Wednesday, October 02, 2013
WARNING: Don't read unless you have a strong heart. My pain has been poured out into a mess below.
I've reached the end of my rope. I've hit the limit of things I can deal with. My ARMHS worker was on her way and my lawyer emailed me asking me to write down all of my symptoms for most of my conditions. When I said that's just too much for me, he said he really needs it so I need to do it. Why does everyone who is supposed to help me get to DEMAND that I do things I CAN'T do before they'll even consider helping me? I'm in overwhelming pain, I'm so far past exhausted, I can't take care of my basic needs, yet everyone gets to demand things from me.
Then to top it off, 11 days after my last period started, I'm getting significant spotting again, the same as when my periods start. 11 days between periods! And I have PMDD to deal with! It's just too much! It's far too much! I just keep crying. I was able to distract for a few hours while Viggling, but otherwise I just keep crying; the tears just keep coming. I just can't even cope anymore. This stress will be what kills me. I guarantee it.
Plus something's wrong with my hip (probably the SI joint) so my left leg is turn in and keeps going dead. I don't even have the energy to stand up long enough to make enough food for me to eat. Both of my knees feel like they've been beaten with sledgehammers. My jaw keeps locking and hurts ridiculously bad. My allergies are going crazy because I haven't been able to vacuum or change the sheets on my couch/bed in something like 2 months. The doctors all tell me to do PT as if it's a magical cure to everything, completely ignoring me when I say that even 10 minutes of gentle PT can make even getting up and walking 30 steps to the bathroom feel like climbing a mountain. My ARMHS worker and therapist want me working on skills to deal with my mental health issues, which I can't do because I can't get past the idea that the only point for me to be on this earth is for others to use and abuse me, because I have no rights and must always sacrifice myself for everyone else. Because look at what I have to deal with! My rights are being taken away from me and everyone is DEMANDING I do what they expect of me RIGHT THIS MOMENT NO MATTER WHAT OR WE WILL NEVER DO ANYTHING FOR YOU. And I do it all alone. My own family treats me like a piece of garbage they can destroy at any moment and that my only worth is when I can stop being a piece of garbage and do everything they want - which is impossible. When you're nothing but a possession and punching bag for your family and most of the people around you, what's the point?
I can't even cope anymore. How will I deal with being homeless in a few months? What about a year from now when the EDS has progressed to the point that I can't do anything for myself? How will I deal with being torn to pieces at my SSDI hearing in 3 weeks? The only way I've even made it through the past few months is by telling myself every week/day/hour that if I just ignore life for the rest of the day I can always give up and be done tomorrow. I'm not living, I'm not functioning, I'm not surviving, I'm not even existing. I'm literally just taking up space at this point. I actually feel like I'm committing a crime just by asking for help because I'll never again be the person I once was; and even then more people hated me than anything.
I know no one here can do anything to help me. The people who can help me want me to sell my soul before they will, while the people who would be willing to help can't. I've spent my entire life doing for me because no one else would. It is what it is and it's not going to change because life is not a fairytale - no one will come rescue me from my hell. Unfortunately for all of you, I just wanted to put my current state of hell out there so someone knows, not just me. I'm sorry.