DEBBIEANNE1124's SparkPeople Blog DEBBIEANNE1124's Blog on SparkPeople, home of free diet plans and a healthy living community PORTLAND, OR PET EXPO We got our bottoms out and sis some walking today. I'm surprised I did as well as I did. It's day after my IVIG Treatment ended and I ahd the side effects of major headache, chills and low grade Fever but we did it and it was fun. <BR> <BR> I have a chest harness for my Little Mia the Chihuahua and I was worki g Leone by her harness. It went well. Many many dogs but she was pretty well behaved. Only lunged once when there was a Police officer handlin a K-9 German Shepherd. The rest we... Sun, 19 Apr 2015 01:13:01 EST Update... I did go Thursday to OHSU to be fitted and receive my new Cochlear implant processor and upgrade for my right ear. They are beautiful. However my first impression of the newer left one is a big "Thumbs down" This was a first mapping/programming and sounds just don't sound right to me. I have several more appointments coming up soon. One is early tomorrow morning and another one in 2 weeks. I'm hoping the sound will be much better. I can tell you the nerve damage in the left ear where m... Sun, 12 Apr 2015 18:51:39 EST Easter Eve... Well, PLMitch... Let me share that this surgery and the recovery has been a booger. I'm really having a rough time. I'm tired. Totally wiped out. Today was the first day I walked my Leone the Guide Dog. Did good but needed a nap and a break. The pain is almost completely gone. I was on Hydrocodone for 3 days then nothing. At 58 maybe I'm slowing down and showing my years? <BR> <BR> I saw my surgeon on Tuesday and he examined me good. He tried to use my Right 5 year old CI Magnet to... Sat, 4 Apr 2015 23:58:45 EST I'm glad it's over... With much anticipation and nervousness along with excitement I just ahd my 2nd Cochlear implant surgery on Thursday at OHSU. (Oregon Health and Science University) <BR> <BR> It went as well as can be expected. I ahve upgraded from nucleaus 5 to a Nucleus 6 implant. April 10 i see my audiologist and get all the equipment activated and mapped and turned on. Tuesday I see my surgeon for a post follow up appt. Between now and April 10 It willb e a healing process. I'm a little achy but... Sun, 29 Mar 2015 12:24:32 EST New addition to our Family <img src=""> <BR> <BR> <img src=""> <BR> <BR> <img src=""> <BR> <BR> Thursday Robert brought home this baby Chiuaua. Her name is Mia. In September we will be starting a class in Portland to teach her to be a diabetic alert dog. <BR> Leone, My yellow Lab Guide dog gets along wonderfully with Mia. They are often found cudd... Tue, 10 Mar 2015 13:10:52 EST Tuesday The only way I can find how to blog is on one of my email notifications quick links and write a blog. My vision is poor and I ahve dificulty these days maneuvering SP. <BR> I thank all of you for your compassioante comments. It means so much to me. <BR> I will continue to follow through with everything andkeep you informed of what is going on. <BR> I also willremain positive and keep a smile on my face. Tue, 30 Dec 2014 11:58:44 EST What's happening? Sunday 12/29/14 I'm sorry folks... For not blogging or making many posts on the teams. Face it... my vision is getting worse & I don't like how Spark People keeps changing. But I am here. <BR> <BR> I had a great Christmas with my daughter and Robert on Christmas day. Ashley made our dinner. I didn't have to do a thing. <BR> <BR> Three years ago when I was diaagnosed with Myasthenia Gravis I had a PET Scan in the hospital with dyes. This test was to check up on my Thymus gland. Routine for MG patien... Sun, 28 Dec 2014 23:52:48 EST Saturday What's happening? <BR> <BR> 2 weeks ago I had my surgery to implant a central line chest port to better access IV"s for Myasthenia Gravis treatments called IVIG. That surgery went extremely well. However during the surgery they used something to clean my skin that caused burns around the incisions. leaving me with huge blueberry sized blisters that were quite painful when they popped. it was those blisters that were the most painful of this prcedure. Being on my left side of the chest ... Sat, 26 Jul 2014 16:56:09 EST Saturday I apologize that I haven't been on much in the last 2 days. I've been resting today. Just woke from a Loooong nap. <BR> <BR> Surgery went well Thursday morning to place a Centrl line Porta Cath (Power Port) under my left collarbone. thre is 2 incisioins. I actually felt well enouh to make Strawberry Jam yesterday. <BR> <BR> Most of what I am feeling (discomforrt) is from bruising in upper bacck, arm pit, front of arm and shoulder. I've had one vicodin and that's it. It helped tak... Sat, 12 Jul 2014 17:58:18 EST Wednesday Greetings from Oregon. <BR> <BR> I know it's been a while since I've written a blog and thought i'd let you know what's been going on with me. <BR> <BR> I have IVIG treeatments in the hospital which helps the symptoms I have from Myasthenia Grais. 2 weeks ago when i had the treatment 3 days in a row They can't find my veins. I got poked 4 times and that fourth try she got a good vein. I have to wear the IV home. <BR> <BR> I'm in the process of having or trying to get a Power Port imp... Thu, 12 Jun 2014 00:17:57 EST June is Myasthenia Gravis Awareness Month I am suffering this disease. Here we go. <BR> <BR> <link><BR>xy3Ow0E </link> Wed, 4 Jun 2014 21:35:37 EST Not your typical Friday... I had a follow up Dr.'s appointment yesterday. Every three months I ahve a blood draw and a Dr. visit the next week. Well, there's good news and theire's bad news. First the good news. I'm down 10 poinds in 3 months without even really trying. I am also being referred to an audiologist specialist to see if i can be evaluated for a Cochlear implant for my left ear. Since I love the sound so much out of the right ear I do ahve 2 ear you know. the person talking to me must be in front of ... Sat, 29 Mar 2014 11:33:44 EST Monday March 17, 2014 I arise today through <BR> God's strength to guide me, <BR> God's might to sustain me, <BR> God's wisdom to direct me, <BR> God's eye looking before me, <BR> God's ear listening to me, <BR> God's word speaking for me, <BR> God's hand protecting me, <BR> The way of God stretching before me, <BR> And the shield of God as my shelter. <BR> <BR> Have a blessed day! Mon, 17 Mar 2014 13:55:30 EST Monday March 17, 2014 I arise today through <BR> God's strength to guide me, <BR> God's might to sustain me, <BR> God's wisdom to direct me, <BR> God's eye looking before me, <BR> God's ear listening to me, <BR> God's word speaking for me, <BR> God's hand protecting me, <BR> The way of God stretching before me, <BR> And the shield of God as my shelter. <BR> <BR> Have a blessed day! Mon, 17 Mar 2014 13:55:30 EST No notifications... I ahve no diea what's going on. The only Spark notifications suddenly coming to me are the ones about blogs. Nothing else. There are no Spark notifications in my spam forders. Can someone help me? Thanks! Sun, 12 Jan 2014 02:41:51 EST Wednesday This was yesterday... in the morning. <BR> <BR> After my morning cup of coffee I had a small cheese slice and prepared my oatmeal. Using a packaged oatmeal regular flavor and made it in the microwave. Proceeded to add a small amount of frozen blueberries and milk and went to sit down at the table. <BR> <BR> Yuck! It wasn't oatmeal. I had a disgusting blind moment. I actually am legally blind. This was packaged Lipton Beefy onion soup mix. Yuck Yuck! But hey! I did get in a little... Wed, 8 Jan 2014 10:43:16 EST What a way to start the new Year! Seriously... I want 2013 back. At least I ahd no injuries or falls in 2013. <BR> <BR> I spent yesterday in the ER. It was my foot issue. I walked barefeet to the bathroom and stubbed my toes on the bookshelf. My Podiatrist has warned me of the dangers of being diabetic and injuring your feet. I ALWAYS wear shoes or slippers but this one time when I had to go bad. The top part of the toes arequite painful yet under that it's numb still no feeling. <BR> <BR> The ER wrapped my foot in ... Thu, 2 Jan 2014 18:00:28 EST Happy New Year Yesterday I had my 3 month follow up with my Dr. My diabetes is challenging at this time and I will be seeing a woman to help me here. All other tests were in really normal range. I'm being diagnosed with hip bursitis. I can tell you this is pretty painful. We're going to start me on Physical Therapy for that and see how it goes. I also took an Ibuprofen when i got home and it really helped. <BR> <BR> “Develop an attitude of gratitude, and give thanks for everything that happens to ... Wed, 1 Jan 2014 10:51:29 EST Merry Christmas! <img src=""> <BR> <BR> Wishing you all a very Merry Christmas! Wed, 25 Dec 2013 10:40:07 EST Wednesday “A man was shoveling snow from his driveway when two boys carrying snow shovels approached him. ‘Shovel your snow, Mister?’ one of them asked, ‘Only two dollars!’ Puzzled, the man replied, ‘Can’t you see that I’m doing it myself?’ ‘Sure,’ said the enterprising lad; ‘that’s why we asked. We get most of our business from people who are half way through and feel like quitting!’ . . . It’s always too soon to quit!” (Warren W. Wiersbe). Wed, 18 Dec 2013 15:19:42 EST snowflakes “Don't waste your life in doubts and fears: spend yourself on the work before you, well assured that the right performance of this hour's duties will be the best preparation for the hours or ages that follow it.” <BR> <BR> &#8213; Ralph Waldo Emerson <BR> <BR> <img src=""> <BR> <BR> <img src=""> <img src=""> <BR> <BR> <img s... Fri, 13 Dec 2013 11:52:00 EST Not my Thursday... I had to leave the gym because this fat, creepy looking woman stared at me the whole time and mocked every move I made. I was so unconfortable, because I was trying to work out and she was sweating ang grunting and and thrashing all over.THEN she followed me into the shower! THEN I noticed her tattoo, and realized it had been a mirror the whole time. <BR> <BR> Author Unknown Thu, 12 Dec 2013 11:06:28 EST Birthday girl... Don't sit and wait for the storm to pass. <BR> learn how to dance in the rain. <BR> <BR> This was on a refrigerator magnet sent to me from a "Secret Sister' on one of my myasthenia Gravis support groups. it hits home with me. <BR> <BR> i ahd a great birthday yesterday and i want to extend my thanks to all of you who wished me a happy Birthday. <BR> <BR> <img src=""> <BR> here is my Ashley and i at her home. She spent the day with me... Mon, 25 Nov 2013 21:11:18 EST Sunday Happy Birthday U.S. Marines <BR> Semper Fi Sun, 10 Nov 2013 18:07:16 EST Thursday... <img src=""> <BR> <BR> Walking my blonde girl in the park yesterday we spotted this cute squirrel. Picnic Time!!! <BR> <BR> <img src=""> <img src=""> <BR> <BR> I wanted to share this with you. It's my new Medic Alert USB digital chip. I got it off It came with a dog tag chain but i can't seem to wear metals. My... Thu, 17 Oct 2013 18:16:54 EST and so it goes... Here's what's been happening... <BR> <BR> Late last week i paid a visit to Big 5 sporting goods on request from my Podiatrist. I ahve had severe muscle pain in my right food which has been keeping me from walking. (My favorite form of exercise) I got 2 pairs of shoes. One is New Balance with high arch support and the other is a Dr. Scholl's. I tried on a Nike, too but the other 2 were the most comfy. I find that when I walk with Leone on gr4ass water seeps in the sole of the Dr. Scholl... Fri, 11 Oct 2013 11:34:37 EST Sunday In the past 2 weeks I ahve made a unique discovery. (At least for myself) I know some of you will tell me... "This is nothing new I use this all the time" But, hey! It's my thing. <BR> <BR> A male friend who has Myasthenia gravis told me of his whife was out of town and found a bag of "Atomic Fireball Jawbreakers" in her hotel room in a bag and she brought them home for him. He brought up that After sucking one he felt very alive, stronger and his drooping eyes were wide open. The main... Sun, 6 Oct 2013 14:32:02 EST HAPPY FRIDAY!!!!! Bwahahahahaha! <BR> <BR> <img src=""> <BR> <BR> <img src=""> <BR> <BR> I have 5 goblins including my daughter I send decorated boxes of teats at this time of year. Kids of friends in California. <em>420</em> <em>419</em> <em>421</em> <em>422</em> Fri, 4 Oct 2013 19:03:45 EST The rivers rising... This is the Willamette River in Oregon City. Where I do my walking on the trail and Leones gets in her exercise. Across the river is West Linn and Lake Oswego. After just 2 days of ahrd rains and 5 inches it's brimming. Usually it floods in springtime but this is ridiculous. Luckily I live up on 2 hills above this level. <BR> <BR> <img src=""> <img src=""> <BR> <BR> <img src="... Wed, 2 Oct 2013 12:07:06 EST Sunday... bloody Sunday Roberts got broken ribs. Oh my!!! with my Cochlear implant on I can hear his moaning and groaning a block away. It's pretty painful for him and hurts when he breathes. We were at kaiser Urgent care yesterday evening and they Xrayed him. He's jsut got to deal with it. <BR> <BR> I met my first ever friend with Myasthenia Gravis in person yesterday and what a joy she is. (thanks to prednisone) LOL I said oh I'd love to take that drug to feel so much beter. She said "not with your diabet... Sun, 29 Sep 2013 13:16:08 EST Vote for Spark People 5 years ago spark People literally changed my life for the better. You see I had not taken my diabetes Type 2 diagnosis seriously. when my Dr. referred me to Spark People I began educating myself my joining the Diabetic awareness teams that really helped motivate and inspire me. I lost 85 pounds. (But gained 10 back) I'm working on that. Now it's time to give back to Spark People. Vote for them Please. You can vote once a day Until this contest5 ends. thank you. <BR> <BR> www.smal... Sat, 21 Sep 2013 12:47:27 EST Exercise @ 2 am No joke. this really happened. <BR> <BR> I went to bed around eleven. Woke up @ 2. slipped out of bed and without opening up my eyes i felt my way into the restroom to pee. I sat down on the toilet and OmGoodness I had sat on my cat and began to pee. I then jumped up! (Yes, at mya ge I jumped) and my bottom got a scratch and i heard a "Hisssssss"! It wasn't a bad scratch though. <BR> <BR> We knew my cat Tiger has a thing for toilets but this ws gross. So here I was being splashed ... Fri, 20 Sep 2013 17:52:21 EST What's been happening... It's been a while since I've been here writing. <BR> <BR> My health seems pretty good. I can't complain. I'm getting ready to get my annual flu vaccine. <BR> <BR> Last month I believe it was I was so happy to be getting away for about 4 or 5 days to La Grande, Oregon on the Eastern area. You see we have a new van and this was to my my first get away with robert since I moved here. We got half way there and stopped in the Columbia Gorge to feed and water Leone and us eat as well and Robe... Sun, 8 Sep 2013 21:28:37 EST Vick's Vapor Rub and your feet... A friene of mine posted a link to an article about Vick's Vapor Rub. Did you know it cures Athlete's Feet and Toenail Fungus? These things I didn't know but I don't have either. What I do ahve is Diabetic feet. I have dry itchy skin all over my feet. Between the toes my feet have peeling, cracked skin. As a test I smeared on Vick's after my bath and put socks on then my shoes. I did this 3 days in a row. Today my feet are normal. No problem and no pain. I just felt I ahd to share t... Tue, 23 Jul 2013 15:57:11 EST Pat's rice bag One of my friends in Maine Sewed the basic plan for this rice bag. It has several channels. she sent it to me and i filled it to the designated line with short grain rice and hemmed it. PRESTO! I froze the bag in a ziplock bag and used it on my knee. I love this bag. It will also go in the microwave for 1 minute. <BR> <BR> thank you Pat! <BR> <BR> <img src=""> Mon, 22 Jul 2013 21:39:21 EST The Spoon Theory This is powerful. <BR> Today I was aske "What do you tell people when MG is getting the worst of you?" <BR> I replied "disoriented & Goofy Day ahead" <BR> Then this story was shared. <BR> You have one of my spoons. <BR> <BR> <link><BR>ticles/written-by-christine/the-spoon-<BR>theory/ </link> <BR> <BR> People including nurses at the hospital I frequent often always tell me "but you look so healthy. You can't be sick" Thu, 18 Jul 2013 18:11:26 EST Week 2 cooking class Today was fun and interesting. <BR> We made cookies and a main dish. <BR> The main dish was Pasta, Greens & Beans <BR> Prepared with whole wheat Pasta, baby lima beans and both spinach and Kale. It had other things in it like carrots, sauteed garlic and onion and red pepper flakes. Just call me hot lips again. <BR> <BR> the cookies were a healthy version made with mashed banana, oatmeal and peanut butter cookies. I brought home 2 and they were pretty tasty. 2 cookies have only 130 calo... Tue, 16 Jul 2013 23:12:05 EST How the blind/visually impaired cook I have been asked about this several times. I'm taking this cooking class because i was interested on how other blind people cook. One of the helpers was blind. <BR> <BR> Our hands are washed a LOT. Because we rely on our other senses. Touch and smell and listen. <BR> The ingredients like Flour and baking powder were all in extra large Ziplock bags. We scoop the cup or spoon in and scrap off with the end of the spoon to level. <BR> We don't use the pyrex glass measuring cup we prefer t... Thu, 11 Jul 2013 12:03:00 EST Cooking with Debbie... I started a cooking class today. It will take place every Tuesday for 6 weeks. From 9:30-11:30 we prepare a meal and 11:30-noon we eat the meal. Today we made Jambalaya (sp) and pumpkin muffins. My class had all blind students. This was the first time ia ctually tried anything cooked with Ground turkey. It's not so bad. I really enjhoyed the class. Wed, 10 Jul 2013 00:18:00 EST About last night... <img src=""> <BR> <BR> <img src=""> <BR> Leone dipping in her sister, Ashley's pool after rolling around in the mud. She was having a blast. She is a water baby. Phoebe the pug baby is just looking on baffled by Leone's behavior. she sure does burn up some energy and then sleeps for hours. <BR> <BR> Then Ashley introduced us to a place by her home called "Laughing Planet Ca... Mon, 8 Jul 2013 12:53:37 EST Am I too old to run? NO! <BR> <BR> I'm 56. <BR> This morning while at the college (one of the most beautiful places to walk for exercise) we did our morning walk and almost complete and on way back i handed Leone's leash over to robert and i took off running. <BR> Not far. <BR> Maybe 50 steps. <BR> But I did it! <BR> I jsut wanted to see if i can do it. <BR> <BR> In my 20's and 30's I used to run for exercise. <BR> <BR> I might work on this... Mon, 17 Jun 2013 16:13:02 EST June is Myasthenia Gravis Awareness Month June is Myasthenia Gravis awareness Month... <BR> Many patients go un-diagnosed for a long time with this evil disease. It appears from photos I ahve seen of myself that I ahve had the Ptosis in the eyelids for several years. <BR> How was I diagnosed with MG? <BR> It was an afternoon in november 2011 my daughter, Ashley came to visit walks towards me hugs and kisses my cheek then says "Mom open your eye! What's wrong with your eye???" <BR> I had no idea anything was wrong but my left eye woul... Fri, 7 Jun 2013 10:22:54 EST Just a thought... “Our greatest weakness lies in giving up. The most certain way to succeed is always to try just one more time.” <BR> <BR> &#8213; Thomas A. Edison Thu, 23 May 2013 13:41:43 EST No Spark People All day yesterday I was unable to log onto Spark People. Finally I tried before bed and was successful. Oh well... <BR> <BR> I had my optholmologist appointment in the afternoon and I removed my own bandages. I am so pleased with the results. It's jsut absolutely amazing. <BR> <BR> Since childhood I ahve been dubbed "legally blind" as a result of German measles. I have never been able to even identify any of the letters on the eye chart. Imagine my thrill and excitement when i saw th... Fri, 17 May 2013 10:11:46 EST more surgery... I tell you... I'm really tired of I.V.'s. <BR> <BR> Tomorrow morning is my 2nd cataract surgery and i am not in the least bit nervous. there was no pain involved in the procedure at all. Or evena fter as i recovered. <BR> <BR> I have 3 bottles of drops to use with 2 refills. Plus glaucoma eye drops that go in at bedtime. <BR> <BR> To make things easier each of the cataract drops has a sticker on the bottle. "A" "B" "C". <BR> <BR> 3 days pre surgery A & C 4 times day. <BR> After surg... Tue, 14 May 2013 14:51:31 EST TGIF!!!!!!! I've never been happier about it being Friday. <BR> Why? I am IV free. I had IVIg Treatment Tuesday Wednesday and Thursday and it was not the most pleasant of sticks for an IV. this was my first problematic IV.I could not move my hand very well. So i have not been able to leave comments on blogs or respond to threads. <BR> <BR> Now I'm preparing for a 5K. <BR> <BR> I'm happy to report I am MG symptom free. Fri, 10 May 2013 15:52:37 EST Ta Da!!! Just back from my Optholmologists office and They removed the bandages errrr gauze/shield. Errrr I did matter of fact. I would not allow anyone to touch that tape. the tape is my only complaint about the whole experience. It was a masking tape that had like a glue under it. Once it was off and my eye cleaned up I was so pleasantly surprised at the difference in my vision. You see... I am legaly blind but this surgery gave me back some clearness and colors. It's so amazing. Both th... Thu, 2 May 2013 19:03:56 EST Cataract surgery #1 complete OK my specialist said I did very well. ***beams <BR> <BR> I got there and was called in at 8 after admitting at the hospital. Once in the eye surgery pre-op room my vitals were checked and an IV started. the IV was never used at all. I was then waiting for the woman next to me to have her surgery finished up for me to go in 2nd. I walked in there at 9:30. No sedative was used on me whatsoever. Because of Myasthenia gravis My throat can get toor elaxed if a sedative is used. They admi... Wed, 1 May 2013 15:16:46 EST Sunday... bloody Sunday That song U2 the Irish group sings... still does it for me. <BR> <BR> This is 3 days before my Cataract surgery. I start on my drops today. It happens Wednesday morning bright and early at 7. <BR> <BR> We are going shopping today for new walking shoes for me then hit a trail for a nice long walk. Sun, 28 Apr 2013 11:28:09 EST Busy, busy, busy I'm getting ready for my cataract surgery. I'm going to be sharing about it here in my blog because i ahve friends on AP who will be having cataract surgery. It's been modernized. Boy back in early 1990's my mom ahd a rough time with her surgery and ahd to be put completely to sleep. <BR> <BR> Yesterdays appointment was a talk with the nurse and i signed the forms and questions for my Dr. who will be doing the surgery. He is the one that ordered the blood test that he thought I ahd Myast... Wed, 24 Apr 2013 23:23:17 EST