CHANGING4ME49's SparkPeople Blog CHANGING4ME49's Blog on SparkPeople, home of free diet plans and a healthy living community Lazy Day Had a laid-back Friday on account I woke up this morning feeling at least 25 years older than I am. Lol Creakily old bones. UGH Finally getting some pep back in my step and wouldn't you know it, the day is nearly over. Such is my life these days. <em>24</em> Fri, 15 Aug 2014 17:41:05 EST Crazy thought Feeling that elliptical machine tonight. Legs, arms and upper back are hurting. Yet I feel good! Who would have thought that just 7 minutes on that thing could feel so good but it's the first workout in 7 months that I have had. :| Honestly though I LOVE that machine! Lol I want one!! I think I might add it to my ever-growing birthday list. Hee Hee Hee Do you think if I give up Christmas gifts for the next few years... Just a crazy thought! Thu, 14 Aug 2014 20:21:29 EST P/T Day 8 Physical Therapy - Day 8 was GREAT. Killer but GREAT! First day on the Recliner Elliptical. A whole 7 minutes. WOOHOO!! Slow going but it's a start!! I can now bencd my left knee 71% of the way. Up from 40%. Still have pain though but it's bending! Next Tuesday, they will reevaluate my progress and see what's the Senior Therapist has to say.? Now I'm chill-laxing with a treat. A serving size of Honey Nut Cheerios. YUM!! <em>30</em> <BR> Thu, 14 Aug 2014 14:01:21 EST New Hope For The Coming Weeks I thought I made some positive changes to my nutritional plan this week but alas my weight has stayed the same. 235 lbs. UGH Guess I haven't made the right ones yet. <BR> <BR> I need to go back to logging in my food every day to see what else I can change. And yes, I need to exercise which is still a problem for the most part with my hip pain. Even with what the therapist gives me to do, it just isn't enough to change anything. <BR> <BR> I see my doctors again in 2 weeks, that is if they ... Wed, 13 Aug 2014 10:30:25 EST P/T Day 7 Physical Therapy - Round 7 was killer today but definitely needed. Up to 2 sets of 10 now on each exercise. Woohoo! Still can't bend my left leg too much, about a 1/3 of the way up only. Have also experienced more pain the past 2 days and I'm not at all sure why it's increased again. Perhaps it's rearing its ugly head one last time before it dies completely out. Let's hope! Tue, 12 Aug 2014 19:11:28 EST Blah day x 2 So super tired the pass two days. All I want to do is sleep and I have certainly done that but I'm still so tired. Wondering if the kidney has finally bite thee dust. Doc says qhswn tht happens I would become so tired I wouldn't want to get out of bed. And well, that about explains it these last two days. <em>24</em> My next lab work is Tuesday so I will know soon enough. Otherwise I feel okay in other areas. <BR> <BR> My hip I believe is healing. I've been doing my strengthening exercis... Sun, 10 Aug 2014 13:10:59 EST The Man Drives Me CRAZY So DH confused Urologist with Oncologist the other day. Today we received his lab report. The nurse called huim the other day and he told me she said that his HDL was higher than normal but otherwise everything was okay. He would just have to tweak his diet a little. Which didn't make sense to me because HDL is the good cholesterol and you want that to be higher? <BR> <BR> When the report came today it turns out tht it is his LDL that is too too high and he has to watch his diet more clos... Thu, 7 Aug 2014 18:19:47 EST Wednesday Tibbits Physical Therapy kicked my butt yesterday and I slept most of the afternoon. Its probably best that I did since I was feeling down anyway. It's been 6 years since my one & only sister passed away. I miss her dearly and certainly could use her wacky sense of humor these days. Anyway my therapist says my mobility is up to 40% from 20% in the beginning, pain level is down to 6 (I says it's a 5) from a 10+, so I'm on my way to healing, slow but sure. Go Me! <em>311</em> <BR> <BR> They have st... Wed, 6 Aug 2014 19:01:02 EST Monday Moments Hip Pain down to a a pain level of 5 most of the time now. Although there are moves I still can't do. Moves like Jagger are still out of the question. Lol This is at the annoying level right now, but I will, hang in there. It just sucks being me this year, praying the year will all end better than it began. looking ahead for better days... always. <BR> <BR> P/T again tomorrow. Kidney checkup next week. <BR> <BR> DH had his physical today. Is being referred to an UROLOGIST for swollen Prost... Mon, 4 Aug 2014 11:23:14 EST Secong P/T Appt Had my 2nd Physical Therapy y appt today and boy boy do I hurt. Therapist put me through the wringer today and topped thing off with a deep tissue massage. Nice but it hurt too. She said I would be sore tonight and she is right. I have been noticing some improvements in regards to mobility and pain over the last couple of days though so I will take this as a good sign. <em>30</em> <BR> <BR> No news from the daughter. Oh well. <BR> <BR> Both of my doctors postponed their appts that we... Tue, 29 Jul 2014 18:43:14 EST First P/T Appt Had my first P/T appt today. After a complete assessment, Grant, my therapist says my hip pain is most definitely a pinched nerve, between my 4th & 5th vertebrae. It can be healed but it will take time. I have the next 4 weeks scheduled with him plus exercises and walking to do daily at home every 2 hours than we will re-access at the end of the August to see where we go from there. He definitely wants me up sand moving which I understand so I will have to work through the pain and not focus ... Fri, 25 Jul 2014 18:18:25 EST It's Thursday, I Think The past week has been a blur. Pain Med and Muscle Relaxer are to blame. They knock me out so all I do is sleep. At least I am pain fvree right? Physical Therapy begins tomorrow morning. Oh boy! Hopefully it will help and I can wen myself off this little devil soon. <BR> <BR> Got to see the grandson on Tuesday for a bit but not so much far since I just watched him and DH have fun. I couldn't participate. What a drag! The grandson came by again yesterday but our daughter sent him off with Dan... Thu, 24 Jul 2014 11:05:53 EST 2nd Set of X-rays Results Pain Meds are GREAT!! 2 days of no pain and much sleep. These babies along with a muscle relaxer just knock me out! Physical Therapy begins in a week. Praying for improvement. Second X-rays showed no breaks or anything else so doc is still going with Pinched Nerve or possibly Muscular. ?? Whatever it is I hope it heals SOON. Sun, 20 Jul 2014 11:39:44 EST Return to the Doc Back to the doctor today. Hip Pain increased dramatically this morning! More X-rays scheduled for tomorrow. Pain med on order but hasn't come in yet. It's going to be a looong night. <em>46</em> Thu, 17 Jul 2014 19:14:11 EST Test Results On My Hip Results from the X-ray and MRI I did yesterday came back this morning. I have a pinched nerve in my hip which is causing the pain. Looking at 6-8 week healing time barring no complications. Have a list of dos and don'ts to follow. What's new about that? <em>246</em> Thankful at this point that it wasn't anything more serious. Unfortunately no pain med or anti inflammatory can be given due to kidney. Ouch! <BR> <BR> Will have limited time on the computer so may not be able to check in as... Tue, 15 Jul 2014 08:23:17 EST Dealing With Unexplained Pain Approximately 2 weeks ago I began having pain in my hip joint. Completely out of the blue. I haven't fallen or bumped it or over exercised. At first I thought it was Arthritis but it is unlike the pain in my knees, both of which are Arthritic. Its more sharp in nature, not achy, painful and happens only when I rotate my left leg (getting in and out of bed or the car. lifting the leg is nearly impossible) or sit for any period of time. I went to the movies with my grandson yesterday and it was... Tue, 8 Jul 2014 18:35:04 EST Fitness Challenge Upddate 5 weeks into my Fitness Challenge and I have begun to time my walks. A whole 25 minutes this morning. WOOHOO! I'm blazing the trails now!! <em>246</em> Since I still walk at a snails pace, the distance is not far but hey, I'm a work in progress. Seeing that 6 months ago I was on Life Support and when I got released from the hospital could barely (no joke) take a step without help, I am feeling positive about my progress today and will continue my efforts. The sheer fact that I can put on... Fri, 27 Jun 2014 09:47:25 EST Plans Well the daughter is leaving for a vacay in Boston tomorrow. She is need of some down time and will be visiting one of her girl friends there. On the flip aside DH asnd I hsve decided o postpone our trip to Florida until Fall. He hates Florida in the summer time which is one reason what I never understood him agreeing to go in the first place. Anyway we will go when it is s bit cooler in September or early October. Part of me is a little concerned about postponing the trip because I don't kn... Mon, 16 Jun 2014 20:42:02 EST Father's Day just isn't the same at our house because my husband has no clue what it takes to be a good dad. Our daughter is still very much at odds with her father. She has not gotten over the fact he left me in the hospital in January and dropped EVERYTHING in her lap without any emotional support what so ever. Than he accused her of setting him up to make it look as if he was the bad guy in it all. He also in recent months has tried very hard to convince me into believing that DD is still the hateful girl towards me she has been in re... Sun, 15 Jun 2014 09:23:03 EST Enjoyable Day Had an awesome time with the daughter & grandson today. The movie Maleficent was really good. Than we got out Sushi on at Icheban's Japanese Steak House. My daughter was a little concerned with the sodium content of such food but I told her I am 99% good and on target that 1 meal won't kill me. Well I certainly hope not! 6 months of my new lifestyle changes have now been in effect and so far so good. Low to no sodium, healthy, healthy, healthy, no careless snacking, and portion control. Now i... Wed, 11 Jun 2014 22:04:42 EST Teacher Gifts Spent some time with the grandson tonight and we made some Apple Stamped Tote bags for his teachers End of Year gifts. Thought you all would like to see the photos. I'm sure his teachers will love the bags as well as the yummy apples inside. <em>30</em> ?He also painted a picture for each of them with a nice note attached stating how much he appreciates them. <BR> <BR> <img src=""> <BR> <BR> <img src="http://photos-ak.sparkpeople.c... Tue, 10 Jun 2014 22:23:47 EST Best Laid Plans sometimes get sidelined. The Mother's Day Make Up plan for today, lunch and a movie with the daughter and grandson, has been rescheduled AGAIN. This time because my grandson is sick with a fever an a thoat that looks like a roadmap for strp. <em>39</em> We will try again for Wednesday. Hoping little man is feeling better by then. His last week of school is this coming week and he is set to leave on a cruise (his first) with his dad, Shannon sand baby brother next Sunday. So he best get to ... Sat, 7 Jun 2014 08:42:16 EST Needed Something New NOT ME obviously but this is my NEW hairstyle! DH won't take a picture of me because he says he doesn't know how to take a good one <em>24</em> so must wait until Saturday to ask the daughter to take one. My hairdresser liked my choice, DH does too so I feel good about it. <em>30</em> <BR> <BR> <BR> In other news, I began walking again at my favorite place Sycamore Flats. Although I only did a quarter of what I use to do there nevertheless ITS A START! Plan on walking again on Satur... Thu, 5 Jun 2014 14:09:14 EST Fitness Challenge Day 5 of my Fitness Challenge is complete! WOOHOO!! Definitely feeling it today. A bit harder to roll LOL out of bed this morning. Muscles are aching. They're just letting me know they are being worked. Hair cut and walking today. My legs are going to love me later. hahaha <em>386</em> Thu, 5 Jun 2014 06:39:19 EST This n That After speaking with the daughter yesterday, she brought it to my attention that I should rename my AB Challenge... the Fitness Challenge since I have replaced the planks with Wall Pushups so technically it's not a total ab workout anymore. So hence from today forward my Challenge will be referred to as the Fitness Challenge. Today's a rest day so no workout for me. Super glad too as I did enough walking around yesterday to be bothered with leg cramps all night and my legs are in poor shape th... Wed, 4 Jun 2014 06:17:58 EST 30 Day AB Challenge Here is the 30 day Ab challenge I began June 1. I don't expect miracles just want to challenge myself to get in some form of exercise every day. So far so good! I can't do a plank yet so I do wall pushups instead. Not the same thing but good for me anyway. After my first week I will add in an aerobic workout in (walking) as well to help me combat the tiredness I feel from the kidney disease and meds. This is a tough challenge but I'm not in it to win medals just to challenge myself to do it ... Tue, 3 Jun 2014 07:33:00 EST Today Day 3 of the Ab Challenge complete! GO ME!! I began Jun 1. Will post what I am trying to do at some point today. Feels good doing some form of exercise again. Although I need to begin some aerobic workout as well to combat the tiredness. <BR> <BR> Headed out later today for a Kidney Smart Class. It is a 1st step towards Dialysis. I will have another class after this in July then doctors will discuss the insertion of the portal than the surgery then finally the hook up. Its a long process b... Tue, 3 Jun 2014 07:08:47 EST Lastest Lab Reults Lab Results finally in: the good, the bad and the ugly. Liver checks out good. Nice to know something's working correctly in this body of mine. Parathyroid is a bit high but not as high as expected. This can explain some of my bone pain but not all of it. Cholesterol's down, improved. Not perfect yet but on the right track. Creatine (kidney) back up to 3.2 from 2.6 last time. NOT a good sign!! It's definitely not going in the right direction. My kidney is being put through the ringer despite ... Mon, 2 Jun 2014 10:18:49 EST Dealing With Stress This is certainly what I try to do although I am not always successful. Especially these days. Present times are tough! <BR> <BR> <img src=""> Fri, 30 May 2014 09:56:18 EST Family Update I know it's long overdo but here it is. The daughter and I have been getting along in relative harmony since my health crisis in January. I know crazy, right? Sometimes I feel aliens have come down and switch her completely but than I know that's untrue. Although she is totally different in her relationship with me these days. She was amazing I hear during my scare and has stayed steadfast in her care and concern for me since. She calls often to check on me and to receive updates on my medica... Tue, 27 May 2014 07:35:55 EST +16 That is the amount of weight I have regained in the past 3 months. Not from overeating or eating the wrong stuff but just eating once again. Remember at one point post hospital stay #1 I had stopped eating altogether and even became severely dehydrated and ended up back in the hospital for stay #2. So I have now since regained my appetite and am eating 3 meals a day plus 2 healthy snacks with little to no exercise. So hence the gain! <BR> <BR> I am hoping that with the addition of walking o... Mon, 26 May 2014 22:37:16 EST Starting Fresh This weekend marks 4 months since my post-hospital/ life support crisis. It has been a long road to get to just this this point but I am feeling well enough now I think to transition from general recovery mode to much more preventative care. Returning my focus to losing additional weight and achieving some fitness goals no matter how small. Two things that will benefit my overall health, as well as my kidney. It's a start! <em>104</em> I figure I can't just exist, which is basically what I... Sun, 25 May 2014 10:14:31 EST Primary Update: I have now been taken off 1 Blood Sugar med. Januvia has been linked to kidney damage and my primary doesn't want me on it anymore. That is the second medication I have been on that has been linked to kidney damage. Anyway the doc wants to see how my sugar does without it before beginning anything new. Otherwise I will see him again in July. My Blood Pressure was 144/82 today. Not horrible but not perfect either. Oh well, doing the best I can. New Blood work scheduled for Tuesday morning!!!!... Thu, 15 May 2014 12:02:52 EST Missed Out On Grandson's Game Well, I didn't make it to the grandson's soccer game this morning. Wasn't feeling well so I decided to stay home and rest. More like SLEEP that is! Fortunately for me the game was canceled due to rain. Although this is all so not like me, the Mema who never missed anything concerning Peanut nowadays can't see to get my get up and go to attend much of anything. I HATE feeling sick and tired ALL THE TIME!! And I am sure the grandson is sick of me feeling this way too! <BR> <BR> Anyways tomor... Sat, 19 Apr 2014 15:38:27 EST Sleep Study I lived through the Sleep Study last night if you can call it that. Only got minutes, seriously minutes of sleep before the tech woke me up at 5:30 am with a very cheerful "Good morning Sallie!". How they expect anyone to sleep restfully on a mattress that resembled a plank of wood and a pillow made of concrete I have no idea. Upon arriving home this morning I went to bed and slept cor 3 glorious hours. WOOHOO! Chalk it up to an experience I don't wish to repeat any time soon. Wondering wha... Fri, 18 Apr 2014 14:30:55 EST Kidney Specialist Update So add 4 more pills to my daily regimen. My Kidney Specialist is NO JOKE! Found out today that I am retaining fluid again, also my body has way too much ACID in it and my GFR (overall kidney function) has dropped to 19. 15 is Total Kidney Failure so I'm real close. Moving forward on preparing for Dialysis and Transplant. Education classes begin next month. In 3 months (July) I need to request what type of Dialysis's I want ( in home or center). I wonder if "NONE" is a choice? Hummm guess no... Thu, 17 Apr 2014 18:42:41 EST Lab Results In LAB RESULTS: A1C Blood Sugar, excellent. Vitamin D, extremely low, could explain why my bones hurt, adding a daily D3 supplement. Cholesterol not so good, adding a statin. :( Will recheck next month. Kidney numbers, on the rise. Not a huge increase however (2.6) so won't know what it means for me if anything until I see the specialist tomorrow. Still I was hoping and praying these would continue to go down. All in all, it could be worse so I will take it for what it is. Kidney Specialist a... Wed, 16 Apr 2014 11:46:28 EST Blood work First stick was not so successful this morning but another one and finally the blood suckers got the 4 tubes of blood they needed. Amanda is fast becoming my GO-TO LAB GIRL. So happy today is done, just need to sweat out the results now. Praying for the best! <BR> <BR> In other news, finished the grandson's Easter shopping with a trip to Michael's and Target. Little man will be more than HAPPY!! YAY ME! First BIG walking adventure I have done in months. My legs are not happy but I will liv... Tue, 15 Apr 2014 18:49:43 EST Primary Update Got the ALl clear, Kep Up the Good Work from my primary today. Blood pressure 150/82 which is okay, Blood sugar holding steady. He has ordered Full Labs next Tuesday. Liver & Kidney functions, Cholesterol, A1C, Vitamin D and more. FUN! Hell NO!! I hate needles!! Nonetheless it has to be done. <BR> <BR> Docs may tweak my BP meds again since my BP has been running high than low for a couple weeks now but will wait until I talk to the kidney doc first. <BR> <BR> Still struggling with tiredne... Tue, 8 Apr 2014 11:40:52 EST Kidney Update So the kidney doctor is pleased with my current lsb work but nonetheless he is cautiously optimistic. Said to not forget no matter how good my numbers look, I still have Stage 4 kidney disease with a GFR of 21. 15 would mean automatic dialysis! That is not too far off however it appears I can now concentrate more on delaying dialysis for as long as possible and postponing further kidney disease with a continued healthy diet, exercise, BP and Diabetes control, etc. Gee, I thought that was wh... Fri, 21 Mar 2014 11:52:51 EST Latest Blood work Results OMG, I could just cry! Tears not from anything bad but from sheer relief. Anyone who knows what I have been going through since January knows how much I sweat out my blood work results these days. I hope for the best but know full well the bottom can fall out from under me any time. Although I wont see the kidney specialist until tomorrow afternoon I know he will be pleased with this week's results. My kidney number is down to a 2.44 which shows my kidney function is still improving little b... Wed, 19 Mar 2014 12:34:16 EST Primary Care Update Primary Care Doctor appt went well. Blood Pressure is staying within range. Oxygen level, Temp, and pulse all good. Blood work postponed until next week just prior to me seeing the Kidney Specialist again. NO needles this week. YAHOO!! I can relax sort of, until next Tuesday! Doc says I am doing well considering and all I can for now. Lab results will let us know if what I am doing is good enough. Praying hard that my numbers stay the same or improve more. I know too well what the opposite... Tue, 11 Mar 2014 15:47:51 EST Trudging along day by day Slow going but hanging in as best I can. Doc apt and lab work in the morning than its waiting for the results... a nail biter for sure. Nevertheless it is what it is. Doing my best at home: taking meds as directed, eating right according to the dietitians orders. The rest is in God's hands, as they say. <BR> <BR> Not as weak or dizzy since my doctor reduced one of my medications but still I am so tired. It doesn't take much for me to feel like I have run a marathon. I am getting by however ... Mon, 10 Mar 2014 20:15:12 EST Kidney Update So yesterday's meeting with my kidney specialist didn't quite go as planned. Despite good lab results on Wednesday, it looks like my kidney is much too damaged (stage 4 kidney disease) to last , and dialysis and transplant will be in my future. When these will actually take place depends on future blood work but doc wanted to give me a heads up as well as go ahead and get the ball rolling so to be prepared for what lies ahead. Definitely not the news I wanted or prayed to hear but it is what ... Fri, 28 Feb 2014 15:37:41 EST Lab Results CELEBRATING GOOD LAB RESULTS!!! KIDNEY NUMBERS HAVE COME DOWN EVEN MORE THAN WHEN I WAS IN THE HOSPITAL LAST WEEK. HALLUJAH! I AM SO HAPPY AND RELIEVED. AT LEAST FOR NOW. I KNOW FULL WELL THAT THIS CAN CHANGED IN A HEARTBEAT BUT PRAYING IT CONTINUES. SEEING THE KIDNEY SPECIALIST TOMORROW. HOPE HE IS AS PLEASED AS I AM. <em>334</em> <BR> <BR> Still recuperating at home. Found out yesterday that the tiredness, weakness and dizzy feeling I experience daily is not likely to go away until I a... Wed, 26 Feb 2014 14:52:50 EST Much Needed Rest is on the agenda but absolutely NO sleep. That is how it is these days At least my appetite is back . Baby steps! I am eating, what I am allowed that is. And that is a food thing. I was eating next to nothing for a solid week than nothing at all for 3 days straight not even water. I couldn't keep it down. Now that I can eat I can't seem to sleep at all. My body is a total wreck! Seriously. All because my primary doc gave me the wrong drugs for the last 10 years and has totally ruined my one ... Sun, 23 Feb 2014 00:19:45 EST 2nd Hospital Visit It's good to be back home AGAIN and I'm feeling blessed! 2nd hospital visit not as scary as the first but it did hold just as much drama. Riding in EMS trucks is becoming a habit with me and that is not a good thing. LOL Came down with a rather nasty stomach virus last weekend and became extremely dehydrated which shot my kidney numbers through the roof and sent me running for the ER. Doc didn't waste any time slapping me back into the hospital again. This time for 5 days. Got out for good be... Fri, 21 Feb 2014 18:31:55 EST Kidney Dietitian Kidney Dietitian appt went really well today. Not so bad. Keep doing what I'm doing, watch my carbs, potassium, protein and sodium and hang in there! Dropped another 2 lbs. Fluid or Fat? Don't care much which it is at this point just as long as its coming off. Down 42 total since The incident Jan 23rd. <BR> <BR> Today marks 9 days out of hospital and I still wear out easy but slowly improving. Super glad a very hectic week of non stop doctors visits is now a thing of the past. For now that ... Fri, 7 Feb 2014 19:55:19 EST Dietitian Appt YAY! Another a[[ppt done. Will see the Kidney Dietitian tomorrow. I am sure she will add to my list of THINGS I I NEED ADVOID. <BR> <BR> My life= Bread crumbs & water <BR> NO, Wait, <BR> NO BREAD CRUMBS either. <BR> <BR> <BR> Must keep my sense of humor... Thu, 6 Feb 2014 21:43:05 EST 2nd Post Hospital Checkup 2ND post Hospital appt TODAY. Lost a few more lbs bringing the total to 41 lbs now in 2 weeks. MGot a better ideal of what actully happened to me 2 weeks go. A BP med I was on since June 2013 has severely damaged my only remaining kidney spiking my BP to 250/102 and filled my body with fluid which baascally did not allow me to breath so I stopped and they had to intubate me for 3 days. I am left with a kidney that functions at only 20 % thus far. How much will om back and when are he BIG Ques... Thu, 6 Feb 2014 01:51:22 EST