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    KGWINDER   34,318
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Update for the New Year 2014

Wednesday, January 01, 2014

I have never been so ready for a new year. 2013 I was so sure was going to be the year that turned things around and rather it was the year I lost my father, aunt, my neighbor, the woman I was caring for, for awhile and mother of a best friend. It was a year of living alone with my husband on the opposite coast working his soul out to make us not go bankrupt with high medical expenses. And we end the year both unemployed trying to figure a way out of this mess.

1) I've run out of most of my medicines. I'm currently using a stock pile of thyroid meds I had literally in my "end of the world" storage. I no longer have the clinical level of Vitamin D (5000 units), so I am taking 5 over the counter 1000 which don't store in my pill reminder. The remicade is a thing of the past, but now so is the new humeria. I had gotten a card from the manufacturer, so I only had to pay the shipping cost. But now that the company that delivers in found out I no longer have Cobra they won't deliver. I've looked at ordering drugs directly from abroad China/India. Some success. 1/15 the cost. Humeria unfortunately I can't do this way because it must be delivered with refrigeration.

Have been trying since October to get on the National Healthcare. What a tease! The October application online gave an error message at the end, so I redid and got the same. Then the State of Washington sent me a letter to complete it and gave me a phone number to call. I've called 18 days and every time the line is busy. The last time they had a message about their website, so I went on there and refilled out an application but at the end of then it also errors out saying I was lacking documentation - but it doesn't tell me what and refers me to - you guessed it - ahhhhhhhhh the phone number. According to the letter, I have until January 7th to complete this order all my application information is zeroed out. And if I don't sign up by March I will have to pay a $95 fine?!?! Govt is interfering with my pursuit of happiness on this one. Dang can say the words I really want to say about this. But this is one messed up messy mess. We're from the government and we're here to help you, right.

2) I'm learning to live without medications. I'm really tired most of the time. But my dh will bring me hot water bottles to easy my pains and coffee to try to wake me up. I've learned to go up and downstairs with my back against the wall to prevent falls. This is just what I am.

Since just before Thanksgiving I have been dealing with a lung infection that makes it very hard to breath. Which every time I lay down I start hacking, so I've been sleeping with a wedge (Thanks Betsy) but I don't sleep as well. So half my current problem is very inadequate sleep.

3) Friends have been amazing on helping with food during the holiday season. One got me a $25 dollar gift card to a grocery store in exchange for me helping her for a day make food for guests coming to her home (13 days of food prep in one day - she would open jars and cut, and I was roasting Red and Anaheim peppers, making a wine reduction sauce for over pasta etc etc), other sent me a Christmas card with $50, my daughter brought me leftovers that were amazing from a holiday party (yes yes frozen back in potions to use in future soups and casserole). And this was after a careful shopping job at Costco for holiday parties. So we have been eating well this month. And I still have the gift card for January.

4) My dog scored for Christmas. My one friend this summer helped me get multiple bags of food on a extreme discount sale for him. So he already was set with basic kibble. My mother in-law was an insightful dear and got him tons of healthy treats and wet food which is a real special treat. This was such an amazing present as it allows me to reward him for great behavior. He is growing up to be quite the gentleman dog. The puppy ways are losing ground to a very sweet mature, dog.

5) Because my husband is back home I now have the ability to use his computer to blog while he is asleep, rather than my Kindle - so I can look half way intelligent, rather than the poor typing that comes from a tiny, touch screen.

6) I can finally lay to rest the psychological stress of the year. As my mum final paid back the burial/memorial service costs. This doesn't ease cash flow however, because she wants the money to be saved, so I made a living trust out of the money with it being able to be used for medical costs for self and family members or family member educational costs. Long story behind this, probably not appropriate to share. Just very confused as to why my ability to intelligently work with money and be responsible would be questioned when I was the one that singularly took care of a mother with a broken hip and same month my father was dying, then while taking her to PT appointment was able to drive and have my aunt die in my arms, drive all my family back for the funeral, arrange my fathers memorial service (service aids, music, flowers, food, assisting without of town guests) and do this all while living on $400 a month. Lesson learned. Never again.

7) So I step into 2014 a more free person. I can refocus on digging out of the health, financial situation I'm in. I'm starting a daily time span to write. I've for a long time wanted to write two novels - both of which I started and got lost on broken computers. But I can start again. The other one I want to get to writing is how to live like a gourmet on a poor budget. I've had two years of experience and it has never been ramen or mac and cheese.

8) My new years resolution is simply to accomplish at least one goal a month I will be proud to brag about here. Hopefully it will lead to a healthier, weigh controlled year too. So I won't promise daily blogs but I will try to be trying enough to have a once a month input. Thank you to all that have remembered me with posts, mail and spark goodies. Let's all have a 2014 that beats the soxes off of 2013!
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  Member Comments About This Blog Post:

RENEEGADE 1/6/2014 9:30PM

    I have been thinking of you and wishing you a lot of prayers and hoping that things get better for you and your family. emoticon

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BARBGEO 1/2/2014 10:46AM

    Hi Sweetie!
I am so glad that when I got back here you were here!!!
I LOVE THE IDEA OF YOUR COOKBOOK!!!

I WANT YOU TO BE AT THE BRAIN INJURY CONFERENCE! WE NEED TO TALK. OK? I will call you early next week.

Sending you hugs for the new year! b

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SAL1512 1/1/2014 5:41PM

    So glad to get the update as you have been in the back of my mind during this holiday season. Praying that something good happens to you wearever it is needed most at the moment. Yep, that is the way a prayer goes when you have so many multiple problems. So sorry that 0bamaCare is hurting more than it helps. But I have a feeling that is what the goal of the out of control, I do not care about the citizens, BIG government was in the first place.
We are praising God that my dear husband has not had a surgery since May of 2012 and so far there is not even one scheduled. We are just realizing the freedom and strength we have to get some things done around here. I know you understand what I am talking about. When you are ill, a care giver, your daily activities just do not get done when you are just surviving. What a blessing to be able to get up and just do it! I pray that this kind of blessing happens to you guys!
Happy New Year!
Sally

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