Tuesday, March 18, 2014
First of all I am feeling a bit better today. My doctor decided to put me on a higher dose of prednisone. Then of course I will then have to taper off again. I am on 15 mg per day taking 5 mg 3 times per day. This is for a week. It amazes me how quickly I felt better but of course there is the insomnia that comes from taking it. I also know that it screws with your cortisone levels and adrenal glands. So my question is for anyone out there with experience and what suggestions you might have.
By the way, someone here, a dear concerned person emailed me and wanted to know more about my condition. I have Sjogren's Syndrome which was diagnosed with a lip biopsy. I never knew it was actually confirmed until I spoke with the doctor here the other day.....a site communication problem. Of course with this autoimmune disorder comes GI track issues during a flare up. I do all I can with reading and researching to find ways to prevent flare ups and was excited to have gone 8 months without a flare....until recently. I think now that I can trace it back to the 4th of March when I went to see the doctor and was doing so well. She then wanted me to taper off the 5mg of prednisone that I was on to 2.5 and then down to none. So of course being the good patient that I am I cut back the very next day which was a Wednesday, which was also the day we ate out and I got bad stomach ache. By Thursday I was going downhill until that following Monday went on IV for two days...but this time it really didn't work. Anyway to make a long story short, I am thinking now that the decrease in the prednisone made me have the flare up. My doctor is thinking that I might have to stay on the very low dose of 5mg per day. I know we all handle things differently and I know I am unique but just wondering if anyone else has had experiences with prednisone.
but the good news is that I think I am on the upswing and walked the dogs with DH for 4 miles and then washed my hair! Woo hoo! We are also going to do an errand or two.
Now if we could just get back our electric(been off since 8am yesterday) so we don't have to run the loud generator so much, I would be happier.
Hope you all had a good St. Patty's day and are having a great day today.