JEANINNEWCASTLE's SparkPeople Blog JEANINNEWCASTLE's Blog on SparkPeople, home of free diet plans and a healthy living community Another Failed Experiment My dh got me a new memory foam mattress topper. I can't use it. I have a difficult time turning over as it is. The memory foam made it even more work. And yes, I do need to be able to turn over during the night. Also, if you press any spot on my body I feel pain. The memory foam conforms to your body. This means that instead of just having pain in a few places where my body hits the mattress, I now have more pain in a wider spread out area. I was a bit surprised by this. I guess my l... Sat, 25 Oct 2014 13:30:55 EST What Went - Friday 1. MIL fell out of bed in the middle of the night. FIL couldn't wake her up so he just covered her with a blanket. SIL got there at 8 am, was able to rouse her and took her blood sugar. It was 89 - a nice lowish fasting bloodsugar. She gave her insulin and didn't have her eat anything - leaving MIL, who has dementia, to be responsible for getting up and getting breakfast on her own. When the visiting nurse got there a couple of hours later, MIL's sugar was only 37 - very close to death.... Fri, 24 Oct 2014 19:06:54 EST Wonky Ankle Yep, second blog today. I don't even talk to my husband about this stuff in this much detail, plus it helps me to get my head on straight when I see what I wrote. ;) <BR> <BR> Despite my flare, Rocky urged me to get out and walk. I've been trying to get my 5000 daily step goal again and have been successful most days. Today's earlier storm had subsided and that encouraged me too to get out and walk. So I leashed up Rocky, put on my Natural Balance shoes and stepped out the door - and my ... Thu, 23 Oct 2014 22:55:08 EST The Anatomy of a Flare Last night I could tell that I was on the brink of a flare. I tried to avoid it. I drank extra electrolyte/ magnesium "juice". I went to bed to get rest. I didn't do as much in the evening either. I woke up still on the brink. By mid-morning I was over the brink and free falling into flaredom. <BR> <BR> So here I am in pain, feel nauseated, tired and having a hard time concentrating. And I'm a mom. It's not that no one else cares but they still want Mom to fix things and to give hu... Thu, 23 Oct 2014 14:09:57 EST Fear and Loathing in the Dressing Room I got two new pairs of pants at Target today. They are technically pajama pants but they don't look particularly pajama-ish. No flannel sheep! They are such soft flowing pants that they hide all flaws. Tue, 21 Oct 2014 19:29:33 EST What Went - Monday 1. I had bad joint pain this morning. While I think it is due to wheat or gluten I'm not going to be dogmatic yet. Why? Because I've gone nightshade free, gluten free, dairy free, low carb, meat free etc. and I have early results which seem to point in one direction and then over time it all evens out to my normal ebb and flow of symptoms. So I'm still being wheat and gluten free but am not going to be making any dogmatic statements because of it. <BR> <BR> 2. My bad joint pain has mos... Mon, 20 Oct 2014 21:26:30 EST New Wrinkle I've been gluten (and of course wheat) free for one month now. I'm fairly sure that I got some gluten today because we took the ILs to a Chinese buffet for FIL's birthday. I tried to be good. I avoided all breaded foods and all pastries and everything I knew had gluten in it but. . . . the chance of contamination or even something used as a thickener was pretty high. I have hives and a very itchy rash in my arm pits and my feet are swollen again. I'm not upset though. This shows me tha... Mon, 20 Oct 2014 02:48:09 EST Gearing up for Saturday I'm frustrated. I'm in tons of back and rib pain. It hurts to even take in a deep breath. I'm stretching while doing my Lamaze breathing. (Who knew I would be using it so many years after actually giving birth?) If one more person tells me that "the only limitations you have are the ones you give yourself", I just might punch them. Do you know how much normal stuff I'd like to do if my body would just cooperate? Do you know how much pain I am in just trying to remediate my body so that... Sat, 18 Oct 2014 14:40:59 EST What Went - Friday 1. Does anyone know "The Cat Came Back" song? Sing these lyrics to that melody. "But the pain came back the very next day. Yes, the pain came back. I thought it was a goner but the pain came back. It just wouldn't stay awaaaaaaaaay!" Oh, well. I did get a couple of hours of pain vacation yesterday. <BR> <BR> 2. Dd12 and I spent the morning at the big Children's hospital visiting the neurologist. As I thought, she has orthostatic hypotension that causes dizzy spells due to a growth ... Fri, 17 Oct 2014 21:29:40 EST What Went - Thursday 1. Today was the best pain day I've had in a very long time. I have a slight bit of pain right now but there was actually a couple of hours today when I had no pain at all. (Insert picture of someone fainting here). It has been literally years since I've had that happen. <BR> <BR> 2. I wrote a long letter to the director in charge of library programs about the horrible Chronic Pain Management class that I went to last night. The more I think about it the more mad I become! I just hate... Thu, 16 Oct 2014 23:29:06 EST What Went - Wednesday Today was a good school day. <BR> <BR> Today was a good food day. <BR> <BR> Today I got 2 and a half kid free hours! <BR> <BR> Now my vent. ;) <BR> <BR> The kid free hours were at a library up north that had a free "Chronic Pain Management" seminar. I'm so glad that it was free because it was a waste of money! I'm also glad that I didn't go to it last year when I was at rock bottom and was desperate. Honestly, I could have taught this class better than this lady did. She was nic... Thu, 16 Oct 2014 00:22:10 EST What Went - Tuesday 1. I survived. (This is kind of important) <BR> <BR> 2. We got through all our subjects and chores. <BR> <BR> 3. I am still gluten free. I was really craving crackers or something crunchy and then I realized that I could have potato chips. Satisfied that craving without resorting to something with gluten. <BR> <BR> 4. My ankles are no longer wearing puffy "life preservers". I'm hoping that the lack of edema will help me to grow healthy skin on my legs. <BR> <BR> 5. I really lik... Tue, 14 Oct 2014 21:44:28 EST What Went - Monday Phew! Today was a very hard Aspie day. What does this have to do with health and weight loss? A lot, actually, because it can cause major stress. I got dinner from the Chinese deli part of the grocery store to give myself somewhat of a break. I chose green bean chicken because it had good veggies as well as protein. I might take a nice hot epsom salt bath tonight as well. My husband is out of town for a few days and while I miss him, it means I don't have to wait up for him to get home... Mon, 13 Oct 2014 21:19:57 EST An Exhausted Sunday I'm feeling a bit guilty but I didn't go to church this morning. I am averaging about 4 good days out of 7 at the moment. The plan was to get much needed rest yesterday but the dishwasher conking out of me put paid to that idea. I did get to bed at a decent time and fell asleep just fine but I had insomnia from about 3 - 5 am this morning. I'm not sure why. Just one of those things. Then I was sleeping - hoping to sleep until my alarm went off at 8 when the phone rang around 7. It was ... Sun, 12 Oct 2014 20:50:52 EST What Went - Saturday 1. I got up with ds17 at 5 am to help him get ready for his first hunting trip. Actually, I didn't really do anything but I did keep him company until our friend came to pick him up. <BR> <BR> 2. I miss my son! I'm glad that he has this opportunity. I'm both laughing and a tiny bit worried about how he's doing since we're having thunder storms. No calls from him saying he's coming home though! <BR> <BR> 3. Dd12 has been very busy at the Y today with two different activities. I d... Sat, 11 Oct 2014 23:30:38 EST A Mixed Bag I hope you know that despite my litany of things that don't go well, I do try to include all the things that do go well too! Things are a mixed bag around here. <BR> <BR> Ds volunteered at the library this morning. This takes up time but is very important for him learning social skills and work ethic as an Aspie. He really likes his work there. <BR> <BR> Dd rode her bike down to the library too. <BR> <BR> It was nice to have a quiet house for a while because I was having a very hard ti... Fri, 10 Oct 2014 20:32:33 EST What Went - Thursday It was a bad pain night. I tried sleeping with ice - it didn't help. I'm tired now from not getting a good night's sleep. <BR> <BR> Part of my bad night was due to staying up until midnight doing my son's physics assignment with my husband! It was a good bonding experience. ;) Our son still had to do his own assignment but it helped to figure it out ourselves first. This whole lab, which should have taken an hour to do at the most, took 5 hours for him to do because of his Aspie rigidi... Thu, 9 Oct 2014 23:41:22 EST Things Going Well I feel like there is this really thin line between things going ok around here and things going badly. That's mainly because "things going well" is very far from perfection! So "things going well" means that there are clothes to wear even if they are still in the dryer and they don't match your other clothes. And there is food to eat even if it is bought at the deli at the last minute or it is the same food that we've been eating for four days. And there is a path to all the seats in the ... Wed, 8 Oct 2014 21:49:29 EST What Went - Tuesday 1. I needed to step up my game big time today and I did. Of course now I'm an achy puddle of goo, but I did make it through the day. <BR> <BR> 2. For the second time within the last 24 hours, MIL was at the ER with bloodsugar readings over 500. I was on standby to go an hour north to be with her if she was admitted but she was released to go home and sleep. <BR> <BR> 3. Dd got done with school including two microscope experiments. I'm just glad that the experiments worked! <BR> <... Wed, 8 Oct 2014 01:02:03 EST What Went - Monday Please forgive me for writing two blogs in one day. I can only talk about my health with a very few people in real life and I am wary of giving them Healthtalk Fatigue. It would be easier if I had one of those nice my health is improving every day type of stories complete with a nice graph of my gains (or in the case of pounds, losses) but I don't. <BR> <BR> I've survived the day. Or I assume that I will survive the day since I still technically have a couple of hours to go before I can... Tue, 7 Oct 2014 00:06:53 EST Today's Verse Philippians 4:13 "I can do all thing through Christ who strengthens me." <BR> <BR> It was another rough night. Pain, out of control blood sugar . . . . One step at a time to deal with what I can. <BR> <BR> It's a busy day if I meet my planned responsibilities. I like to do so if I can. With chronic illness, you can't just put things off until everything is all fixed. <BR> <BR> So step by step, moment by moment, depending on Christ who is my strength. Mon, 6 Oct 2014 11:45:48 EST The Fetal Position If the fetal position didn't hurt so much I would be curled up in it. Big set back today. Dh has taken the kids away so that I can rest. Sun, 5 Oct 2014 17:24:09 EST Patience Had Better Hurry Up and Get Here! Almost one month ago our car was rear-ended. Three weeks (and one day) ago I was further injured at the chiropractor. I've finally had two nights without muscle relaxants. I've had three nights without having to ice my back. I'm still on round-the-clock anti-inflammatories. I've been without gluten for over a week. And I want to be all better! (Forget the fact that I've battled pain and inflammation at least somewhere for over twenty years.) <BR> <BR> Tonight my husband and I went to ... Sun, 5 Oct 2014 00:24:35 EST Believe it or Not! Last night was ok. Still some pain but I did not take the muscle relaxant and did fine without it. I did not have to ice and that's a step in the right direction as well. <BR> <BR> Today we went to the science center for a field trip. We are members and we got to go to a free member's preview of the Ripley's Believe it or Not exhibit. That sort of thing isn't really my favorite but they did a pretty good job and there were a lot of different kinds of things to see including a number of... Fri, 3 Oct 2014 19:34:02 EST What Went - Thursday 1. I went to the chiro. today. I go back on Saturday. <BR> <BR> 2. Both kids did very well in school this year and all week. <BR> <BR> 3. I took dd out for frozen yogurt today in honor of reaching a new milestone in math. <BR> <BR> 4. My back still hurts but I think (and hope) that it is a bit less. <BR> <BR> 5. I'm pretty proud of myself that I'm able to teach Latin 3 this year. I haven't taken Latin since I was a sophomore in high school. Fortunately I did take Greek in semina... Fri, 3 Oct 2014 02:03:13 EST What Went - Wednesday I had better sleep last night. I did start to ramp up in pain once I was lying down but immediately got out the ice and that helped. Paradoxically, I've been more tired today - maybe my body figured out that this sleep thing is pretty good. <BR> <BR> Today was fairly normal. We got through our chores and school. Ds had an allergist appointment that was fairly routine - just a check to make sure everything is progressing ok. It is. He got his allergy shot as well so I don't have to d... Wed, 1 Oct 2014 22:15:07 EST Very Tough Night, Hopefully Not so Tough Day I got up at 2 am in so much pain that I could not stand to lie down anymore. Dh (who works swing shift) was still up but even though he's an RN, there really wasn't anything he or anyone else for that matter could do. I had already taken two (compatible) RX pain meds. It hurt so much that I actually contemplated asking him to take me to the ER but then I realized that then I'd just be hurting in a bright uncomfortable setting and that they really couldn't do anything for me either. So I w... Tue, 30 Sep 2014 13:37:58 EST What Went - Monday Today was our first day of school. Lest you get all confused, we homeschool and can set our own schedule. We had done school through the end of July and took August and September off. We had a lovely first day. Dd who is now in 7th grade and has learning disabilities is now on grade level for everything except for math. And even there I have no doubt that this year will be a turning point for her. I see such growth in her. I think she's a late bloomer and am happy that I have the abili... Mon, 29 Sep 2014 22:19:42 EST My Earthly Reward Last night I treated myself for losing 5 pounds by buying two shirts at Talbots. It was supposed to be a treat for losing 10 pounds and it was supposed to be only one shirt but apparently I have instant gratification issues! Actually the reason I did it now is because I got a really good deal. I got two really nice shirts off of clearance for 70 percent off. 70 percent! They look really nice on me. One is a cobalt blue - a color that sets off my eyes. The other has a nice deep pink on ... Mon, 29 Sep 2014 00:03:08 EST The Plan for Saturday So much pain last night. Is it just because my chiropractor is out of town and so I wasn't able to get adjusted again? Is it because I did that very light 12 min. chair workout? My abs are pretty sore from my workout so I suppose I should expect at least some of my back muscles to be sore from it. I had a hard time sleeping last night even with the muscle relaxers. It was bad because it hurt to sleep on either side, which is my go-to sleeping position. But I can't be on my back without ... Sat, 27 Sep 2014 11:59:24 EST Strange Cravings I am craving seaweed. And eggs. And cream cheese. I had cream cheese California rolls today which gave me two out of three. ;) I don't know if this is a coincidence or not but I got these cravings after going gluten free again. <BR> <BR> My back is sore today but doing ok. I was either full-hardy, brave or proactive and did a 12 minute seated core workout today. I wasn't able to do a few of the parts where Coach Nicole brings both her feet up, That hurt my lower back and I was not goi... Fri, 26 Sep 2014 19:21:31 EST Sunbreaks Living in a rainy climate, sunbreaks are important. They are also important in a stormy life. <BR> <BR> My back is slowly getting better. I've been going daily to the chiropractor and I'm finally able to stop taking pain relievers around the clock. This weekend is the real test though - the chiropractor is off until Wednesday. <BR> <BR> I called some new neighbors today to get together. The mom is a homeschool mom I know from online. She moved in a few blocks away over a month ago ... Thu, 25 Sep 2014 21:12:08 EST My Son is Good for Me Pain = cravings for soft carby foods. My 17 year old son wanted a salad for dinner. I drove to the grocery store just five minutes away and we both chose salads. I did have a little bit of sushi on the side. I've been doing gluten free in a probably vain attempt to lower some of the inflammation in my body and I really really wanted to blow it all with some macaroni and cheese from the deli! But I didn't. Tue, 23 Sep 2014 21:33:22 EST What's Going - Tuesday I've stopped talking. I've obviously not stopped typing. Can I just communicate with my family by text today? Talking takes too much out of me right now. <BR> <BR> Yesterday afternoon and evening I kept alternating ice packs. Last night I broke out the muscle relaxant. I can't be responsible for kids and use muscle relaxants so I only use them at night when dh is here. The muscle relaxant helped me to sleep well. But pain is exhausting. I'd love to sleep again now. I might curl up w... Tue, 23 Sep 2014 16:39:07 EST What's Going - Monday I went back to the chiropractor today. I had e-mailed him again over the weekend explaining things more in depth and from a more personal point of view. My first e-mail had been an FYI on the procedure. This one was a "I'm hurt and angry and this is why" e-mail. It helped a lot. He told me today that he was very grateful that I had taken the time to tell him what I was feeling instead of just disappearing as a patient. I didn't take that route for two reasons: he's the only chiropracto... Mon, 22 Sep 2014 21:17:27 EST What's Going - Sunday It's only 3:45 so I still have a ways to go for Sunday to be over. But I'm typing this now in an attempt to get my head on straight. The back pain isn't going away. In fact, I'd say that today is a bit worse. Possibly because I walked a lot yesterday? <BR> <BR> Do you know what I'd really really like? For everyone to just go away - and not just for the day but for at least a weekend. That's not going to happen but it is what I'd like. When I'm in pain like this it takes a lot of men... Sun, 21 Sep 2014 18:52:12 EST What Went - Saturday Dd and I went out for a nice lunch. A nice lunch at a nicer restaurant is so much easier to keep healthy with access to healthy vegetables and cooking methods. I then took her shopping for some pants. Shopping with her so easy because all she has to worry about is if she likes the style, color and if it is her size. I found myself on the way to the girl's section seeing adult clothes that I liked "if I were thin enough". So many styles really do not look good on a plus size body. I have... Sat, 20 Sep 2014 23:47:58 EST What Went - Friday I went back to the chiropractor today. I still have not made a decision on further treatment but I did need to see him in order to get more information. I embarrassed myself by crying again. And I was not able to verbally communicate all I wanted to. I find it much easier to deal with strong emotions in writing. He did do a couple of very gentle adjustments but my pain is still the same. <BR> <BR> The kids and I went to the homeschool store today. I was able to get most of what I wante... Fri, 19 Sep 2014 20:49:07 EST What Went - Thursday Part 2 One of the toilets is now clogged. <BR> <BR> A friend is not being very supportive. <BR> <BR> I have a splitting headache. <BR> <BR> I just discovered that my daughter got fingernail polish all over the kitchen sink and some of my dishes. Fri, 19 Sep 2014 01:42:57 EST What Went - Thursday Today was a bit of an stressful and emotional day. Nothing catastrophic but a lot of small to medium things going on. <BR> <BR> First, I took my daughter to the dentist for her scheduled fillings. They didn't have her scheduled. Fortunately they just had someone cancel so they could take her anyway, so it worked out. But there was a bit of a heart sink when they first told me that she didn't have an appointment. Something is going on though with their system because afterward I was conf... Thu, 18 Sep 2014 21:11:11 EST What Went - Wednesday I'm going to tempt fate by posting before the day is over. ;) <BR> <BR> Today's big news - I got my desk cleaned off! I have been working on this off and on for a month. Now I'm not totally done. There is one big cubbyhole that is chock full of papers that are spilling out of it. And I do have a pile of papers from my desk that need to be filed and dealt with. But I can see my desk! <BR> <BR> I also got done with all the auto accident insurance stuff. It is done and sent off. And ... Wed, 17 Sep 2014 21:14:12 EST What Went - Tuesday I am exhausted from going to the fair with the kids! We get free tickets each year from the school district. This year we actually didn't stay too long. We've gone so much over the years that we just check in to see a few favorite things. I always like to talk to the people giving demonstrations of crafts. They are so happy to talk about their interests. <BR> <BR> We were going to meet up with a neighbor at the fair but she didn't get there until we were already home. I knew when I c... Tue, 16 Sep 2014 20:36:24 EST What Went - Monday 1. Dh (an RN) thinks that when the chiropractor put me on the decompression table that it tore my muscles. It sure feels like it. It is still very painful. But. . . I am able to get a lot done and really, that's where my priorities are. After 20 plus years of pain, pain-free is such a luxury! <BR> <BR> 2. Dd felt a lot better today. She's still a bit snorty but I think it is just leftover stuff. <BR> <BR> 3. I got my second of five allergy shots before I'm able to bring it home and ... Tue, 16 Sep 2014 00:49:15 EST Tracking all day activity What is this? I just got this notice that I tracked two minutes for all day activity! What? I logged in 5000 plus steps. I went for a walk even! I feel a bit insulted by this. . . . Mon, 15 Sep 2014 01:06:58 EST What Went - Sunday 1. Dd's cold is in the goopy congestion and cough stage. We left her home while we went to church. I checked in on her periodically but she was happy cuddling on the couch with the dog and watching t.v. <BR> <BR> 2. We had missionaries today from Brazil. I was a bit proud of myself that I was the only one that could pronounce the wife's Portuguese name correctly! :) <BR> <BR> 3. We went out for lunch with the missionaries. We had a lovely time visiting. I ordered fish and chips. ... Sun, 14 Sep 2014 22:14:50 EST What Went - Saturday 1. I've received such good support on SP. I know that I've been really bad about thanking each of you as you've encouraged me. I just wanted to say thank you. I do read each comment and appreciate each one. <BR> <BR> 2. Today was a bad pain day - still a lot of pain in my back, hips and pelvic region since the treatment yesterday. But. . . I have been functional and that is my litmus test of whether a day is really bad or not. <BR> <BR> 3. I got a lot of laundry done today. A very... Sun, 14 Sep 2014 01:54:49 EST I'm So Upset I wrote a blog earlier this week about being in a minor car accident and being treated at the chiropractor. The Dr. talked me into doing a decompression treatment. A couple of people with chronic pain on the message board I frequent told me that they had bad reactions to it. I started to talk about backing out of my appointment. Dh talked me into keeping it. I left the doctor after an hour's "treatment" in excruciating pain and in tears. I'm still extremely upset. I'm actually more ups... Sat, 13 Sep 2014 00:12:06 EST What Went - Thursday I took car into the dealership this morning. There were two recall notices on the car for fixes and upgrades. Plus, a couple of days ago I got the bright idea to replace the air filter in the car. I got mad when two mechanics laughed at the idea of me doing this myself. So I watched a YouTube video and it was very very easy. So I lifted the hood and put in the new filter. Easy peasy. Only when I put the hood back down, the check engine light went on plus the 4wd light and some kind of ... Thu, 11 Sep 2014 22:26:01 EST What Went - Wednesday Another spectacularly busy day. <BR> ins <BR> Dd and I were at Children's for an EKG at 8 am. The technician was very nice and competent. She was a former homeschooler too. We are meeting more and more former homeschoolers in the marketplace. Proof that they do get hired and can get advanced training! We probably won't get results until next week. <BR> <BR> We had breakfast out at our favorite local diner. <BR> <BR> We then went back to the chiropractor to get x-ray results. Dd and my... Wed, 10 Sep 2014 23:07:46 EST What Went - Tuesday Another super busy day. <BR> <BR> The day started with dd telling me that she had a lot of pain if she turned her neck. Since we were rear ended two days ago and she was in the car, I was concerned and took her to the chiropractor. I had not expected him to do full exams of both of us including x-rays but I do see the wisdom of it. He said that she was showing classic whip-lash signs and since her head did go forwards and then back when our car was hit, that makes sense. I don't have any... Tue, 9 Sep 2014 22:45:51 EST