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    ANJAYS-JOURNEY   56,229
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Yesterday Upset, Today bring it on!!!


Friday, October 11, 2013

Yesterday I went to the ENT specialist in Dartmouth, he was a elderly doctor who had trained in Manchester England, as he examined my lump in my throat, he read over all the tests that had been completed so far, the last one was today a scope or so I thought!! I went hoping for a fit it attitude, I guess it was the wrong attitude to have, as he carefully read the test results swaps negative, ultrasound clear, x-rays no obstruction, barium swallow normal, he put a little disc over one eye, it had a tiny hole in it so he see, he then put an instrument in my nose and gently opened it, his word yes, yes yes I see, I thought to myself you see what!! Next my throat, he used a little metal tongue depressor that kept my tongue down, again yes yes I see. Then he looked at me and said no scope today I don't want to irritate your throat more. He looked at my brace and asked if I had a condition, that was not in the notes, he said perhaps myofacial pain syndrome, I just nodded.
He said that peoples throats are smooth, but my throat is very wavy which means irritation, it is caused by the MPS, I am still getting shoulder spasms that are vibrating through the muscle and irritating the throat. He explained it as a earthquake that comes first, then the small aftershocks. I asked him what we will do, his answer there is nothing except to try and keep the muscle active, just constant swallowing, no clearing my throat or gargling, as this irritates the throat more. No foods that irritate the throat, spices, curries the night shade family except onions and garlic. I go back in 3 months to see if it is working if not we will discuss other options, but he did say they were few.
I left so upset I wanted it fixed, I want it to go away, I felt like another nail in my coffin. Words couldn't explain how I felt.
Wayne decided to drive around the valley so we could look at the fall colours and so we could talk, he said no matter what we have to be thankful and we have to be happy with whatever God gives us, I know this, he said we are growing as a family, and we have each other and family and friends so everything will be ok.
The drive was beautiful I was quiet as I was lost in thought.
Last night I was still upset so did not spark, I just lay around and watched Bones with Wayne. This morning I feel more positive, it is scary as at times this sensation makes me choke, but if I take the irritants out and do the swallowing exercise, I will learn to live with it, it won't go away as it is associated with my MPS, but I have learned to adapt and live with that, I will adapt and learn to live with this.
He totally believes in the Salicylate diet plan, he has said to try the first 2 coloumns, if I am out at a restaurant then to know what is in the moderate list in case I have no option. In 3 months he will review.
So salicylate food plan it is. I have to make a shopping list and it may entail making 2 meal options but I can do it.
So today I am moving forward, onwards and upwards.
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Member Comments About This Blog Post:
SPARKLISE 10/14/2013 8:50AM

    Sounds hard but I think it will be worth it! emoticon emoticon

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DJ4HEALTH 10/14/2013 12:02AM

    It is better than getting pills that may make it worse and then they give you more pills to make you feel even worse. So the exercises sound like the best thing for it. Plus the pills may irritate the throat too.

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NSMOOMAA 10/13/2013 8:42PM

    Wow you have so much going on. I was sad to hear you did not get the answer you hoped for. I know you will do this because that is you. You are strong, you also have tons of support, not just from us near you, but all the Spark Friends support too!! Glad you and Wayne were able to go and enjoy time in the valley, it is beautiful this time of year!1 Hugs and know I am always here for you!! emoticon emoticon emoticon emoticon emoticon

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KAYLSLYNN 10/12/2013 7:00PM

    emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

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FITKAT62 10/12/2013 4:51PM

    You are not alone. At our age most of us have medical problems to deal with. I finally got my asthma under control and now my thyroid is acting up. It's too high now because I cannot sleep and I am sweating like crazy all of the time. It makes it very difficult to exercise. It's a matter of trial and error to get the dosage just right.
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KALIGIRL 10/12/2013 8:05AM

    Glad to hear you are moving forward - I'll have to look into your plan.
Good luck - hope all is well in 3 months!

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JFROGSPYDER 10/12/2013 6:03AM

    Sorry that you did not get the answers you were looking for!! Hope that you are better soon!!!! emoticon

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LOPEYP 10/12/2013 5:35AM

    I hope it gets better for you. emoticon

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SOPHIEDO13 10/11/2013 7:40PM

    I have a problem with coughing due to flem , but my throat does get irritated with spices it can be embarrassing while out and have uncontrollable coughing due to the food it's caused by my bronchial problem. Hope you can maintain and control. emoticon emoticon

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VOLARI52 10/11/2013 7:16PM

    I hope this new diet plan helps you. emoticon

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CANDOK1260 10/11/2013 5:32PM

    Hugs and prayers from Cleveland

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GRATEFUL_BEING 10/11/2013 4:10PM

  I'm sorry you didn't get a fix, but I think its great you have a positive attitude today. I hope this new diet plan will help you. Doctors do not seem to understand what its like to live with these illnesses and the life changing symptoms. Maybe if they did they would act a bit more aggressively.

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SKIPPYALTO 10/11/2013 11:04AM

    Glad to read that you've got a positive out look! emoticon

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MRSJERRYBUSH 10/11/2013 9:14AM

    The Lord will never leave you or forsake you. I love Sheryl's post above. God bless.

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ROCKPORT9 10/11/2013 9:13AM

    I am so sorry for your upsetting news. After going through so many tests, it does sound like you have an answer, a direction. It was not what you wanted. Health changes can be hard to accept. I have been fighting one for months, but we will adapt. You have good support. How nice you had the peaceful, beautiful drive. Take good care of yourself. Sending hugs, Laurel emoticon

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SHERYLDS 10/11/2013 8:58AM

    “The strongest oak tree of the forest is not the one that is protected from the storm and hidden from the sun. It’s the one that stands in the open where it is compelled to struggle for its existence against the winds and rains and the scorching sun.”
~Napolean Hill
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