GINIEMIE's SparkPeople Blog GINIEMIE's Blog on SparkPeople, home of free diet plans and a healthy living community Prayer list never gets smaller Trust, I keep reminding myself, Trust in the LORD but when things fly at you, your family or friends it is a challenge. <BR> 1. Erik's expensive drugs are a detriment to his physical and emotional well being as well as making him lose more of his limited speech-which had been improving in the last year. They will start him on another as soon as the Insurance company okays it. <BR> 2. In the last 15 months or so a neighbor-friend was diagnosed with Ovarian cancer, she hasn't shared where she... Wed, 25 Oct 2017 07:29:42 EST Seizure Meds!!!!!! <img src="">So the doctor decided Erik needs an additional med and prescribes one new on the market. It needed prior authorization for the insurance to cover it, but I asked the clerk at the pharmacy how much it would cost w/o insurance. Are you sitting down? Over $1,200. and with insurance $426.00. I instructed the nurse to find something that wouldn't put us in the poor house!!!!GRRRRRRRR. <BR> Except for losing... Thu, 21 Sep 2017 12:29:10 EST Home from Belgium. Hello my dear sparkfriends. I am home, I have only seen DS #3 and my middle two granddaughters they came to pick me up at the airport. Erik spent another night with his older brother and SIL. But they made sure I had milk for my coffee this morning and DS#1 put in new pendant globes over my sink as a surprise welcome home gift. <img src=""> <BR> I was surprised at some of the changes that I experienced at the airpo... Tue, 5 Sep 2017 00:58:32 EST Been so tired, realized I'm sabotaging myself. I HATE paperwork! I have for years and 7 years ago it doubled +. That was when I took over the guardianship of Erik after his motorcycle accident left him with a TBI (Traumatic Brain Injury). So what do you do when you hate something-you put it off to the end-well I do. I know a few people who do the dreaded first and then reward themselves. I have to train myself to do that. <BR> Sabotage means escaping. Escaping means walks, knitting, eating out, taking Erik everywhere anything but sittin... Sat, 29 Jul 2017 08:16:55 EST June 2017-What I learned about me this month! So I was always a people pleaser, I knew that I knew growing up I could never please my mom. So I would be helpless in certain areas where I knew I would be criticized, other areas I dug in my heals-maybe because my aunts helped me with my knitting, when I was in Belgium living with my grandfather I was affirmed by him, the tech school he put me in and my aunts. I learned more about house cleaning and cooking then I had learned at home, I learned more about sewing...and having to do my own bu... Mon, 3 Jul 2017 08:35:01 EST 40 Things About Me... I got this from CLAIREINPARIS<BR>ournal_individual.asp?blog_id=6366975, who got it from another sparker. If you do it let me know so I can learn about you too. <BR> Hugs Ginie <BR> <em>753</em> <em>742</em> <em>652</em> <BR> <BR> <BR> 1. Do you like blue cheese? <BR> I LOVE blue cheese and roquefort. <BR> <BR> 2. Have you ever smoked cigarettes? <BR> yes in my teens ( a pack a month) and in my very early thirties (a pack every two w... Tue, 30 May 2017 21:35:33 EST Memorial Day 2017 <em>652</em> <em>652</em> <em>652</em> <em>652</em> <em>652</em> <em>652</em> <BR> Thinking of all the young men and women, and the not so young who gave up their lives so that this land could be free. Free of terror, war on our own lands, etc. Thinking about the American cemeteries in Belgium and France that I've visited over the years---all those white crosses and stars of David lined up in a row, remembering how I saw them as a child amidst the Poppies growing. <BR> Plea... Sat, 27 May 2017 06:49:05 EST Eye surgery- a lesson in trust and faith As some of you know already on March 29th I had the cataract removed from my right eye-No biggie says a lot of my friends, but I've heard there are some biggies-starting with my own eye health. <BR> When I first went to the eye surgeon for an evaluation of my eyes because the drive to Ohio last summer was excruciating-the rain, the lights, the dark, the sun.... I called my optometrist first, he sent me to an eye surgeon he would trust with his mother-in-laws eyes. I took this as a strong rec... Sat, 1 Apr 2017 11:26:23 EST Fear! What are you afraid of? I'm always encouraging others to trust in God, not worry about tomorrow focus on today-that whatever the problem it will work out for our betterment. Now I find I'm deathly afraid of my upcoming cataract surgery-yes I know millions of people have had them with no problems. But my brother got a detached retina right after his cataract surgery. Plus I have Fuchs' Corneal Dystrophy. <link><BR>ses/what-is-fuchs-dystrophy </link> My corneas are not healthy a... Sat, 18 Mar 2017 09:55:30 EST March is Traumatic Brain Injury Awareness Month. March is Traumatic Brain Injury Awareness Month. If you live near Duluth, GA go to the Hudgens Center for the Arts and see the exhibit of masks made by people who have experienced brain injuries. The masks depict their feelings, stories or just what they want you to notice. At the exhibit their is a short explanation of how they got their injury. It is a life changing experience not only for the injured party but for their family too. Many have lost contact with friends they had prior to thei... Mon, 13 Mar 2017 20:10:23 EST Just a thought for helping those grieving 1. Grief can come at anytime, many of us associate it with the loss of a loved one but it can come from a loss of a life style. (ie) my life has completely changed due to the fact I retired early to care for my DS#2 who had a Traumatic brain Injury in a motorcycle accident-he was cut off. This has resulted in my being the primary care giver to DS#2, even though he gets around and can do many things, he cannot be left alone for extremely long periods-no more than 2-3 hours if someone is with-i... Sun, 29 Jan 2017 13:33:05 EST On the 12th day of Christmas my True Love gave to me.... Twelve drummers drumming. The twelve drummers drumming symbolize the twelve points of belief in The Apostles' Creed. <BR> Some people will celebrate tonight as Twelfth Night and tomorrow as Little Christmas or the Feast of the three Magi/Kings or the Epiphany. Some cultures celebrate with gifts. <BR> In our family we had a cake with a dried bean or hazelnut-in the shell baked in a cake. A younger member of the family would call out the names of all the people at the table then come up for ... Thu, 5 Jan 2017 10:45:52 EST On the 11th day of Christmas my True Love gave to me Eleven pipers piping. The eleven pipers piping represent the eleven faithful Apostles. <BR> <BR> Wed, 4 Jan 2017 08:40:42 EST On the 10th day of Christmas my True Love gave to me.... Ten Lords a Leaping who represent the 10 Commandments. <BR> They can be found in the book of Exodus, chapter 20....I feel these are laws of love because if you follow them you are demonstrating true love of God and neighbor and of course ourselves. <em>458</em> <BR> <BR> <em>753</em> <em>742</em> <em>652</em> Tue, 3 Jan 2017 08:57:56 EST On the 9th day of Christmas my True Love gave to me.... Nine ladies dancing which represent the nine fruits of the Holy Spirit-Charity, Joy, Peace, Patience, Goodness, Mildness, Fidelity, Modesty, Chastity <BR> These are all words we think we know/understand. Pick one or two and look them up, find their meanings and synonyms. Do you see any of these fruits of the Holy Spirit in your life? <em>247</em> <em>220</em> <em>458</em> <em>459</em> <BR> <em>753</em> <em>742</em> <em>652</em> Mon, 2 Jan 2017 07:47:22 EST And for 1/1/2017: On the eighth day of Christmas my True Love gave to me.... 8 Maids a milking....stands for the 8 Beatitudes. <BR> What are these Beatitudes but positive guidance on how to live.. Think if we lived them of how much we would be blessed and how much our lives would bless others... Meek/merciful/clean of heart/peace makers.... <em>247</em> <em>220</em> <em>458</em> <em>459</em> <BR> <em>753</em> <em>742</em> <em>652</em> Sun, 1 Jan 2017 19:10:58 EST For 1/31/2016 ....on the Seventh Day of Christmas my True Love gave to me.... seven swans a swimming...which from two sources can mean the sevenfold gifts of the Holy Spirit or the seven Sacraments....The French song I learned as a child used the seven sacaraments....but all though it mentions the tenets hidden in the 12 Days of Christmas it is a question/answer formula. <BR> <BR> Sorry this is late, my weekend was a bit off kilter starting with Friday and going on till we got to my eldest son's yesterday afternoon. Unfortunately I've been able to grow in the use of m... Sun, 1 Jan 2017 18:50:25 EST On the Sixth Day of Christmas my True Love gave to me Six Geese A-laying. On the Sixth Day of Christmas my True Love gave to me Six Geese A-laying. These working six geese represent the working days of the Creation of the world-the days the Lord God made all things. Go for a walk, look at people, look at plants, animals, the sky, the clouds, the sun-if there is any and just W O N D E R! And be grateful. <em>458</em> <em>247</em> <em>220</em> <BR> <BR> <em>753</em> <em>742</em> <em>652</em> Fri, 30 Dec 2016 08:24:58 EST On the Fifth day of Christmas my True Love gave to me five golden rings The five golden rings represent the first five books of the Old Testament, where we learn of man's history with God and the covenants established between them. They are called the Pentateuch and refer to the Torah, the Hebrew books of the law. <em>386</em> <em>458</em> <em>288</em> <BR> <em>753</em> <em>742</em> <em>652</em> Thu, 29 Dec 2016 08:55:19 EST On the Fourth Day of Christmas my True love gave to me four Calling Birds.... The four Calling birds represent the four Evangelists: Mathew, Marc, Luke and John...those whose writings call us to the Lord by informing, showing and admonishing us. <em>247</em> <em>220</em> <em>458</em> <BR> <BR> <em>753</em> <em>742</em> <em>652</em> Wed, 28 Dec 2016 09:25:18 EST On the Third day of Christmas my true love gave to me 3 French Hens This was supposed to be posted yesterday, December 27th. <BR> The three French hens represent Faith, Hope and Love. <BR> What to say of these gifts? Without Faith I would not have made it out from the black hole after Steve died, nor would I have had the strength to believe that out of the coma and the promises of little would come the progress Erik made and his still making. <BR> Which brings us to Hope! I hope Erik will continue to progress (although I've been told he could slip and we've... Wed, 28 Dec 2016 06:52:19 EST On the Second Day of Christmas my true Love gave to me two turtle doves. The two turtle doves are the Old and the New Testament. If you read scriptures you will find that offering turtle doves was done by some as gifts of thanksgiving to be offered in the temple. Remember the story of Jesus throwing the vendors and money changers out of the temple... <BR> <BR> I remember when I was around 13 to17, I fell in love with Freddy. Freddy was my dad's boss' son and also a Jew. I met Freddy at the company picnic and we were two of very few in our age bracket other than m... Mon, 26 Dec 2016 08:49:26 EST On the First Day of Christmas On the first day of Christmas my True love gave to me a Partridge in a pear tree. <BR> The TRUE LOVE is Jesus who is also symbolized by the Partridge, which is a bird who will give up it's life to protect it's young. <BR> Today I wish you a Merry Christmas...praying that the Prince of Peace enter your hearts and lives and brings you PEACE through your joys and tears. <BR> Many of us have had more joy than tears but some are drowning in their tears-to those sisters and brother's I offer my h... Sun, 25 Dec 2016 20:52:53 EST December 2nd Well it's actually past midnight. I was in bed asleep when I got a call from my youngest sister saying she was on her way to Vicky's, it was 10:59. Vicky had been watching TV with her husband when her breathing got funny and she collapsed. Twelve minutes later I got THE phone call from my niece/Goddaughter, she couldn't talk only sobbed, so I asked is your mom gone? She burst into uncontrollable sobs on her yes. I feel so horrible, I'm here in GA and they are in Ohio. The pain of losing a sib... Sat, 3 Dec 2016 00:24:31 EST Gifts for friends and family: My special fruitcakes <img src=""> Every year the week of Thanksgiving I bake my fruitcake-which normally is started at least the week before. The only year that varied was 2005. I finally made it when my daughter broke down and cried because she couldn't handle another change that year. <BR> <BR> I started with a Basic dark batter fruitcake recipe from Betty Crocker in 1970, for many years I tried adding, subtracting different stuff,... Wed, 23 Nov 2016 14:24:53 EST Thankful For my roots... and extended family I'm thankful today for my parents, a Belgian war bride and her GI, who after the struggles of WWII, came home to OH and gave birth to six girls and four boys. I am the eldest and though my life wasn't easy I knew daddy loved me as did my aunts, uncles, cousins and the two grandmothers and grandfather I knew. I learned that in her way mom loved me too, even if I was never her favorite. I learned not to play favorites with my own children or my students from the lesson learned growing up. My gr... Wed, 23 Nov 2016 07:37:43 EST Thankful for # 3-my Faith and my faith community. (should have been #1 I am so thankful for my Faith, actually that is usually what I least first in my prayers and on my lists of what to be thankful for. Directly related to that is that I have the right to practice my religious beliefs without interference by the government; although I feel that that has come under attack lately. I am thankful that because of my Faith and my attachment to my Faith community I have been able to survive and surmount so many difficulties in my life. My parish of Prince of Peace is ... Tue, 22 Nov 2016 06:37:30 EST Thankful for # 2----35 years and 9 months Okay, I fell apart this week-end! Started this blog then took a phone call of a friend checking on me. Then I faced time with the blessing of our lives who returned joy to November 19th, six years ago. <BR> I am thankful for my dear Steve and I haven't scanned old pictures so there are none in my computer...there were in the old one. We were married 35 years and 9 months when he died. He collapsed of a cerebral hemorrhage on his mother's 75th birthday and died the next day, November 19, 2005... Mon, 21 Nov 2016 16:16:30 EST Thankful for: #1 ERIK IS STILL WITH US Of course I'm thankful to be alive and able to get around relatively freely, but at the Brain Injury Support Group meeting earlier this month we were ask what was one of the top things we were thankful for. When he came to my turn I said I was so grateful that Erik John was alive and still with the family. Erik's turn came and he said "myself too, thankful like mom". <BR> God is good and he got me through the trauma and drama of almost losing my middle child and he daily gives me the strengt... Fri, 18 Nov 2016 06:31:57 EST High school Senior Year! A sparkfriend asked us to post this. <BR> <BR> The year was: 1966 <BR> <BR> 1. Did you know your spouse? I knew of him. I married to him in 1970, we both graduated HS in 66 but we didn't start dating until 1969. . <BR> <BR> 2. Did you car pool to school? We road the bus <BR> 3. What kind of car did you did have? didn't <BR> 4. What kind of car do you have now? Jeep Compass. <BR> <BR> 5. It's Friday night...where were you? Cleaning house , an occasional football game, and frequently b... Sun, 24 Jul 2016 15:55:29 EST Part three of Mother's Day 2016. I finally got my gift from Erik this Sunday. He was feeling better, and wanted to go out. We hit Applebee's and then went to Lowe's where he bought me two double knock out roses. The delay was due to issues following his two seizures Tuesday, the second sending him to ER. His neurologist never came to see him in the emergency but via the ER doctor directed us to increase Erik's meds from 200 mg twice a day to 300 mg twice daily. With the increase and/or after the surgery he was also sufferin... Tue, 17 May 2016 14:23:29 EST Mother's Day Week 2016 Well from Friday to Sunday was great. <BR> On Monday, Erik had to have blood work for his physical that was scheduled for yesterday. And his caregiver had to go for a second mammogram and to see the doctor about the results. She had planned on taking Erik to transitional therapy but due to the circumstances and the delays at her doctor's she canceled around 9:30. They found a lump and told her to go home and wait 6 months. Her daughters told her go for a second opinion and I reiterated t... Fri, 13 May 2016 07:57:30 EST Mother's Day 2016 Mother's Day for me is bittersweet. Two of my children live about an hour away and sometimes I don't hear from them on Mother's day or I get a text or a call (which I can't take in church) during Mass. This year I made up my mind I was not going to be hurt by what I perceive as negligence towards their mom. However to DS3 I sent a text with mail I had accumulated for him, mind you he has never lived in this house and he has asked his Electrical Union to change his mailing address....Bureaucra... Thu, 12 May 2016 18:42:47 EST Thank you all, my foot is better. Hello my dear friends. My foot is recovering nicely. Thank you so much for the well wishes, goodies and concern. Y'all and Erik were a great help as was my friend who picked me up for Mass Sunday, took me to our usual brunch and brought me home and the other who went to bake desserts for the fish fry in my stead so I didn't stand for 2+hours. <BR> I never made it into the doctors. I wasn't hurting much so I never went to Urgent Care either. A couple of my nurse friends looked at it, said I n... Thu, 10 Mar 2016 10:07:17 EST Careless accident! RANT!!!!! Last night I was walk/running around my house in stocking feet. I slid on the hardwoods into a corner and hurt my little toe on my right foot. I'm waiting for 8 am so I can call the doctor's office. I know that it's most likely broken and that I don't want surgery, but I want to make sure none of the bones in the side of my foot are broken. My sister said that her daughter's doctor told her that that injury would take longer to heal than a broken toe. Said sister who has had many issues with... Fri, 26 Feb 2016 08:08:35 EST February 7, 1970 On that day so many years ago (46) my dear Steve and I got married at St. Rita's Catholic Church in Ohio. My in-laws were celebrating their 22nd anniversary and my sister Vicky her 16th birthday. <BR> We were married on the 7th by default, I had wanted to get married in May, but my mother refused to make me a dress with a blue panel in the front. May is the month of Mary, the mother of God and I wanted to honor her with a white and blue dress, mom said NON! So I said fine, we'll get married ... Sun, 7 Feb 2016 10:48:45 EST Why I am thankful. Wishing all a Happy Thanksgiving! I have so much to be thankful for my 35 years and 9 months with my dear Steve, it ended ten years ago the 19th of this month. Too soon I felt but it was best he go home to our heavenly father. <em>304</em> God. <BR> <BR> I have my five children, three lovely daughter in laws, and one son-in-law as well as the blessings of 6 wonderful grandchildren. They are all normal people and we have our ups and downs but they are a blessing. <em>304</em> God. <BR> <BR> I am thankful for my church ... Thu, 26 Nov 2015 08:23:47 EST Hello SFs, it's been a while. Yesterday was the first day of "real" sun for over two weeks. We've had moments of peek-a-boo sun but it's been basically dreary, drizzly, rainy (total 12 inches over the last two weeks). <BR> Since I got home in September, exhausted, emotionally and physically I've been struggling with SAD and more. <BR> Erik's demands have incurred a few bouts of shouting-me and pouting -him. I think I FINALLY got him to realize I CANNOT help him with his computer issues. He got a new one, then a new moni... Wed, 11 Nov 2015 09:27:13 EST Home from Ohio I gained five pounds did a lot of running around-mostly in the car, or was watching over my 83 year old cousin who took a tumble getting out of the car for the wedding so my steps were minimal. The family helped with Erik, but I helped with Barb so I really remained in caregiver mode. <BR> Today will be the first day that I will be free for four hours in a week. <BR> <BR> Prior to going to Ohio, Thursday, September 24th was another car day. I did not plan that quite the way it happened. I ... Wed, 30 Sep 2015 09:12:23 EST Erik at Camp BIAG and after So Erik is remembering a few things that he did at BIAG camp at Ft. Yargo park. Swimming, fishing, golf (put put), cards and dancing. Fishing is the top of the list 17 fish even small ones is too good. Other things are explained as in the entry into the pool in a waterproof wheelchair- apparently it was cold, they waited till he adjusted a bit to the temperature then he swam. He tells me some stuff and can't remember the words he needs, so I get added info hours or even a day later. <BR> His ... Tue, 22 Sep 2015 13:31:12 EST Addendum to Catching up! The doctor is adamant that Erik could NOT know he had a we don't know what his experience was-tremors....I have no clue. Erik swears he was seizing...once again I cannot discount Erik's feelings but I have to rely on the doctor's knowledge. <BR> We are going to take him to Emergency the very next time he has a seizure so that there will be a scan done right afterwards. <BR> His meds were at a very low dosage to allow Erik his pleasure of sampling a variety of beers. It has been ... Thu, 10 Sep 2015 17:22:32 EST Catching up! Claire has been asking what's going on with Erik since I specifically asked for prayers for his needs. <BR> Well, Erik was accepted to camp. We received the news when I was in Ohio for the week, his camp is from 6PM Thursday, September 17th through 11AM Sunday the 20th. <BR> Last week we received notification that the insurance company has approved the Saebo Reach -they will pay 80%. Not too bad, eh! <BR> We got home on the 25th-the trip was okay-another story, but my car maintenance light ... Thu, 10 Sep 2015 10:01:39 EST Prayers are needed here for Erik Erik wants a Saebo Reach, they are quite expensive ($1600.) and the OT said Medicare covers them-well they might but Erik's supplemental insurance company is giving us fits...because they are NOT in their approved services! really!!!! what's more important? A person's physical improvement or being "IN"! I HATE HMO's <BR> Erik also wants to go to a camp for people with Brain injuries. I had suggested it 3-4 years ago and he said NO. But after going to a TBI support group meeting and hearing a... Fri, 31 Jul 2015 14:59:57 EST Another new caregiver Boy, I learned a big lesson. In June, I hired a friend of someone who works at the Rehab place that Erik goes to. I did not ask for a background check. I asked a lot of questions, but had this nagging feeling about the person but Erik wanted someone besides mom to take him to transitional therapy four times a week(16-20 hours weekly and mileage paid) The guy started June 8th, and had not given me a photo copy of his driver's license nor a document from his insurance company. I was a wreck til... Wed, 15 Jul 2015 09:44:58 EST 5 years of upside down living Be aware this is a trip down an unhappy memory lane.Five years ago today this is what I had to face. I was called shortly after 8AM on June 17, 2010 to be advised that if I knew Erik John ...I should get to the hospital they had him there, he'd been in an accident. Woosh, I was planning a day of fun with the "Merry Widows" actually we were working through to getting to merry. <BR> Let me tell you in retrospect adjusting to the loss of my husband was easier than adjusting to the after effects ... Wed, 17 Jun 2015 10:19:59 EST MEMORIAL DAY-REMEMBER THE FALLEN! <em>652</em> <em>652</em> <em>652</em> <em>652</em> <em>652</em> <em>652</em> My FIL fought in WWII on the Japanese front, my daddy fought on the European front, where he met my mother a resistance worker for the Belgian underground. The three of them did not die in active duty but their lives were forever altered by what they saw, did and heard. Some of my HS friends never made it back from Viet Nam, some of my dad's friends never made it back from Korea. Each one was ready ... Mon, 25 May 2015 08:19:58 EST Mother's Day 2015-for ERIK Erik had a good mother's day. He's feeling better, got his surround sound and some other things done for him that he waited "a long time" for. He started his grill and Kim and I made dinner with some steaks the she and Steven got for my Mother's Day. Steven also sanded my outdoor table top-now to paint it a teal blue. He was planning on doing a few other things but ran out of time. <BR> My DD and the children came and brought me plants. My SIL stopped in to check on Erik and wish me a Happy M... Mon, 11 May 2015 07:58:12 EST Fun, fun, fun....but I don't have a T-Bird for daddy to take away! I'll find it soon, fun that is. <BR> Erik's birthday was April 17th and he wanted a new grill, so mom chipped in and made sure he got one. I remember sharing that he said he wanted a charcoal but kept looking at the gas ones, which would have been easier all the way around, but his older brother and brother-in-law convinced him to stick with charcoal. Sooooo <img src=""> Here it is and Erik is trying to light it. He cooked Sunday and we a... Fri, 1 May 2015 11:00:05 EST Raindrops keep fallen on my head... Don't remember the rest or the artist, but it's still dreary, drizzly and now chillier. THink I'm turning the heat back on for the day. My bones are achy but I have a smile on my face...Raindrops on kittens---Oh well music is good for the soul, just need happy tunes when the times and weather are not right! So Smile and Make someone happy-another tune bouncing in my head. Thanks for the hugs, sunshine, encouragement and love. Will share a picture of my project started yesterday as soon as I f... Thu, 16 Apr 2015 09:52:02 EST It's been a blue blue day, I feel like running away.... Bobby Vinton-I believe. It's so dreary and wet outside and I needed/wanted sunshine today. I do want to run away, but that costs money and I don't want to try to schedule Erik's care for 3 weeks-besides a day or two is already hard enough. <BR> Then I let me cell and fitbit go down to a very low-at least not dead this time. I'm supposed to be working and all I want to do is go back to bed and sleep-I know 4 1/2 hours is not enough, but if I sleep now I'll probably have trouble again tonight. ... Wed, 15 Apr 2015 10:31:54 EST