Friday, October 11, 2013
Yesterday I went to the ENT specialist in Dartmouth, he was a elderly doctor who had trained in Manchester England, as he examined my lump in my throat, he read over all the tests that had been completed so far, the last one was today a scope or so I thought!! I went hoping for a fit it attitude, I guess it was the wrong attitude to have, as he carefully read the test results swaps negative, ultrasound clear, x-rays no obstruction, barium swallow normal, he put a little disc over one eye, it had a tiny hole in it so he see, he then put an instrument in my nose and gently opened it, his word yes, yes yes I see, I thought to myself you see what!! Next my throat, he used a little metal tongue depressor that kept my tongue down, again yes yes I see. Then he looked at me and said no scope today I don't want to irritate your throat more. He looked at my brace and asked if I had a condition, that was not in the notes, he said perhaps myofacial pain syndrome, I just nodded.
He said that peoples throats are smooth, but my throat is very wavy which means irritation, it is caused by the MPS, I am still getting shoulder spasms that are vibrating through the muscle and irritating the throat. He explained it as a earthquake that comes first, then the small aftershocks. I asked him what we will do, his answer there is nothing except to try and keep the muscle active, just constant swallowing, no clearing my throat or gargling, as this irritates the throat more. No foods that irritate the throat, spices, curries the night shade family except onions and garlic. I go back in 3 months to see if it is working if not we will discuss other options, but he did say they were few.
I left so upset I wanted it fixed, I want it to go away, I felt like another nail in my coffin. Words couldn't explain how I felt.
Wayne decided to drive around the valley so we could look at the fall colours and so we could talk, he said no matter what we have to be thankful and we have to be happy with whatever God gives us, I know this, he said we are growing as a family, and we have each other and family and friends so everything will be ok.
The drive was beautiful I was quiet as I was lost in thought.
Last night I was still upset so did not spark, I just lay around and watched Bones with Wayne. This morning I feel more positive, it is scary as at times this sensation makes me choke, but if I take the irritants out and do the swallowing exercise, I will learn to live with it, it won't go away as it is associated with my MPS, but I have learned to adapt and live with that, I will adapt and learn to live with this.
He totally believes in the Salicylate diet plan, he has said to try the first 2 coloumns, if I am out at a restaurant then to know what is in the moderate list in case I have no option. In 3 months he will review.
So salicylate food plan it is. I have to make a shopping list and it may entail making 2 meal options but I can do it.
So today I am moving forward, onwards and upwards.