CAROLIAN's SparkPeople Blog CAROLIAN's Blog on SparkPeople, home of free diet plans and a healthy living community Good news for once Good news my little bro Robin in theatre for liver transplant now in Leiden Holland SiL just rang to say they had started about 1030 am dutch time which would have been 1130 gmt we wont know how it goes till after 6 maybe 7 tonight This was the 3rd call in the first one was no use when it got there last sat they didn't get call for some reason This morning they rand to say get to the hospital 2 hours away asap they got there at 4am. and did tests and go ahead <BR> My great granddaughter... Sat, 13 Dec 2014 07:33:47 EST Its been quite a while With one thing and another haven't been around much since July. So much going on in my life never had time to pee sometimes you know how it is <BR> I had a knee op arthroscopy about 4 week ago it all went fine bruising just about gone more flexibility in my knee and only 6 hours at hospital from admission to getting back home <BR> Little bro Robin still awaiting liver transplant had one false alarm about 8 week ago but the liver he was to receive was damaged in transit Baby Shakia now has a f... Sun, 2 Nov 2014 10:17:49 EST Still alive Cannot pinpoint what exactly is up but just got no energy ,so fatigued its unbelievable <BR> Everything is behind struggling to keep up even my friend is typing this for me <BR> The fibro pain has been horrendous everywhere is aching and sore Dr says with rest it will pass and upped my medsI am not depressed just frustrated with not being able to do things including keeping up with SP sorry <BR> Last month I had 2 days up in Dumfries but was on antibiotics for an abscess which was right along... Tue, 15 Jul 2014 04:06:01 EST march 6th Just when I thought I was sorting everything out things spiralled out of my control <BR> Ian is now back to work as of yesterday <BR> we had 4 days in Lincolnshire last week taking JJ with us Ian went trainspotting JJ an I visited all the charity shops clocking up 15 mile in 2 days and got a few bargains <BR> Food wise all as planned but my damn foot started to play up so I never got to Doncaster on the Thursday never mind maybe next time <BR> Been helping JJ out at the bank as money has be... Thu, 6 Mar 2014 04:26:12 EST Thurs 30th Jan 14 Feeling like I've been run over twice by a big wagon everywhere is so sore and painful <BR> results of x-ray both knees need looking at so dr sent for hospital appointment for me <BR> they have given me vit d capsules as it was low <BR> upped my painkillers took me of my b/p meds <BR> other than that I am alive (just) <BR> Ian had hand op eventually stitches out next wed <BR> Baby Shakia home with just feeding tube in now Robyn managing ok <BR> Bro Robin in Leiden at the moment he had laser i... Thu, 30 Jan 2014 13:03:41 EST Jan 11/14 nearly 2 weeks into this year still a lot going on <BR> Ian still waiting for other hand op should have been 13th but no contact from hospital yet. His visit to the Christie got him another all clear for his cancer Yea <BR> granddaughter and GGD doing fine little one now in HDU but progressing after heart valve op <BR> JJ still managing living in his flat he comes every weekend to go to chapel with me and enjoys it <BR> I have gone back to church after |MIA for over 14 yrs. due to work commit... Sat, 11 Jan 2014 09:58:20 EST Dec 29th My GD had her baby on 18th and she was taken straight to the Freeman hospital She has been called Shakia Rose weighing in at 6lb 9oz Robyn was later taken to the hospital to be with baby after she had rested after the c section <BR> On Friday 27th baby Shakia had a heart op which lasted about 8 hours they are keeping her sedated Robyn was given a bedsit so she could stay at the hospital near her. <BR> Today I took JJ to church with me it is over a mile away we walked up but Ian picked us up ... Sun, 29 Dec 2013 12:51:39 EST computers have a mind of their own You type it in post it and it disapears into thin air this is the third attempt <BR> Getting a lot of s..t of siblings over mams estate just told them all to go away and just post the check when everything is sorted I dont even want to speak to any of them again <BR> Ian had carpel tunnel op on right hand yesterday he had to be at hospital by 730 the staff didnt come in till 750 then they didnt know what time ring back at 930 we did to be told it would be 1130 ring in at 12 rang at 12 and the... Tue, 10 Dec 2013 13:02:25 EST Dec 2nd Just when you thought things would slow down another hiccough <BR> . Took Ian to hospital for 0745 for his hands op nurse said he was 2nd on list which starts at 0830 ring back at 10 to pick him up So i went to supermarket with his parents to kill 2hrs <BR> Rang hospital at 10 to be told he hadnt had op it was cancelled the other hospital hadnt sent his notes so of course i was fuming since hospital here went into morcambe bay trust they are so unpredictable Ian has been off work since mid Ju... Mon, 2 Dec 2013 14:33:15 EST november 13th Robin was taken into hospital on friday vomiting blood they sorted it he had amonia level of 250 which they reduced down to 20 and transfered him to Leiden where he was due in anyway on the monday for liver tests with transplant lot things went well there he goes for more tests next week. <BR> busy month so far was away Tues till sat last week stayed at hartlepool on east coast <BR> didn't visit with kids though only 30 mile away needed time for me <BR> We hit snow on the way over bu... Wed, 13 Nov 2013 12:57:12 EST Nov 2nd Still on a roller coaster but not letting it get to me <BR> Managed to get all plants into greenhouse that need to be inside for the winter <BR> All shrubs cut back they didn't get done last year <BR> Still having problems eating as i never feel hungry and when i do eat feel so bloated probably stressed but don't know it <BR> Toilet dept back to normal now started taking activia again tried tablet form but they didn't work <BR> Ian still waiting for op date <BR> The... Sun, 3 Nov 2013 06:00:49 EST Rainy October 21st It has been a month since i last blogged <BR> My life has been a roller coaster these last few months.Still winding up mams estate hopefully that will be finished with soon then i dont have to bother with some of the family <BR> My brother Robin on liver transplant list and just waiting to hear which list it is there are 4 in holland <BR> My pregnant GD doing well baby fine except for hole in heart they will operate soon after her birth <BR> JJ doing fine though he is a little low due to hi... Mon, 21 Oct 2013 07:44:15 EST A good day 24 sept Today up early made my chutney using the green tomatoes out of the green house. Made 20 jars Made lunch for Ian JJ and Jonathan my GS then after doing the dishes we drove to Hodbarrow nature reserve to walk and pick blackberries did 1.76 mile and we picked over 10lb of berries which will be made into jam most will go home with Jonathan. <BR> Pain level quite high and hip sore but I enjoyed the day out wish I had taken my swimming costume and had a swim but never mind next time maybe I love s... Tue, 24 Sep 2013 13:28:14 EST Time is flying 22 sept Another month nearly over and 3/4 of the year and it seems not much has been done with one thing cropping up then another <BR> Ian has at last got appointment for is electric conductive test 7th oct then he sees consultant on14th his appointment at Christies for cancer check is 2nd oct then hopefully we will know where we are with him <BR> They have put my mams house on the market though we didn't get out all we wanted my sister just cleared the lot to charity <BR> I go see foot specialist... Sun, 22 Sep 2013 02:28:07 EST Just plodding along Last Tue Ian went to hospital waste of time they needed electric conductive test doing first before consultant as usual they got it the wrong way around, Thur I had to go to job centre another waste of 3 hours fri we went over to mams house to look through all the papers etc birth cert school reports and put them into piles to who they belonged Pat said they couldn't find Mams wedding ring I was looking in blanket chest which belonged my grandmother and in a slot inside the box found my mam... Wed, 21 Aug 2013 13:28:08 EST Funeral All went well we Ian my Bro Robin and Caroline just went to the church service didn't go to the crematorium or back to house as we took Robin and Caroline to the plane we stopped off on our way for a coffee Then on our way home dropped back to see my other bro John and his 2 boys who are grown up now then left for home It wasn't as stressful as I thought it would be but I was determined to pass over me but unusually NO ROWS NO DRINKING etc I was really proud of them all <BR> At least Mam RU... Mon, 12 Aug 2013 15:55:50 EST Stressed 11 aug Last week had a couple of days down Lincolnshire just for Ian to chill out and to get away from phone. His hands are getting worse luckily he sees consultant on Thursday. <BR> We picked Robin and Caroline up on way back they flew to Manchester from Holland for mams funeral tomorrow and stayed with me for weekend <BR> Leaving early in the morning to go to the funeral didn't buy new clothes as it is a waste of money. <BR> Today we all went to Kendal for Robin to look around charity shops then d... Sun, 11 Aug 2013 16:32:30 EST Just blowing off some steam 1/8/13 Up till this week everything was going as smoothly as it could went out with disabled club. ian ate most of my meal of fish and chips it was so hot one of our ladies wasn't well with the heat then after we dropped them we had to do a rail replacement job which went ok <BR> Ian now on sick for 4 weeks he goes to hospital about his hands on 15th I have been called I for a review at the job centre another waste of half a day <BR> I got phone call yesterday at 7am from my brother in Holland to te... Thu, 1 Aug 2013 06:42:41 EST Sun July 14th Went to coffee morning in village hall yesterday won a prizes in raffle biscuits, mint jelly and cranberry sauce these 3 will do nicely as prizes in disabled club raffle next week. <BR> It was quite hot but I decided to go to the fun day at Tottlebank Baptist Church which is over a mile away up hill so I donned my straw hat something I never wear outside the garden sun glasses sun screen and bottle ice cold water usually a walk to this venue would take me at least an hour I did it in l... Sun, 14 Jul 2013 14:05:44 EST Sat 13th July Hi all been a while. In just don't seem to either have the energy or mainly the time lately Since I last blogged my bro and sil to be they get married 25th in a civil ceremony in Holland came over for a visit and to discuss Robin (little bro)s health as you know he was in priory for treatment at the beginning of the year It was great to see him after 18+yrs and to meet Caroline who he has been with for 14yr. <BR> They called at mothers on way over and ended up getting social worker o... Sat, 13 Jul 2013 03:17:30 EST Wed 19th Where do the days go 16 days since I last had time to sit and catch up <BR> DD eldest Tracy and SIL Paul came over so I got my new comp and paul set it up 13 days later had to take tower back as it stopped working luckily hadn't had time to put much on got that sorted and managed to set up programmes myself Gold star as I am not very savvy on comp. Windows 8 taking some getting to know but I will do it. <BR> Had a couple of days down at Croxton Ian needed the break he is so stressed bu... Wed, 19 Jun 2013 05:15:29 EST Mon 3rd Ian had a day off so I decided we would go walking/birdwatching away from phone tv internet we went to 2 reserves in Lancashire Brockholes near preston then to Longton which isn't so far from the first We walked over 5 mile in silence just watching and listening to the birds we saw a black swan the usual ducks grebes geese etc My feet are aching and sore but my head feels a bit clearer. <BR> I now feel more prepared for what is happening around me.Though I am dreading seeing my brother fo... Mon, 3 Jun 2013 13:17:10 EST June 2 Having a rough few week my sisters dh diagnosed with diabeties and he cant use his arms pat my sister is my mams carer and mam is playing up she has dementia it has been decided it is time for her to go into a home my youngest sister is against it but she only visits once a week for 30 mins on a sunday. <BR> My bro who was in Priory for treatment is coming over on 20th he says this will be his last visit to uk and will explain when he comes though I think I know what is coming. <BR> I have be... Sun, 2 Jun 2013 14:26:01 EST Thurs 16th May Today I have been with SP 4 years <em>243</em> Thu, 16 May 2013 13:22:37 EST Wed May 8 Having a good week so far except for hayfever today but used nasal spray and anthisamine meds got eyedrops off dr so not too bad now it is the beech trees yet this is the first year they have bothered me <BR> Mon we went over to NE to visit Rainton Meadow reserve enjoyed the walk we were there about 4hrs Ian chose there incase i wanted to visit Chris in ICU but as they only allow 30min twice a day and her daughter and partner need the time. <BR> Tue i did some gardening then Ian fin... Wed, 8 May 2013 16:35:25 EST Sun May 5 Still recovering from week away Managed to lose 2lb while away <BR> Had busy week catching up with laundry etc. Ians parents had donedecorating with help off JJ <BR> So have to look for things in different places they had a few breakages while decorating several pictures and ornaments my craft glassess halogen heater and other bits and pieces they also upset JJ as he couldnt keep up with them and had to sleep at times they just dont understand his problems but hopefully i hsave ma... Sun, 5 May 2013 07:31:19 EST on holiday At the moment I am sitting in a hotel room in Kings Lynn Norfolk UK have been up since 5am today. Is wet so don't know what to do today yet <BR> Yesterday had to spend day in bed too much sun previous day in Spalding where I met up with a friend had good day out just walking around and chatting clocked up 7.25 miles without noticing it spent £2.25 all day and that was on bottled water <BR> Tues we all went to a museum that used to be a rada <em>247</em> r station it was very interesting we ... Fri, 26 Apr 2013 01:21:00 EST April 8th Busy few weeks Ian got back from France JJ and I got bottom patio sorted then Ian had to work on the Sunday so JJ and I went with him a trip to Holy Island and Seahouses good day out but tiring Monday bank holiday we went to work with Ian again heartbeat country and Whitby had a couple of idiots on coach that couldnt tell the time so they were late back at each stop <BR> Tuesday had dossing day catching up on sleep and housework <BR> Wednesday trip to the Christie for Ians check up All Ok b... Mon, 8 Apr 2013 14:55:39 EST Having quiet day Ians away in France so i am having a quiet day{week} <BR> Last sunday went to a different nature reseve an old quarry in co Durham which was made into a reserve in 1960s i used to go with my dad to it when it was a working quarry and he drove wagons It was cold but dry had a great day watching a kingfisher before we go we name a bird we would like to see this one we wanted a few rimes managed photo waiting SIL to put them on compuror for me. <BR> Rest of week was mostly crafting jj appeared ... Sun, 24 Mar 2013 14:51:34 EST up and moving still havent got replacement bin. <BR> sat went shopping it was so cold only went into 3 shops and back home took all night to defrost <BR> Sun went to market at Morcambe then down to Mere wood nature reserve. I found walking very painful my right leg kept dragging for some reason but struggled on to do the circular route did about 3 mile all day <BR> mon leg really sore but kept moving it snowed so stayed in the house <BR> tue went to carlisle with ians parents just for a ride out visited th... Thu, 14 Mar 2013 14:05:43 EST still getting back to normality Had a reasonable week that has passed so quickly been catching up on my craft stuff ready to take to the shop in Carlisle on tuesday next week.I had no after effects from my walking which i was glad of, <BR> Went out wed night to shops to get paint ready for Ians dad in april also replaced my ironing board cover chopping board to mats Went to supermarket didnt buy any junk food even though i had to reign Ian in as he is a begger for buying pies and cake, <BR> my feet have been swelling terrib... Fri, 8 Mar 2013 15:15:49 EST Getting back to normality Ians boss rang fri night he just had to go in Sat early to pick up keys for office and a company mobile as he will be on call the next 2 weeks while he covers for Daz <BR> I went in with him at 0630 as i had to pick a parcel at the sorting office. <BR> Thought we would be going shopping but he decided it was a nice day to hell with housework and shops Mystery tour there was 2 steam trains coming through the county so away we went <BR> Ian needed a loo stop so we ended up at a small chocola... Sun, 3 Mar 2013 14:16:06 EST Damn Got weighed this morning gone from 214lb to 224lb that is what doing as the dr tells you and antibiotics 10 weeks of doing not very much so i am totally chesed off i even tried 3 differnt scales.they all said near enough the same. <BR> Never mind I WILL have to work harder wont I <BR> Got 3 mile in today walking round martin mere bird reserve <BR> had soup and 1/2 buttered scone for lunch missed breakfast.dinner had cheese and ham in 2 slices of toast and OJ plus a small banana <BR> went to... Fri, 1 Mar 2013 15:50:38 EST Keeping moving Sorted new bin out rang council again as my DD saying i was getting in touch will adult services had new bin within an hour guy who delivered it said he had to bring 5 replacement bins to area saw my name on comp, and brought me another small bin. He says bins start going missing in rural areas when the caravan sites reopen. <BR> Had a good week and got quite a bit done Ians parents came again today dad cut the lawn put a shelf up in utility replaced loo seat he broke other on tuesday i never... Thu, 28 Feb 2013 13:59:34 EST dr visit made appointent to see dr adas 2 week ago to find they had made it with one of the others so had to re explain everything to her she zapped verruca after i told her how to do it she had never used this particular method <BR> Told her i felt as though still had chest infection so she prescribed a different antibiotic after 6 hrs the crap has started to come up. these are stronger than the previous ones Ian rang to say he was loaded up and ready to leave Austria they were just waiting of 1 tea... Fri, 22 Feb 2013 13:33:43 EST sun is shining all week we have seen the sun which makes a big difference in our mood swings.somehow life see more livable and energt levels rise. <BR> I have managed at least 30 mins in the garden for most of this week,just tidying around preparing for the new season. <BR> The hives covering my body are not itching as much as they were but i have good and bad days with it.We still havent found the root of it but i think it is a different make of meds as each <BR> manufacturer varies slightly , <BR> Also s... Thu, 21 Feb 2013 05:08:27 EST Good day for once Saw different gp when i went to put my script in he said rash is hives not anything contagious Relief he said it could be stress related or due to being run down. <BR> This morning gave yself a good telling off and a kick up the backside <BR> Ckeaned kitchen worktops, then 30 mins in garden clearing rubbish off path <BR> Ians parents came dad peeled veg for me while mam and i had a short walk up hill and back not very far but made old heart beat a bit.I then took curtain nets down ready to... Mon, 18 Feb 2013 13:03:24 EST Standing still This last 3 month have been so CRAP mostly due to health issues i feel as though I am standing still I have 2 veruccas on my bad foot which makes wearing shoes and walking so painful <BR> I havent been able to get my miles in because of this my dr is treating them <BR> My meds have been changed due to a rash i have had for at least 2 month urticaria i thought i had ring worm measles chicken pox it has been so itchy and unsightly We think it is because pharmacy using a different brand It is no... Sun, 17 Feb 2013 05:39:51 EST Back again Been having internet probs got laptopback on line but not tablet .As Ians comp upstairsa cannot acessit during the day as i dont do stairs when im in on my own. Tried to blog last week but it must have got lost in space it didnt post. <BR> Had more ecg they ok dr gaveme antibiotic for infection in heart muscle they seem to have worked had chest xray it was clear Ian back to work but hating it long hours again so after ski trips over he willkick them into touch and go less hours. <BR> Dr froze... Sun, 27 Jan 2013 15:30:32 EST What next Had another appointment at dr blood test ecg etc have to go back tues. <BR> Been getting very tired breathless and swelling in my legs and ankles Dr considering heart failure? which is what he put on my notes <BR> Just when we thought we were getting sorted after Ians cancer something else rears up to kick you in the butt <BR> I have been told to go to bed and stay there just get up for loo he no lifting carrying no lying flat which i havent been able to do for weeks thinking it was my asthm... Fri, 11 Jan 2013 17:34:58 EST 1st week over 2013 DIddnt manage as much exercise the old ticker is playing up a bit hav to go for another ecg on fri,they dont think it is my meds now. <BR> Ian had 3 month check at Christie las wed ok <BR> He left for france thur <BR> We bottomed back bedroom on saturday Ians mam and dad did most of the heavy stuff so we just need to sort wall the paper got wet due to next door not cleaning his gutters but the wall has now dried out going for paper tomorrow <BR> Havent managed ex bike this week dr advised not... Sun, 6 Jan 2013 16:22:43 EST Last weekend of 2012 I have had a year of ups and downs with Ians problem then in nov Dr decided to change meds get what heavier than i have been in 4 year up to 212lb waist 128 hips 128 feel like mrs blobby. The dr say it will sort out when meds get sorted but i feel like someone has had me to the garage air pump.So feeling a liitle psd off at the moment. <BR> Dr says he cant put me in for foot op till they sort cardio problem out which could take months <BR> I havent been overdoing the food honest i do mo... Sat, 29 Dec 2012 12:18:18 EST here again Ian home for 5 days and went away on thurs again had car mot <BR> had another ecg dr trying some new meds but gave me amytriptaline back had 4 weeks of hell without it <BR> Found carpet on frecycle so ians parent picked it up with me spent 6 hours sat fitting it finishing off tomorrow kitchen looking great <BR> Sorted smoking chimney not using that sweep next time got 1/2 bag soot after 3 weeks <BR> JJ cleaned windows and swept paths cleaned lower gutters <BR> We had walk along to village an... Sun, 16 Dec 2012 17:09:30 EST computer playing silly b s I am trying to use Ians desktop but it doesnt like me. My laptop died and has been restored to factory setting so i will have to wait till SIL comes over to sort connection back onto internet. <BR> Ians been in France with Oxford uni he sails from calais at 11 so should be home late afternoon. <BR> We went to visit my mam on the way to Jacks party she has had her hair done and doesnt look as haggard though has lost a lot of weight [i must have it. scales playing silly buggers they say i gain... Sat, 8 Dec 2012 03:22:26 EST catch up yet again Time flies when you dont want it too <BR> Been so fatigued lately which hasnt been helped as we needed to order our next car After weeks of climbing in and out last sunday we were down to 3 I told Ian the deadline was mon and he had to make his mind up so we went to try Quashki again and vw touran the Touran won so we placed our order we wont get it till feb but at least ot is done. <BR> My Ecg has been coming up with irregular rythm so dr took me off amytriptaline and prozac for time being w... Wed, 14 Nov 2012 05:05:48 EST still car hunting Week in Norfolk damp cold dreary I was very tired drive down was ok went to flat to put bag in then over to Mike and Roseys for a meal and to work out where we were going during week Sun Ian and i went riding on etrains at Dereham diesels back to M/R for a meal Mon Ian and Tom went trainspotting i went to Kings lynn for an hour with M.R <BR> Tue Ian and Tom went out i spent day with M.R as it was Roseys birthday then we all went out to dinner to celebrate <BR> Wed Too tired to do anything... Fri, 2 Nov 2012 16:10:19 EST Catch up time The last two weeks have been up and down.Ian got all clear at the hospital then check ups in 3 month <BR> I have been so tired and had head colds. <BR> We have been looking at cars as ours have to be replaced in Feb. So we have shortlisted down to 5 Nissan Quashqui, Ford C MAX grand,Seat Altea xl.renault scenic. vw touran I think Ian likes the Nissan best we have been to every dealership in the area and no doubt will look around in Norfolk too. I like the Ford s max but it;s not on the list... Sun, 14 Oct 2012 14:53:03 EST monday new month new goals I have decided that even when i am in pain its no good always crawling under the duvet <BR> I plan to get at least 4 hour of housework exercise shopping walking etc a day, Not to get depressed and stressed when pain overbearing <BR> .Go to bed no later than 9pm even if not tired <BR> Try and make 5 cards a day for charity <BR> do a little knitting every day <BR> read more <BR> watch less tv i only watch an hour here and there but decided no tv before noon and none after... Mon, 1 Oct 2012 06:17:39 EST just sunday Had busy day went over to jjs flat with Ian to shampoo carpet.came home sweaty and shattered good workout using shampooer <BR> .Ian is on the mend we go on wed to see surgeon for results of biopsy and hopefully we will be given all clear so He can return to work in Nov ready for the start of the ski season he had to miss last years and his partner wasnt very happy with Ians stand in he and Ian have done these runs together 7 yrs. <BR> My stress is under controll as is my eating though i have ... Sun, 30 Sep 2012 14:21:38 EST Yuk Things were going great till Fibro fog moved in managed to keep exercising food under control but feel totally shattered infact spent more time sleeping than waking this week <BR> Been getting up on a morning get housework exercise done whulemeds work by lunch time slow decline Hello duvet sleep till 5pm up again finish exercise and essential housework Plan tomorrow food etc <BR> Did manage to fit in visit to Carlisle to see guys didnt get much sleep in hotel as above a place where local id... Tue, 11 Sep 2012 13:54:44 EST