cancer and other diseases. I was truly surprised as we are not a church-going family. When he got home, I thanked him and he said he figured "It ... Thu, 22 Dec 2016 05:39:56 EST December 21 - The Diagnosis/Reality is Sinking In Worked from home yesterday with the TV on and a commercial came on about filing a lawsuit for a certain chemo drug that can cause permanent hair loss - it's one of two drugs they intend to give me! Permanent hair loss?? Oh please, no! Temporary I can handle, not happy about it, but permanent? No, not sure I can cope with that. So I looked into the side effects of both drugs and apparently one can cause weight GAIN...$&^%$@#^$@^...I cannot afford to gain another ounce, I already am about 100 p... Wed, 21 Dec 2016 05:54:01 EST December 20 - A Sign from Dad this time? Yesterday I was in the cafeteria at work with about 30 other people, all of us getting coffee, breakfast, is a fairly large place, everyone is milling about here and there, and suddenly I hear "Psst! Want to see something cool?" I turn and one of the cafeteria workers is motioning me over to the salad bar where the hard boiled eggs are in a long, metal container. So I go over and she points to one egg. "See it?" she asks. I look and there on the egg is a rainbow! Now obviously it is ... Tue, 20 Dec 2016 05:40:52 EST December 19 - Ready for Change? Mom's Watching I was home alone yesterday late afternoon until I went to bed, the family went elsewhere to watch the football game...this gave me time to think, to read some more of the material I got from the oncology center, to cry a little with no one around to hear me. I've been trying to keep my spirits up (and in turn, keep everyone else positive and happy) but this whole cancer thing is of course constantly sitting there in my mind just behind the jokes and laughter...anyway, I did some soul search... Mon, 19 Dec 2016 05:10:29 EST December 18 - Baking, Wrapping, Balmy Day My mother's recipe cranberry nut breads are in the oven - waiting for DD to come home from the gym so we can make Snickerdoodles. I think that is where I will stop baking as I don't really enjoy it and I certainly don't need the calories! But she likes it, it is tradition, so I hate to disappoint her by not doing something. <BR> <BR> Gifts are all wrapped - just need to put money in the money gifts which turned out rather interesting - I used mason jars, put a wrapping paper covered toilet ... Sun, 18 Dec 2016 13:39:38 EST December 17 - Snow, Decorating, Baking Due to this morning's snow, my wig fitting appointment has been rescheduled to next Friday, after I have my blood work and my "teach" appointment with the chemo staff. May as well get all that stuff done the same day. <BR> <BR> So with the wig plan changed, that leaves more room today for finally decorating the tree and I may as well do some baking. Thought I might make some goodies to bring to my two sisters in law and mother in law for Christmas as we are not doing adult gifts this year. ... Sat, 17 Dec 2016 06:15:30 EST December 16 - Money Saving Goals / Craft Goals First of all, thank you for the birthday wishes and support! Truly means so much to come here each day and find comments waiting for me on my blogs! I appreciate each and every one of you for taking the time to read and respond! <BR> <BR> It is dangerously cold here today but, being New England, give it a few minutes and that will change - cold today, snow then rain tomorrow, Sunday will be almost 50 degrees....crazy. <BR> <BR> I did come up with a goal to save money to spend at Christmas t... Fri, 16 Dec 2016 05:52:27 EST December 15 - Birthday Thoughts So I took a few minutes and went back through my blog history to entries I made in the past on or around my insightful (and depressing) that was! My goals were the same two years ago as I've been writing about recently - meaning, nothing has changed! I haven't met them because if I had, I still wouldn't be striving to achieve them! "Lose 50 pounds" turned into "lose 100 pounds" so I definitely screwed that one up. "Walk every day" and "Keep the table clear"....yeah, not so much... Thu, 15 Dec 2016 05:08:04 EST December 14 I finally contacted my godmother/cousin and told her about the diagnosis. She will be the one to spread the word to distant family members which will be a help, since I really only keep in touch with most of them thru Facebook and I didn't want to post something on there and have them not be aware... <BR> <BR> Bought myself a very plush soft blanket yesterday to bring with me to the chemo treatments (they say you might feel chilled during the treatment) - after a $10 coupon and 25% off it wa... Wed, 14 Dec 2016 06:01:11 EST December 13 - Pre-Op Appt today I swear, doctors all need their piece of the pie (or share of my money) is the pre-op appointment for implanting the port in my chest which will make IV drips and blood draws much easier over the coming few months. Another procedure I will need to take at least a day off of work for and I only have one full vacation day left for 2016. My boss said if I need to I can take the time unpaid, no worries, but it DOES worry my in terms of my bank account! I thank my lucky stars that I have a... Tue, 13 Dec 2016 05:29:14 EST December 12 Tree did not get decorated, my son is so busy studying for finals that we figured it's better to wait until Friday when he is done and can enjoy the process instead of rushing through it. I have finished binding all three quilts so I'm very happy about that. It's snowing pretty hard here today so I'll be working from home...really does take some pressure off of having to deal with crazy drivers and get to work on time! <BR> <BR> Ate way too many cookies yesterday, I hurt all over today, I th... Mon, 12 Dec 2016 05:52:31 EST December 11 The Christmas tree is in the living room (managed to find a very nice one for $40 instead of the $55 one at the place DH wanted to go). Most likely will decorate it later on today, the weather here has turned very cold and a snowstorm is predicted for tonight into tomorrow. Put on some Christmas music, make some cocoa, pull out the ornaments...sounds like a Norman Rockwell painting! Wish life were like that all the time! <BR> <BR> I finished binding DD's quilt last night so I only have one l... Sun, 11 Dec 2016 06:18:38 EST December 10 Not much time today to write, DH is hovering behind me in the kitchen, can't write when I feel like someone might be watching. <BR> <BR> All is going well, getting a Christmas tree today. Hoping to get some sewing time in tonight, I need to finish binding those quilts! <BR> <BR> I wish the money fairy would land on my shoulder and take some of the bills away...oh well, I'll do what I can and keep hoping for a miracle in the money department! <BR> <BR> Sat, 10 Dec 2016 07:37:35 EST December 9 Got all my water in yesterday, very proud of that! <BR> <BR> Printed out and filled in what I could for my LOA paperwork...and also filled a few co-workers in that they better get their act together because I will be out and things are going to be different. They are in a mild panic right now but I've been telling them to fix certain things for awhile now and they've been dragging their feet. I am actually really looking forward to not being there, though I would love to be a fly on the wall... Fri, 9 Dec 2016 05:15:21 EST December 8 Today I will call the wig people to schedule an appointment for a fitting and consultation about what services/products they offer. I know they do make up, turbans, scarves, wigs, bras, etc. and it's one of those calls I've been hesitating to make because that appointment, I feel, will be an eye opener and make this hair loss thing much more real. But I don't want to put it off too long. I also talked with my SIL who is a hairdresser and we decided to go for a super short cut after Christmas... Thu, 8 Dec 2016 05:31:08 EST December 7 - Treatment Plan Met with the radiologist and oncologist yesterday. I'll list the highlights in bullet form, for those who are interested - plus it helps me keep it straight in my head! <BR> <BR> Chemo: <BR> <BR> - first of four treatments will be January 5th <BR> - each treatment will be about 3 weeks apart <BR> - there will be follow up appointments between chemo visits to check blood <BR> - going to have a port implanted in my chest so they can use it for blood draws, IV, etc <BR> - hair loss most likely... Wed, 7 Dec 2016 05:46:06 EST December 6 Well today I get to meet with the oncologist and the radiologist and the surgeon also...they all meet together to discuss my case and treatment plan, then all will examine me one by one and then we are supposed to go over next steps. I have a list of questions ready. I never in a million years would have dreamed that I would be facing this sort of medical appointment, this type of disease...I am trying to focus on positive things but it can be difficult when I am doing my work and at least on... Tue, 6 Dec 2016 04:53:31 EST December 5 Sending birthday wishes in my mind to my elementary school crush - he is 10 days older than me and we used to tease each other all the time, we were really good friends, not sure if he ever knew I liked him back then. No idea where he is now - and no, I will not try to stalk him via FaceBook or anything like that - but I always remember him on December 5th, is that silly? <BR> <BR> This morning after reading a friend's blog and someone else's comment, I found myself researching the No-S diet... Mon, 5 Dec 2016 05:47:51 EST Stocking Photos Please see my photo gallery for pics of the stockings I made. They are very personalized and not necessarily "Christmassy". Sun, 4 Dec 2016 19:07:28 EST December 4 GOALS & PROGRESS <BR> <BR> 1. Track my food <BR> 2. Stay within calorie range <BR> 3. Exercise for 10 minutes (weights, walking, dancing) <BR> 4. Drink 4 cups of water <BR> <BR> 1. No - I think I should give up trying <BR> <BR> 2. I think I may have - didn't binge or indulge so...maybe <BR> <BR> 3. Not formal exercise, but did some heavy duty cleaning, moving some furniture around to make room for the Christmas tree <BR> <BR> 4. Maybe...didn't count it but drank more water than the ... Sun, 4 Dec 2016 06:11:35 EST December 3 GOALS & PROGRESS <BR> <BR> 1. Track my food <BR> 2. Stay within calorie range <BR> 3. Exercise for 10 minutes (weights, walking, dancing) <BR> 4. Drink 4 cups of water <BR> <BR> 1. No <BR> 2. No <BR> 3. Yes <BR> 4. No <BR> <BR> I seem to fail at my goals more when I work from home, I think having the kitchen so close to my desk and not having to walk as far to the bathroom make it easier to be a slug overall. At least I did some weights while watching my quilting show but it was certa... Sat, 3 Dec 2016 06:13:49 EST December 2 GOALS & PROGRESS <BR> <BR> 1. Track my food <BR> 2. Stay within calorie range <BR> 3. Exercise for 10 minutes (weights, walking, dancing) <BR> 4. Drink 4 cups of water <BR> <BR> 1. No <BR> <BR> 2. ??? Doubtful, now that I think about it <BR> <BR> 3. YES - another power walk with DH, need to keep this up,it's good for both of us <BR> <BR> 4. YES <BR> <BR> Can't write much, I overslept - will be working from home, feels like a cold is coming on. <BR> <BR> Great news, my quilts that ... Fri, 2 Dec 2016 05:41:03 EST December 1 GOALS & PROGRESS <BR> <BR> 1. Track my food <BR> 2. Stay within calorie range <BR> 3. Exercise for 10 minutes (weights, walking, dancing) <BR> 4. Drink 4 cups of water <BR> <BR> 1. No <BR> <BR> 2. Not sure - possibly <BR> <BR> 3. YES YES YES!!! Lots of walking, power walking, etc. <BR> <BR> 4. No <BR> <BR> I know I burned a ton of calories walking yesterday - not just leisurely shopping but did some fast power walking too. Got lots done, just need a few gift cards and I'll be done.... Thu, 1 Dec 2016 05:10:30 EST