JEANINNEWCASTLE's SparkPeople Blog JEANINNEWCASTLE's Blog on SparkPeople, home of free diet plans and a healthy living community What Went - Tuesday 1. We have a chalkboard in the hallway. We've had it for a number of years but this year we are starting to see it's true potential. <BR> <BR> I have across the top: Welcome to __________ (where I enter the day - today would be Tuesday) <BR> <BR> Under that I have five categories: <BR> <BR> Human Care; Pet Care; House and Garden care; Brain Care and Spiritual Care. <BR> <BR> Human care is where we each record our step count for the day. It is also where I put doctor's appointments... Tue, 1 Sep 2015 23:07:45 EST What Went - Monday 1. Went to the ENT today. He said that I am swollen but there is no sign of infection. Woo hoo! He wants to see me still in a month. I think it is funny that my doctors who in years past would have told me to see them in six months or a year after clearing me, are now telling me that they want to see me in a month. No one wants to bet on me staying on this way though of course we want me to stay this way. The ENT says that now would actually be a good time for sinus surgery but I would... Tue, 1 Sep 2015 01:15:02 EST What Went - Sunday 1. My eye is feeling much better today. <BR> <BR> 2. I figured out that in order to do a minimum of 6000 steps a day, that I need to do 500 every hour over 12 hours if I spread it out all day. Of course I don't spread it out all day most days if I go for a walk since I can get a good chunk of steps right there. But it's good to know. <BR> <BR> 3. I put the garbage out at the curb. Later tonight dh came home to say that the garbage can had tipped over and garbage was in the street. As... Sun, 30 Aug 2015 23:56:03 EST What Went - Saturday 1. You know how yesterday I said that I had pink eye? The consensus now is that I somehow hit and scratched myself during the night. I have a small but distinct shiner. <BR> <BR> #evertheklutz <BR> <BR> 2. I actually googled today and found that there really are retreats for tired mothers. I can't afford them though and I would find more work waiting for me when I got home than when I left. <BR> <BR> 3. I walked this evening with my dd13. Sometimes my legs just feel like trunks... Sun, 30 Aug 2015 01:39:34 EST What Went - Friday 1. I have pink eye. <BR> <BR> 2. I don't know if it is related but I am really really tired today. Today has been a take-it-one-step-at-a-time day. I have gotten some stuff done but I've ssat around a lot too. <BR> <BR> 3. I got Rocky's paw #3 done. One more to go. <BR> <BR> Fri, 28 Aug 2015 21:33:36 EST What Went - Thursday 1. Today was a big errand day - optometrist, 3 bookstores, chiropractor, shoe store, grocery store. I was also supposed to go to the bank but I forgot. I guess that will be on tomorrow's list. <BR> <BR> 2. 3 bookstores and none of them had the two books I especially wanted. It appears that one book is only sold through the publisher's website. I could have ordered the other book but didn't want to wait since I wanted it as a gift. I got some other books instead. <BR> <BR> 3. My feet... Thu, 27 Aug 2015 22:25:27 EST What Went - Wednesday 1. I just realized today that I'm happy in a content sort of way. For the first time in a very very long time (ie. two decades) I'm not dealing with daily pain of any significance. If I get enough sleep (and unfortunately that can be a big if) then I have enough energy - not tons or anything but enough. The doctor said to me in amazement today "You're doing ok right now". Yep, that's how I feel about it too! Dd had to ruin things by telling him that I always get sick in October, Novemb... Wed, 26 Aug 2015 20:54:07 EST What Went - Tuesday 1. Real life is boring compared to camp. I mean really, it is so much more fun to put togehter 20 catapult kits compared to sending in prescription forms for insurance! <BR> <BR> 2. Dh and I took a walk tonight. Even with the walk I didn't get anywhere near my step goal. It's those stupid insurance forms and other work like that! <BR> <BR> 3. Dd is bored since we got home from camp. I did have her do some yardwork and she helped me to trim one of Rocky's paws. We're doing one paw a ... Wed, 26 Aug 2015 02:32:17 EST What Went - Monday 1. I went for my fasting blood draw this morning. I must have been a shriveled dried up turnip because even the very experienced phlebotomist (I've had her before) couldn't get any blood out of me. Then she did a move I've never seen before. She got blood from the front of my arm, instead of the inside where you usually can see the veins. I don't know how she knew where to poke but I was just glad that she hit "red gold". <BR> <BR> 2. I have been up since around 6 am. I am still so ... Mon, 24 Aug 2015 22:42:31 EST What Went - Sunday 1. I am beyond exhausted. I am supposed to pay bills this weekend but I think I'm going to have to do it tomorrow because I am hardly functioning at this point. <BR> <BR> 2. Rusty is so happy to be home. He is jumping straight up in the air and is binkying. (A bunny hop of joy.) <BR> <BR> 3. I got the kids to help me to do a "post mortem" on camp. I will type it up and send it to the camp director. They had some really good comments on what went well and had some good suggestions on... Mon, 24 Aug 2015 00:17:29 EST What Went - Saturday 1. Packed up camp this morning. All cabins worked hard to clean their own cabins. We had really super kids this year who had done really well at keeping things clean all week so this wasn't so hard. The rest of us tackled our areas of expertise. I packed my open air classroom stuff up. <BR> <BR> 2. We ended camp with a baptism service. We had 4 kids baptized. All four kids had parents or grandparents present. <BR> <BR> 3. Each cabin has a cabin flag. Before the baptism each co... Sun, 23 Aug 2015 01:25:42 EST What went- Friday 1. Friday isn't over yet but I'm going to post Friday's blog anyway. Tonight and tomorrow will be insanely busy. 2. Camp activities for Thursday and Friday: swimming, a big swing that goes out over a cliff (they are well strapped on), bottle rocket contest, ken ball ( hard to describe), survival bracelets, canoeing, s'mores, camp photo in our tie-dyed shirts and practicing for the talent show. 3. I had my last class with "my kids " Friday morning. That's always sad. We finished up wi... Fri, 21 Aug 2015 18:17:15 EST What went- Thursday 1. I want to start with something that happened later in the day first because it has the most significance for me personally. My husband came to camp! He is normally with us all week as camp nurse and pastor but this year he couldn't get the whole week off from work. 2. We have an autistic boy at camp. He's had a tougher week than normal this year because his cousins couldn't come. He adores my husband. My husband said that he had barely parked his car and the boy was knocking on ... Fri, 21 Aug 2015 13:33:17 EST What Went- Wednesday 1. Wednesday is the day when I say "what was I thinking when I agreed to teach at camp?" Fortunately this is my fifth year so I know that by Thursday I'm saying "it's almost over? Noooo! I want it to go on forever!" 2. I've been on little boy patrol all morning. The little boy counselor had to leave for a while and fights (minor ) broke out. So I've been trying to keep boys separated who insist on getting in each other's space. And I've been calming down the director and reminding hi... Thu, 20 Aug 2015 19:58:54 EST What Went- Tuesday 1. Quiet moments can be hard to come by. I sometimes borrow a bunk in one of the girl's cabins to have a rest. I've even fallen asleep in the middle of a group of giggling gossiping tween girls! 2. Today was filled with tie dye t -shirts, frisbee golf, canoeing, ropes course, and the climbing wall. 3. We have lots of great Bible teaching too. I've found the teaching to be helpful. 4. Most of my students are very responsive. They really really enjoyed the rainbow loom bracelet w... Wed, 19 Aug 2015 18:06:11 EST What Went- Monday 1. I'm writing my blogs a day late because evenings at camp are jam packed until I fall into bed. 2. The country roads around here are scary- narrow, winding and dark. And everyone except for wimpy me are driving on them ( it seems) at full speed. 3. A camp observation: kids are easy; mentoring adults is hard. We all have baggage but adults have had more time to collect them. As camp staff, we help each other out as much as the kids. 4. Both my classes went well - even my dreaded ... Tue, 18 Aug 2015 15:42:38 EST What Went- Sunday 1. I ended up adding an hour driving time to our camp journey because ds18 forgot crucial cables for the sound system at home. We weren't on the road yet but were at church where we were meeting up to caravan. So I drove the 30 minutes back north to our house. We got the cables and were 5 minutes away picking up some last minute stuff at the drug store when he remembered that he had forgotten the microphone and stand. So we went home again and got that and were just leaving when he remem... Mon, 17 Aug 2015 16:38:11 EST What Went - Saturday 1. I never did react to the gluten as far as I can tell. <BR> <BR> 2. My throat and ears are swelling some but this does not contradict #1 as I've been having this all along. Since I am on the prescription meds, and it is still happening, I'm thinking that the doctor's guess on what is causing might be wrong. But what do I know? I'm guessing too. <BR> <BR> 3. No rest for the wicked. It is busy, busy, busy. <BR> <BR> 4. I think we finally decided on how to use the rubber chickens.... Sat, 15 Aug 2015 22:04:25 EST What Went - Friday 1. I am really really tired. I need to rest up before camp! <BR> <BR> 2. I think we are all done with camp lesson prep. Today I got the oil changed, the transmission fluid changed and the rear differential fluid changed in the car. This is under camp prep because I'm driving 3 hours to camp on Sunday. All of these things were scheduled maintenance that just happened to be due now but I figured I'd better do it before the trip. Tomorrow we have to clean out the inside of the car and ... Fri, 14 Aug 2015 23:45:31 EST What Went - Thursday 1. Today was a bit of a roller coaster in camp prep. It started last night when my counselor/ assistant suddenly told us that she could not come to camp and wouldn't tell us why. Then today she told us that her parents who had previously agreed to let her come join us in this ministry have now grounded her - including going to camp. I'm a bit annoyed at the parents who I've never met. But oh well, not my business - well, except for trying to figure out what to do now. (If for some reas... Thu, 13 Aug 2015 22:15:19 EST What Went - Wednesday 1. The doctor (who is normally a very good doctor) was underwhelming this morning as he kept asking me if I knew what certain things in my radiology report meant. Since my appt. was for him to explain it to me, that was rather disconcerting. <BR> <BR> 2. We got part of the camp music organization done. There is more to be done. Maybe tonight? <BR> <BR> 3. I got my baby fix with a little one to two month old baby. <BR> <BR> 4. The kids were supposed to be getting together with... Wed, 12 Aug 2015 20:50:39 EST What Went - Tuesday 1. It is Tuesday, right? I know it is 5 more days until camp. Dd, aka my Countdown Timer, lets me know multiple times a day. <BR> <BR> 2. Today I got to go dumpster diving. I called our local appliance store and they gave me permission to go through their dumpsters for appliance boxes. The dumpster diving was successful. We have forts! I only had to explain our presence to one bemused man who was watching us root through their recycling. I explained that I had permission but he stil... Tue, 11 Aug 2015 22:36:20 EST What Went - Monday 1. Spent all afternoon shopping for camp. The hardest thing to find were the rubber chickens. (Do you know how embarrassing it is to have an employee ask over the loudspeaker if their store carries rubber chickens while everyone in the store looks to see who is asking for them?) <BR> <BR> 2. I'll tell you what we're doing with the rubber chickens once we figure out exactly what we're doing with them. We couldn't find the "real" game that uses them (yes, there really is one) and so we're ... Tue, 11 Aug 2015 02:42:20 EST What Went - Sunday 1. We had a nice church service. Dd's friend came with us. Her friend is also going to be one of my assistants at camp. <BR> <BR> 2. Ds drove part of the way home. He's doing pretty good even though he almost blew through one stop sign. (I didn't let him.) <BR> <BR> 3. Dd is working on some of the camp activities. <BR> <BR> 4. I figured out that the solution to one of my problem activities was a rubber chicken! <BR> <BR> 5. I have the barium swallow test first thing tomorrow mo... Mon, 10 Aug 2015 00:54:33 EST What Went - Saturday I got my CPap reassembled with fresh parts today. The parts finally came yesterday. I was pretty mad to see that it hadn't even been mailed until the day before. That means that my medical supplies were sitting in the warehouse for 13 days after I ordered them. And I ordered them locally. I left a honestly bad review about the company and saw some similar reviews about similar bad service. I also called the doctor's office and told them that I want to find out the names of the other ven... Sun, 9 Aug 2015 01:53:20 EST What Went - Friday 1. Tonight for the first time in about a week, I've had intense pain and fatigue. I've been having the fatigue, just without the pain. Oh, well, I guess it was too good to last. <BR> <BR> 2. Each day has it's own joys and challenges. Today's joys - being entertained by a naughty bunny who is so cute that it is hard to stay mad at him for more than a second or two. Seeing dh and ds go off to their Bible study and then movie with the guys. Cuddling with my daughter. <BR> <BR> 3. As ... Sat, 8 Aug 2015 03:01:24 EST What Went - Thursday 1. Dd and I went through lessons 1 through 4 for camp and chose crafts or activities for each. I'm still working on lesson 5's activity. I think I know what I want to do. I just have to let it percolate while I figure out the logistics with doing it with this many kids and this wide an age span. Tomorrow we will keep working on lessons 5 through 9. Maybe. I just realized that I have to take ds for allergy shots and that really cuts into my day. If not tomorrow, then Saturday. <BR> <B... Fri, 7 Aug 2015 03:05:34 EST What Went - Wednesday 1. I got my last camp lesson plan written! 9 all told. I had a hard time writing the last two lessons but somehow it all came together today in a really neat way that tied it all together. Sometimes my writing takes on a life of it's own so it's nice when it all ends up working out. ;) <BR> <BR> 2. I talked to the co-director of the camp today. She's a bit stressed! I purposefully did not tell her any of my current health struggles. They are well aware of my chronic problems. We've... Thu, 6 Aug 2015 03:05:20 EST What Went - Tuesday My throat is getting more and more swollen since I saw my doc on Friday. My ears are now starting to get plugged up from the swelling as it moves upwards. <BR> <BR> This evening I played "hot potato" with the doctors. I'm the hot potato. I waited two and a half hours on a call back from the second doctor to see if I need to call the third doctor. The first doc said that I can come in if I want to but he doesn't think my issue is one he can help with. Anyway, doc #2 (my primary) wants... Tue, 4 Aug 2015 22:38:00 EST What Went - Monday I am going to vent. I desperately need to set up my CPap again. It may be why I'm sleeping for hours and hours. I ordered supplies a week ago. They are supposed to come right away. I was patient. I waited until today and then called. They had the box still sitting there. I am so mad. They say it might be here by Thursday. The stupid office is less than an hour away. I should have driven down and picked it up a week ago. In fact, I could have walked there and back by now! <BR> <B... Tue, 4 Aug 2015 02:07:17 EST What Went - Sunday Ended up sleeping 12 hours between last night's 8 hours and today's 4. And I can't wait until bedtime. But I hope I can actually sleep tonight. <BR> <BR> Started one new med today. Will start another new one tomorrow. These are just sort of "let's see if they work" OTC meds that the doctor wants me to try. Have testing scheduled next week. <BR> <BR> Talked to my sister. Her best friend (coincidentally with fibro like I have) died suddenly. She was very sad. <BR> <BR> I got one ... Mon, 3 Aug 2015 01:02:17 EST What Went - Friday Today was another extreme fatigue day. I finally texted dh at 1 pm to tell him that I was barely able to function. My throat was also very tight and I was coughing a lot and since I had not been able to swallow the night before when eating dinner, I was still having to take very little bits of food. He surprised me by insisting I call the doctor right away. So I did and they insisted I come right in. Well, there was a bit of a problem because the bridge was closed due to the Blue Angels ... Sat, 1 Aug 2015 03:22:52 EST What Went - Thursday 1. I've been working hard on my camp lesson plans. I have written 5 lessons out of 9. It takes me 2 hours to write the body of one lesson. Then I will have to come up with crafts or activities to go with each one and assemble all materials. I have 2 1/2 weeks. I'm feeling the pressure! <BR> <BR> 2. Today I was chauffeur for the teens who wanted to get together to practice music for camp. I got to talk to another mom for a couple of hours while they practiced. <BR> <BR> 3. Because... Fri, 31 Jul 2015 02:40:53 EST What Went - Monday Last week I increased one of my meds. It is a powerful drug, though I was on a very low dose and even my increase is still a low dose. However, just a small increase was pretty difficult. The first day I slept for 11 hours and had a very difficult time getting up even after that. The second day was not much better. The third day was a bit better. Today was pretty good though I was pretty tired by supper time. Only time will tell how much it will help overall. <BR> <BR> Today I went to... Mon, 27 Jul 2015 23:40:29 EST What Went - Wednesday I didn't get enough sleep last night. I had to get up early to go to the sleep specialist. She's the second doc who's told me to up one of my meds. They say it should help my pain levels so maybe I should listen. . . She did give me a good suggestion for keeping side effects to a minimum. She also wants me to get all new attachments and start up the CPap again. I'm a bit nervous about having something forcing (hopefully clean) air down my throat. <BR> <BR> Speaking of my throat, yes... Thu, 23 Jul 2015 01:04:39 EST What Went - Friday Today got off to a slow start but I could feel the intense fatigue lessoning as the day went on. I didn't get a lot done today but I did get a bit done and that's good enough. <BR> <BR> Today's walk got off to a frustrating start. I decided that Rocky and I would explore a new trail that I've never gone on before - one that borders the golf course. I went to the end of the trail and started to park. I looked up and there was a sign "No Parking at Any Time". Did that mean the entire str... Fri, 17 Jul 2015 23:55:26 EST What Went - Thursday No walk yesterday or today. I had a great day yesterday - got a ton done - almost as much as "normal" people who don't have chronic illness. But the happiness was short lived when I could hardly move by dinner time. The extreme fatigue has lasted through today. I'm really hoping that it doesn't last into tomorrow or longer. I want to get back to my walks and my regular life. Fri, 17 Jul 2015 02:30:19 EST What Went - Tuesday Today I went a different direction on my stress busting walk. <BR> <BR> <img src=""> <BR> <BR> I am so sad that these woods are slated for development. Boo progress! <BR> <BR> <img src=""> <BR> <BR> In a month or so, all the neighborhood will be back here picking blackberries. <BR> <BR> <img src="http://photosaws.sparkpeople.c... Wed, 15 Jul 2015 00:42:45 EST What Went - Monday Proof of today's long stress busting walk. <BR> <BR> <img src=""> <BR> <BR> Going into "Mosquito Woods" - I'm pretty sure that there are "Rodents of Unusual Size" in here. Fortunately we are in a drought so I encountered no mosquitoes of any size today. <BR> <BR> <img src=""> <BR> <BR> Our local very nice elementary school that we... Tue, 14 Jul 2015 00:06:50 EST What Went - Saturday I've been in a very bad place pain wise and in my spirit (discouragement) for the last couple of days. Today I decided to go for a walk with dd13 and Rocky. I wasn't sure what that would do to my pain but I knew it would boost my spirit. <BR> <BR> <img src=""> <BR> <BR> The start of our up and down (but mostly down) trek down the ravine trail. <BR> <BR> <img src=" Sat, 11 Jul 2015 20:08:36 EST What Went - Thursday 1. Could not get back to sleep again this morning. So six and half hours - not horrible but not enough either. <BR> <BR> 2. Did nap for about an hour later in the day. That made most of my aches go away. <BR> <BR> 3. Besides the short sleep hours, 7 months of antibiotics have depleted me of all of my (limited) oomph. I should be walking daily but the heat and lack of energy have made it so that I just can't move. I don't think I'm depressed. I care. I just don't have the energy to... Fri, 10 Jul 2015 02:58:37 EST What Went - Wednesday 1. I've had a good thing for self care - my dh is now working days instead of evenings. This means that I don't have to stay up to see him and talk to him. But it also means that I am woken up early. In the past I've been able to see ds off to work and then go back to bed and I assumed I'd be able to do the same with dh who's up at the same time. I'm sure I will get used to it but right now I'm not able to get back to sleep probably because I have more chores to do to get his breakfast a... Thu, 9 Jul 2015 01:48:58 EST What Went - Tuesday 1. Today was a pretty good day. What was the difference between yesterday (bad day) and today? No idea! <BR> <BR> 2. Today we went to the big regional library. I was trying to get a bunch of work done on my summer camp preparation. I did get a fair amount done despite the Korean man talking for an entire hour on his cell phone in the stacks, the mentally ill man who started to rant at the top of his voice and was escorted out and my dd13 who was grumpy because she didn't think that w... Wed, 8 Jul 2015 01:00:09 EST What Went - Monday 1. Today was a pretty hard day. I kept waking up ever two hours last night. I was so nauseated. I had nausea hit me in waves all morning too. I still don't know why but I have been drinking extra water in case it was hydration related. <BR> <BR> 2. Talking to someone helps me to get through chores on tough days. Today I chatted with my eldest sister and managed to get the dishwasher loaded and one load of laundry folded and put away. <BR> <BR> 3. I really really really did not wan... Tue, 7 Jul 2015 00:37:32 EST What Went - Sunday 1. I'm hoooooooooooooooooot. (said with a whine). <BR> <BR> 2. I did not wear hose today to church for the first time in 51 years - well, more like 40 years since I think I started wearing it when I was 11. I felt so naked. To know why, see number 1. <BR> <BR> 3. I don't know how all the animals with their fur coats do it. We've been trying to keep them cool, but still. <BR> <BR> Sun, 5 Jul 2015 23:40:49 EST What Went - Saturday 1. Happy Independence Day to all of you in the United States! Keep it safe and fun! In our area where it is so terribly dry I am so glad that so far all the neighbors are obeying the fireworks ban. We will go down to see the professional fireworks later tonight. The neighbors are a bit nervous about that but we console ourselves with the thought that is is done over the lake and done by professionals who hopefully will have a good handle on how to do this safely this year. <BR> <BR> 2... Sat, 4 Jul 2015 21:28:11 EST What Went - Friday 1. The C-Diff is back under control. My understanding though is that once the bacteria is in your gut it is pretty much impossible to get rid of . It's a matter of having enough good bacteria, yeast etc. to keep it under good control. <BR> <BR> 2. I bumped into my personal trainer at the grocery store. He asked me how I've been and when I can come back to train. I told him that I've been on antibiotics for 7 months. He told me, "Being on antibiotics so long isn't good for you." I t... Fri, 3 Jul 2015 21:51:27 EST What Went - Thursday 1. The latest round of antibiotics has brought the C-diff back in all it's awful glory. I know what to do but it isn't fun. The good news is that the bad antibiotic was only meant to be a stop gap measure and the real antibiotics were delivered last night so I am already switched over to better ones. The bad news is that it will take me some time to get my tummy back to normal. <BR> <BR> 2. I was already taking Florastor and high doses of probiotics once a day. Now I'm taking it twice ... Thu, 2 Jul 2015 23:17:07 EST What Went - Wednesday Announcing our new bouncing baby. ..........................................<BR>....driver! Today was spent taking ds to take the written driver's test and then to the DOL for his learner's permit. <BR> <BR> Thu, 2 Jul 2015 00:19:29 EST What Went - Monday I am officially starting month 7 of non-stop antibiotics. I wonder if I could go in the Guiness Book of World Records or something? All of my doctors (and yes, I have more than one) do not like using antibiotics unless they are absolutely necessary, They all agree that it is absolutely necessary. I take an insane amount of probiotics to help counter the effects of all of this. I'm going to a naturopathic doctor to help boost my immune system so that hopefully I can be infection free. A... Tue, 30 Jun 2015 00:53:18 EST