Friday, June 06, 2014
I rattled some cages today and am going to get things my way to the best of my ability. The reality in my world right now is that I have a full incision down my back. There are no signs that anything else is damaged or non-functional from all of the tests I had. My legs don't work right now. I can wiggle my toes and ankles on both feet and have some movement in my right knee. I am getting a bit of sensation in my legs. My knees on up to my waist have no feeling. This is scary stuff.
I told the nursing and PT staff that there were so many people giving me information and that so much of it didn't match that I wanted my spine team to visit with me and straighten things out. I called my PCP and my pain doc from home and let them know what I knew and the ideas of sending me to rehab when I cannot stand or take a step or get from the bed t a chair without being hoisted like an old Chevy truck engine through the air. I learned that there are a couple of resources at home, but they wanted me in the hospital, here or there. My pain doc said the fact that I am getting some sensation in my legs is significant because it should come first and walking is probably going to happen but there is no predicting when it will happen.
My entire spine team came and spent a good deal of time with me. My condition is tricky but they are optimistic and explained the CT scans, x-rays, and MRIs and how they have come to this conclusion. They took the vacuum pad off of my incision. as well and my incision is looking good and free of problems (and stapled from end to end.)
I no longer have 3 working IVs and I am now on oral medications rather than morphine. I had the catheter removed and my bladder has worked. My local hospital where all of my docs work has an acceptable rehab unit and if the insurance approves things, I will end up there, probably on Monday. They will have to figure out transportation and I have told them I don't want an ambulance for an hour and a quarter ride because it will be too painful on my incision.
My mood is rough and I'm crying a lot. I didn't sign up for this and have no idea how this all will play out. The people in charge now know that I am a player though--and finding my voice has helped me a lot.