JEANINNEWCASTLE's SparkPeople Blog JEANINNEWCASTLE's Blog on SparkPeople, home of free diet plans and a healthy living community What Went - Monday Last week I increased one of my meds. It is a powerful drug, though I was on a very low dose and even my increase is still a low dose. However, just a small increase was pretty difficult. The first day I slept for 11 hours and had a very difficult time getting up even after that. The second day was not much better. The third day was a bit better. Today was pretty good though I was pretty tired by supper time. Only time will tell how much it will help overall. <BR> <BR> Today I went to... Mon, 27 Jul 2015 23:40:29 EST What Went - Wednesday I didn't get enough sleep last night. I had to get up early to go to the sleep specialist. She's the second doc who's told me to up one of my meds. They say it should help my pain levels so maybe I should listen. . . She did give me a good suggestion for keeping side effects to a minimum. She also wants me to get all new attachments and start up the CPap again. I'm a bit nervous about having something forcing (hopefully clean) air down my throat. <BR> <BR> Speaking of my throat, yes... Thu, 23 Jul 2015 01:04:39 EST What Went - Friday Today got off to a slow start but I could feel the intense fatigue lessoning as the day went on. I didn't get a lot done today but I did get a bit done and that's good enough. <BR> <BR> Today's walk got off to a frustrating start. I decided that Rocky and I would explore a new trail that I've never gone on before - one that borders the golf course. I went to the end of the trail and started to park. I looked up and there was a sign "No Parking at Any Time". Did that mean the entire str... Fri, 17 Jul 2015 23:55:26 EST What Went - Thursday No walk yesterday or today. I had a great day yesterday - got a ton done - almost as much as "normal" people who don't have chronic illness. But the happiness was short lived when I could hardly move by dinner time. The extreme fatigue has lasted through today. I'm really hoping that it doesn't last into tomorrow or longer. I want to get back to my walks and my regular life. Fri, 17 Jul 2015 02:30:19 EST What Went - Tuesday Today I went a different direction on my stress busting walk. <BR> <BR> <img src=""> <BR> <BR> I am so sad that these woods are slated for development. Boo progress! <BR> <BR> <img src=""> <BR> <BR> In a month or so, all the neighborhood will be back here picking blackberries. <BR> <BR> <img src="http://photosaws.sparkpeople.c... Wed, 15 Jul 2015 00:42:45 EST What Went - Monday Proof of today's long stress busting walk. <BR> <BR> <img src=""> <BR> <BR> Going into "Mosquito Woods" - I'm pretty sure that there are "Rodents of Unusual Size" in here. Fortunately we are in a drought so I encountered no mosquitoes of any size today. <BR> <BR> <img src=""> <BR> <BR> Our local very nice elementary school that we... Tue, 14 Jul 2015 00:06:50 EST What Went - Saturday I've been in a very bad place pain wise and in my spirit (discouragement) for the last couple of days. Today I decided to go for a walk with dd13 and Rocky. I wasn't sure what that would do to my pain but I knew it would boost my spirit. <BR> <BR> <img src=""> <BR> <BR> The start of our up and down (but mostly down) trek down the ravine trail. <BR> <BR> <img src=" Sat, 11 Jul 2015 20:08:36 EST What Went - Thursday 1. Could not get back to sleep again this morning. So six and half hours - not horrible but not enough either. <BR> <BR> 2. Did nap for about an hour later in the day. That made most of my aches go away. <BR> <BR> 3. Besides the short sleep hours, 7 months of antibiotics have depleted me of all of my (limited) oomph. I should be walking daily but the heat and lack of energy have made it so that I just can't move. I don't think I'm depressed. I care. I just don't have the energy to... Fri, 10 Jul 2015 02:58:37 EST What Went - Wednesday 1. I've had a good thing for self care - my dh is now working days instead of evenings. This means that I don't have to stay up to see him and talk to him. But it also means that I am woken up early. In the past I've been able to see ds off to work and then go back to bed and I assumed I'd be able to do the same with dh who's up at the same time. I'm sure I will get used to it but right now I'm not able to get back to sleep probably because I have more chores to do to get his breakfast a... Thu, 9 Jul 2015 01:48:58 EST What Went - Tuesday 1. Today was a pretty good day. What was the difference between yesterday (bad day) and today? No idea! <BR> <BR> 2. Today we went to the big regional library. I was trying to get a bunch of work done on my summer camp preparation. I did get a fair amount done despite the Korean man talking for an entire hour on his cell phone in the stacks, the mentally ill man who started to rant at the top of his voice and was escorted out and my dd13 who was grumpy because she didn't think that w... Wed, 8 Jul 2015 01:00:09 EST What Went - Monday 1. Today was a pretty hard day. I kept waking up ever two hours last night. I was so nauseated. I had nausea hit me in waves all morning too. I still don't know why but I have been drinking extra water in case it was hydration related. <BR> <BR> 2. Talking to someone helps me to get through chores on tough days. Today I chatted with my eldest sister and managed to get the dishwasher loaded and one load of laundry folded and put away. <BR> <BR> 3. I really really really did not wan... Tue, 7 Jul 2015 00:37:32 EST What Went - Sunday 1. I'm hoooooooooooooooooot. (said with a whine). <BR> <BR> 2. I did not wear hose today to church for the first time in 51 years - well, more like 40 years since I think I started wearing it when I was 11. I felt so naked. To know why, see number 1. <BR> <BR> 3. I don't know how all the animals with their fur coats do it. We've been trying to keep them cool, but still. <BR> <BR> Sun, 5 Jul 2015 23:40:49 EST What Went - Saturday 1. Happy Independence Day to all of you in the United States! Keep it safe and fun! In our area where it is so terribly dry I am so glad that so far all the neighbors are obeying the fireworks ban. We will go down to see the professional fireworks later tonight. The neighbors are a bit nervous about that but we console ourselves with the thought that is is done over the lake and done by professionals who hopefully will have a good handle on how to do this safely this year. <BR> <BR> 2... Sat, 4 Jul 2015 21:28:11 EST What Went - Friday 1. The C-Diff is back under control. My understanding though is that once the bacteria is in your gut it is pretty much impossible to get rid of . It's a matter of having enough good bacteria, yeast etc. to keep it under good control. <BR> <BR> 2. I bumped into my personal trainer at the grocery store. He asked me how I've been and when I can come back to train. I told him that I've been on antibiotics for 7 months. He told me, "Being on antibiotics so long isn't good for you." I t... Fri, 3 Jul 2015 21:51:27 EST What Went - Thursday 1. The latest round of antibiotics has brought the C-diff back in all it's awful glory. I know what to do but it isn't fun. The good news is that the bad antibiotic was only meant to be a stop gap measure and the real antibiotics were delivered last night so I am already switched over to better ones. The bad news is that it will take me some time to get my tummy back to normal. <BR> <BR> 2. I was already taking Florastor and high doses of probiotics once a day. Now I'm taking it twice ... Thu, 2 Jul 2015 23:17:07 EST What Went - Wednesday Announcing our new bouncing baby. ..........................................<BR>....driver! Today was spent taking ds to take the written driver's test and then to the DOL for his learner's permit. <BR> <BR> Thu, 2 Jul 2015 00:19:29 EST What Went - Monday I am officially starting month 7 of non-stop antibiotics. I wonder if I could go in the Guiness Book of World Records or something? All of my doctors (and yes, I have more than one) do not like using antibiotics unless they are absolutely necessary, They all agree that it is absolutely necessary. I take an insane amount of probiotics to help counter the effects of all of this. I'm going to a naturopathic doctor to help boost my immune system so that hopefully I can be infection free. A... Tue, 30 Jun 2015 00:53:18 EST What Went - Sunday 1. Ds turned 18 on Thursday but we celebrated today. He asked if we could go to Casa Durango, a Mom and Pop Mexican place for lunch. I got tres tacos al pastor but only ate uno taco. I had another uno taco for dinner and then ds ate the remaining one for his dinner. They weren't really big either but were just enough as they were. <BR> <BR> 2. He opened presents at home. He laughed when he saw the "Backyard Ballistics" book and said to prepare for explosions in the back yard. Dh had ... Mon, 29 Jun 2015 01:13:47 EST What Went - Saturday 1. Left knee keeps feeling like it is going to pop out. I'm on the fence on whether I'm going to go for an evening walk. Will it help things? Or will the knee pop out forcing me to call for ds to help me get back home? <BR> <BR> 2. Dd had a fun time at a YMCA carnival today. The staff then had a water balloon fight afterwards. So much fun in the hot weather! <BR> <BR> 3. Other than the knee, I'm actually having a pretty nice day. Sat, 27 Jun 2015 23:56:37 EST What Went - Friday 1. It is very hot today. I'm very achy and tired today as a result. Rocky and I did not walk outside today. Instead, I walked on the treadmill at the Y. My knees hurt a lot but I just walked slower than normal. <BR> <BR> Sat, 27 Jun 2015 01:31:56 EST What Went - Thursday 1. Today was a "good pain day". My back is still sore but no spasms. I'm having a bit of fibro pain tonight but just a tiny bit. <BR> <BR> 2. Rocky and I walked for 40 minutes today. We even walked through the woods. <BR> <BR> 3. I was doing some paperwork and all of a sudden came across the reminder for car tabs. I quick had dd check the license plate and sure enough, I was overdue for new tabs. I drove very carefully to the vehicle licensing office. I got there when they were t... Fri, 26 Jun 2015 01:22:18 EST What Went - Wednesday Very bad muscle spasms and back pain today. <BR> <BR> Doctor #1 (primary) did absolutely nothing other than to tell me to lose weight. I wanted to scream and cry but I had admirable restraint. (This was an already scheduled appointment. He did say that my cholesterol is looking better.) <BR> <BR> Doctor #2 (chiro) adjusted my back but told me that it was mostly a muscle problem. Which I pretty much knew. <BR> <BR> I got dd to paint my entire back with "Bio Freeze" - a pain relievin... Wed, 24 Jun 2015 22:55:39 EST What Went - Tuesday 1. I woke up feeling very very stressed. There are some schedule and financial stressors but a very needy neighbor has pushed me over the edge right now. Everyone in the family is banned from picking up the phone if she's on the caller i.d. right now! (I really like her but right now she needs her therapist, not me.) Anyway. . . . my own therapy consisted of extra magnesium and electrolytes, extra sleep, a talk with my sister and tackling some of the mess in my life straight on. <BR>... Tue, 23 Jun 2015 21:24:08 EST What Went - Monday 1. The kids feel better. I don't know what they had but it was quickly over. <BR> <BR> 2. I dropped ds off at work and continued on into the big city for my fasting bloodwork. I got the bad phlebotomist again. She got blood but it wasn't fun. <BR> <BR> 3. I didn't get enough sleep last night due to needing to go for the labwork. Lack of sleep = pain. I gave up a family trip out to the movie theater in order to get the sleep I needed. The family enjoyed watching "Inside Out". I'm... Tue, 23 Jun 2015 02:01:15 EST What Went - Sunday 1. Good thing we celebrated Father's Day and Dh's birthday on Saturday night. Both kids woke up sick today - colds and in the case of dd, fever. <BR> <BR> 2. Dh and I went out for lunch after church. I had hoped it would be a date. Instead we took a friend. But a nice friend, so it was ok. <BR> <BR> Mon, 22 Jun 2015 03:26:29 EST What Went - Saturday 1. Yesterday I went to a Y a bit farther away to use the sauna. I didn't like it. But I will do it because the doctor told me to do it. <BR> <BR> 2. Tonight we picked dh up at the airport. When he got home he had birthday gifts and gluten free chocolate brownies waiting for him. We got him a gift card to a local theater as well as some theater snacks. The real gift will be our family outing to use the gift card! <BR> <BR> Sun, 21 Jun 2015 01:46:35 EST What Went - Friday 1. I woke up this morning with swollen very sore feet. I'm hobbling around but I am hobbling. I'm still planning on taking Rocky for a walk later. <BR> <BR> 2. I went to Target today for gifts for my husband but decided to spend a bit of time looking for some tops for me. I went to their Women's section. I saw a bunch of tops that looked so cute on the hanger but ack! they looked so horrible on me. It was very very depressing. Ironically, I had been motivated to look for tops bec... Fri, 19 Jun 2015 20:52:25 EST What Went - Thursday 1. I found a sauna I can use - not at our Y but at another nearby one. We are allowed to go to any in our county with our membership so sweeeeeeeet! (Doctors orders are for sauna at least 2x a week.) <BR> <BR> 2. I stated a health/pain log this morning for the new doc. He didn't ask me to do this. And he may totally disregard it but I think it could be helpful. <BR> <BR> 3. I went to our local(ish) compound pharmacy and showed him the prescription for the special nasal spray. He ... Thu, 18 Jun 2015 20:59:18 EST What Went - Wednesday I went to the naturopathic pain doc. today. I feel very positive about it. He was so much more knowledgeable than even previous naturopathic docs I've gone to. I have to order a number of supplements that hopefully will help. And a couple of prescriptions. He's specifically addressing my liver, my immune system and my diabetes. <BR> <BR> He asked me if I had been tested for Epstein Barr. I told him that I had asked about that and my doctor at the time had laughed at me and told me t... Thu, 18 Jun 2015 01:17:36 EST What Went - Tuesday 1. Dh came home from work last night and announced that the trip he told me he was going on Wednesday was actually Tuesday (today). So this morning, I dropped ds off at work and then kept going and dropped dh off at the airport. Since I didn't get to sleep until 1 am because of dh's packing and rummaging around, and then woke up at 6 am, I am pretty tired, <BR> <BR> 2. Today we went to Fry's electronics so that ds could get computer stuff that he had saved up for. We got home, and dh ca... Wed, 17 Jun 2015 01:46:27 EST What Went - Monday 1. I walked a lot today. For the first time in many many months I reached my goal of 6000 steps. I had to take my car for brake work since they were grinding badly. Dd13 and I dropped the car off at Midas and then walked across the street to a small local mall. We walked around there and talked and then ate lunch at Old Country Buffet because that was slightly easier to manage being gluten free. Then we walked four or five blocks over to a PetCo. We walked around there as well. When i... Mon, 15 Jun 2015 22:27:54 EST What Went - Sunday Today I really missed my dad a lot. In church we sang "What a Friend We have in Jesus". I last sang that, in Japanese, at my dad's funeral. I burst into tears and had to go hide in the bathroom for a long time. <BR> <BR> Anyway, this evening I called my mom. She had a joke to tell me that she told me was much better than my dad's lame jokes. And it was! It was quite clever actually. So then I said, "Mom, did you hear about the boy who was hurt?" And she said, "no, what happened?" ... Mon, 15 Jun 2015 01:36:28 EST What Went - Saturday 1. Dd was at the Y from 10 am to 9 pm. A very long but happy day. <BR> <BR> 2. Ds and I drove an hour and a half south of us to a friend's graduation party. My husband and I went to seminary with the graduate's dad way back in the day. So we've known him all his life. They had a very nice bbq on their farm. Ds played volleyball with all the young people. <BR> <BR> 3. Rusty bunny was a bit of of a terror tonight. He kept getting into spaces that he wasn't supposed to go. When I fin... Sun, 14 Jun 2015 02:06:33 EST What Went - Friday 1. I made an appointment to see the pain doc next week. I was still feeling a bit nervous about it but my neighbor who goes to him had reassuring things to say about how he listens and doesn't push any one agenda. <BR> <BR> 2. Dh was off from work today. He did a lot outside. I went out and worked for ten minutes. It's been hours and I'm still very tired from that ten minutes. <BR> <BR> 3. Rusty bunny had a very busy day. While dh was outside working, dd took Rusty out on his harnes... Fri, 12 Jun 2015 22:21:55 EST What Went - Thursday 1. Keeping all the important bits covered is more challenging when you have more body to cover. Perhaps it is just my body shape but no matter how long I try to get my shirts, that belly starts poking out at some point. I'm always trying to pull up my pants too because that round belly starts shifting things downward. That is the biggest thing I look forward to if I ever lose this weight - being able to have clothes fit better. <BR> <BR> 2. My sugars have been more of a challenge today.... Thu, 11 Jun 2015 22:59:46 EST What Went - Wednesday 1. Riiiiiiiiiiiiiiiiiiiiiiiiiice! I want riiiiiiiiiiiiiiiiiiiiiiiiiice! But I'm staying strong. (It has only been two days since I've had any. Growing up in Japan sort of programs you that way.) <BR> <BR> 2. Note to self: do not eat any goodies at the neighbor's house. She's trying to get me to try some medical marijuana brownies for my pain. Not happening. (I have addiction issues). I have no problem what she eats or imbibes and it is legal here both medically and recreationally... Wed, 10 Jun 2015 21:46:58 EST What Went - Tuesday 1. A good friend has convinced me to look into going to a pain specialist. Today I looked up the insurance information on that. <BR> <BR> 2. I'm working hard to control my bloodsugars again. Actually, breakfast and lunch are a piece of cake. (Well, not literally since that would cause my bloodsugar to go out of control. . . .) My sugars are absolutely perfect after them. Afternoon snack isn't bad either. Dinner is my problem because that is when I want some rice - even the healthy b... Tue, 9 Jun 2015 21:03:41 EST What Went - Saturday 1. I can't do this pain thing anymore - but I have no choice. <BR> <BR> Sat, 6 Jun 2015 23:01:59 EST What Went - Friday 1. Very bad pain/fatigue day. <BR> <BR> 2. "I'm having a very hard time this morning", I said to dh. He laughed and said "Yeah, you are. It's two o'clock in the afternoon!" It went down hill from there. By 3 pm I had waved the white flag and retreated to my armchair. <BR> <BR> 3. I ate too much today. I wasn't hungry. I was searching for a release from pain. And to one degree it worked. Which is why I find myself doing it on really bad pain days. I'm not quite sure why. Since... Sat, 6 Jun 2015 02:01:38 EST What Went - Thursday 1. Dd13 earned frozen yogurt for the second day in a row. She mastered 6th grade in Khan Academy yesterday. A placement test started her at 25% in 7th grade (the benefit of no summer off between grades!) and today she got it to 30%. <BR> <BR> 2. Dd13 must not have closed her bedroom door before going into the shower. She got out and rushed into her room when she heard whining like someone was hurt. Rocky had gotten in there and was pressed up against the rabbit cage and was whining. ... Fri, 5 Jun 2015 00:17:48 EST What Went - Wednesday 1. Neko allowed Rusty to sniff him for a few seconds. Then Rusty the attack rabbit rushed at Neko and bumped him really hard on his bottom with his head. (I don't think he bit him.) Poor Neko. <BR> <BR> 2. fruits and veggies eaten today: <BR> mango <BR> peas <BR> broccoli <BR> edamame (soybeans) <BR> lentils <BR> peach <BR> tomato <BR> onions <BR> <BR> 3. I got 20 min. of weeding done. Very slow progress. <BR> <BR> 4. Oh, and I went to the chiropractor. <BR> Thu, 4 Jun 2015 00:29:29 EST What Went - Tuesday Nothing too amazing today. <BR> <BR> 1. We got Neko (cat) and Rusty (bunny) new boxes at Costco. They are both so interested in them. <BR> <BR> 2. I'm pretty tired tonight from having been out all afternoon. <BR> <BR> 3. Fruits and veggies eaten today: <BR> <BR> green beans <BR> avocado <BR> tomato <BR> peach <BR> cabbage <BR> onion <BR> carrot <BR> <BR> Wed, 3 Jun 2015 01:52:34 EST What Went - Monday 1. Poor Rocky. I was fixing my meds that I now snort through my nose (perfectly legal and doctor prescribed!). He saw the bottle and ran and hid. He thought it was his ear squirt meds. I was mean and asked him to come for a pat. (Poor me for having to snort my meds through my nose.) <BR> <BR> 2. Rocky (dog) licked Rusty's ears while dd13 was holding Rusty (bunny). That was sweet until I noticed that Rocky was licking his lips and quivering with excitement? Hunger? Out he went unti... Mon, 1 Jun 2015 23:31:37 EST What Went - Saturday 1. I made up a savory butternut squash recipe: butternut squash chunks sauteed and simmered with pork cubes and seasoned with onion, bell peppers, garlic and a couple of tablespoons of soy sauce. Dh really liked it. <BR> <BR> 2. Dh is hereby banned from ever buying toilet paper again. Not only did he buy sandpaper, but it is one-ply sandpaper. <BR> <BR> 3. Rocky now has a reverse Mohawk. I do not have the money to pay for a groomer or the stamina to do more than ten minutes clipp... Sat, 30 May 2015 22:57:06 EST What Went - Friday 1. I finally got my special meds today. The shipping was not expedited. If I have to have more of these meds I will see if I can get them at another compound pharmacy that has given me excellent customer service. <BR> <BR> 2. The ENT has told me to stay on the oral meds over the weekend while I start the new nasal rinse meds. <BR> <BR> 3. I tried to go to a friend's choral ensemble concert tonight. I came home after 2 hours. I never found my friend's concert despite having both Mapqu... Sat, 30 May 2015 02:31:12 EST What Went - Thursday 1. Still no special meds delivered. Expedited shipping, my foot. <BR> <BR> 2. I'm feeling better on the oral antibiotic. <BR> <BR> 3. I got some Rainier cherries today. They are very expensive but I love them. They are my once a year treat. <BR> <BR> 4. Rusty managed to sneak up on Neko and sniff him. Neko jumped a foot when he noticed! I still get a kick out of a cat being scared of a rabbit. <BR> <BR> 5. Rusty bit me today! He didn't really mean to bite me. He tries to g... Fri, 29 May 2015 02:45:48 EST What Went - Wednesday 1. Went to my primary this morning. My A1C was better this time. Woo hoo! He put me on two new meds. Boo. I was expressing my frustration at still being on antibiotics after 5 months and got a doctor's version of "there, there". He said "the specialist is doing all he can to combat this" And he's right. But I am weary. <BR> <BR> 2. We also went to the chiropractor today. He put my rib back in place. That rib doesn't want to stay put. <BR> <BR> 3. Rusty was stalking Neko today. ... Thu, 28 May 2015 01:58:31 EST What Went - Tuesday 1. The Good - I vacuumed the hall and stairs today. Then after a rest and liberal use of my inhaler, I vacuumed one corner of the living room. I went to put away the vacuum because I could not do any more and dd13 vacuumed the rest of the living room - willingly and with no prompting from me! <BR> <BR> 2. The Bad - My sinus infection is getting worse. It is quite painful. <BR> <BR> 3. The Ugly - I was very upset with the specialty pharmacy that is supposed to provide the special me... Wed, 27 May 2015 02:56:00 EST What Went - Monday 1. Rusty bunny does not like red bell peppers. He sniffed it. He tried a nibble. He flopped down and went to sleep. This is the first thing he's turned down. But he might change his mind after a nap. . . He must have decided he likes it because I cannot find any bell pepper in his cage anymore! Follow Rusty's advice, if you don't like a vegetable the first time, don't give up but try it again. You might find that it grows on you! <BR> <BR> 2. Rocky led us on a glorious chase thro... Tue, 26 May 2015 03:01:16 EST What Went - Sunday Today we were gone all day. Right from church we drove north an hour to have a meal at our friend's house. They have two little girls and one more due any day. I had forgotten how noisy and busy little kids can be! I had gluten (and wheat) for the first time today since before Thanksgiving. The hostess made small mini shortbreads with strawberries. So yummy. At this point I'm not having any bad effects from eating it. <BR> <BR> The younger couple's house is messy and cluttered. It ... Mon, 25 May 2015 01:53:17 EST