Friday, November 22, 2013
We're on day three of my son's treatments. He's gone from hardly being able to walk to only needing a little help so he doesn't fall. His tests came back for infectious diseases and they were negative (like I thought they would) so he's free to roam the halls.
As soon as he's unhooked from all the ivs and other things he's attached to the wall, we'll be wandering to the playroom several rooms down. That should happen in a few hours.
He's not going to be amused when we still have to do homework this week and next to catch back up to the stuff we've been putting off. His sister has been great at bringing home his homework. We'll be seeing his teacher on Tuesday anyhow for conferences so we can get any extra work he needs to do and we can explain his condition and work with her for his needs at that point. If I need to go with him to make sure he can handle school, I have that ability. We're also fortunate that they have people there to meet the needs of any kid's problems.
The hospital is doing really well at making sure our needs are being met. Someone just came through to make sure we could go to the best outpatient physical therapy for us, and nearest to us.
He's progressing really well and his pain seems to be reduced greatly since even yesterday. He's walking easier, still with my help, but he seems a lot more stable. They had him wash himself and I'm going to push him to take an actual shower tomorrow. He even brushed his teeth today.
I'm doing ok, but haven't really had time to process all of this, I'm still just getting him through this. I might still break down sometime, it's hard being in charge.
I'm not getting as many steps or as much sleep as I'd like, but I still am getting some walks in. I go to the elevator down the hall and down to different levels to make sure I get my needs met too. I had a decent breakfast that way and a free lunch too, where I order enough to have a light dinner also. I won't be surprised if I come out of this lighter simply because I can't afford to purchase too many meals myself without being able to pay rent at the end of the month. My mom asked me if I was ok and I told her I managed to be fine and not spend a dime yet. That really helps my stress level.
I'm hoping he'll be even better tomorrow. He's playing with legos right now and she's making him stand to do it. I guess anything to make him work harder, he did ask for the legos.