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    REYAFAE   8,519
8,500-9,999 SparkPoints
PCP appointment success

Saturday, January 18, 2014

"Wow - you have to be one of the most organized patients I've ever seen. I absolutely believe you. Your symptoms look absolutely endocrine with, I'd say, a high probability of Cushings. So, "Wow - you have to be one of the most organized patients I've ever seen. I absolutely believe you. Your symptoms look absolutely endocrine with, I'd say, a high probability of Cushings. So, lets see what testing we can do here before I send you off to an Endocrinologist."

I arrived early - all of my paperwork had been filled out during last week's failed appointment, so I spent the majority of my time reading. I was called back by a sour looking nurse that weighed me (much to my surprise, was MUCH higher than the last time I officially weighed somewhere), took my vitals (with a curt comment about how blood pressures are NORMALLY higher at the beginning of the appointment even if you don't have an {scoff} anxiety disorder - almost started to cry then), my medical history (when I did start crying at the question of: Is your mother alive and well?), then left the room while I was still crying. She was so TERRIBLE that I ended up posting the follow to Facebook, in a couple different status updates:

Dear "nurse" that just took my medical history and vitals, I've seen more positive bedside manner from any number of treatment room educational posters - including this one for heart disease. Ugh. Feeling so very small and so amazing far from significant is a real trick for someone my size. She seemed to be annoyed with me that I cried while telling her that my bio-mom died at age 63. Just HORRIBLE - completely disinterested, showed absolutely no empathy, actually walked out of the room while I was still crying over some of the questions that she asked for the medical history (mostly about my bio family and their medical history).

I really try not to post negativity on Facebook but {screams}. She started in on my medical history and I just stopped her right out with "Hey, I'm Elsa - and what is your name?" because if I'm going to be talking about things like "When did you start menstruating?", "Are you sexually active?" and "Have you ever had an abortion?" I'd like to have a clue what your name is. Asking the question four times with only a slight variation in wording only makes me frustrated. Yes, I understand the terms that you are using - I've already given you my answer, it's not going to change if you ask it after two more questions, dumbing it down and then asking it in a more insulting way.

Calmed myself down before panic really took hold (it was trying). Mary arrived, sat down, introduced herself and was so amazingly easy to talk with. We chatted about how long I thought I've had Cushings - family history about endocrine issues - heart, breathing, walking, balance, thyroid, belly, kidneys - all of that. She agrees that there is something more than just eating and exercise involved and we'd start testing here before referring to an Endo. She was willing to agree to my battle plan and then I headed to the lab.

Ouch. Ouch. Ouch. The poor lab tech - for having warned her that I bleed easy and sometimes bruise she had a devil of a time trying to get the gazillion tubes of blood she needed for SOOOO many blood tests. It ended up taking 5 tries to take 7 vials of blood. After try number 4 - the tech just gave up and we waited (what seemed like FOREVER) for an RN that ended up getting one to start on the outside of my left arm. This was after drinking a gallon of water from 9pm-1am the night before just to make sure that I wasn't dehydrated. So we finally got all of the tubes filled and I was just done. I was ready to go back to my MIL's house because I hadn't slept well - or eaten (went NPO since 1am so I could take fasting blood). Let me comment on having not eaten - Mary seemed shocked that I hadn't eaten yet that day and it's really not hard for me not to eat, I forget all the time. I think that is part of my food issues - I forget to eat and then eat convenience food since I'm hungry and want something quick. I have new guidelines on if I'm going to eat a frozen meal what it needs to look like nutritionally -
* 500 calories or less per serving
* 3 grams of saturated fat or less per serving
* 600 mg of sodium or less per serving
* There are a lot of healthier choices out there that fit within the criteria we listed above. In general, Lean Cuisine, Smart Ones, Healthy Choice, and Amy’s Low in Sodium line offer many good choices in the world of frozen meals. You may even be able to add a healthy side dish or two to some of the healthier frozen entrées. If it fits with your plan, add a whole wheat dinner roll, non-starchy vegetables, a side of fruit, or a glass of milk. (Thanks, MyFoodAdvisor from

It's a good reminder. Time to continue making good choices so after my successful surgery (speaking positive things into existance of my goal) those choices will make losing the weight possible when the tumor is gone!
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