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Friday, September 27, 2013

The journey continues. I had my fourth R-CHOP cocktail infusion yesterday and as expected today I am wiped out. This will come back to normal in a couple days. I continue to see how each day has its own personality and none are the same two days in a row. Weird.

So far, I have had no real physical difficulties with the treatments. My son takes me his job sitting beside me and treating me like royalty. I would be lying if I said I didnít like the care he gives me and his mom.

I will admit to be down in the dumps last night. Dave and I met with the oncologist prior to the R-CHOP cocktail infusion. I had had a PET scan last Monday and he was not really overjoyed with some of the results. The cancer cell count has been significantly reduced (A good thing) but he was really disappointed that the size of the affected lymph nodes has not reduced at all. (A bad thing) There are only two nodes in play and that is really a good thing. Had any nodes above the waist line been involved, it would have been classed as stage IV I believe I mentioned in my first blog that the description of the lymphoma I have is LARGE B CELL. This is an extremely aggressive subset of the hundreds of lymphomas. Before my first meeting to get the results of the biopsy I asked him, What if I elected not to receive chemotherapyĒ His answer, you would have 6 months to live. That certainly made the decision easy to say YES.

I was so befuddled on the way to get the results, I ran into a car in the left turn lane. Was not a happy moment.

Nether Dave or I could tell if he was being protective for me or if this could be something a lot more serious. He did talk about the possibility of additional treatments but was not specific as to the nature of the treatments. He is normally an open book and that is why I was a sad case last night. But, with the dawn, a new light shines and I am more determined than ever to meet this beast and decimate him.

This about sums it all up for now. BTW, there is a new IPhone app titled FOCUSONLYMPHOMA published by the Lymphoma Research Foundation that is extremely informative and detailed. Should anyone like to learn more about the many blood cancers contained within the Lymphoma category and ITíS FREE!! Just search for the title in the Apple app store and download it.

I am sure he will have another PET scan and I will know a lot more in 6 weeks and will post another update.

Thanks for listening and huge thanks for all the positive responsed I have received.

SP is wonnerful, wonnerful. (Remember who always said that on his TV show?) Let me know who you think it is.

Chao for now.
  Member Comments About This Blog Post:

CATHEMARIE 12/29/2013 11:01PM

    Lawrence Welk ~ watched his show on Saturday nights with my mother while she rolled my hair for church the next day.

Mom was diagnosed with Multiple Myeloma (blood cancer) in Sept 2013. As you are, she is trusting, praying, taking her treatments and doing as much as she can with a positive attitude in the midst of a very dire situation.

Praying for you and your family.


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HOLLYM48 11/25/2013 7:35PM

    Sending good thoughts and prayers your way. Stay strong and fight this beast indeed.
You have a great attitude and that is 1/2 the battle.
Best of luck with this journey you are in the midst of. So glad your son is there to help you and your wife thru this. There is no greater love than family!

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IAM_HIS 11/19/2013 9:15PM

    Your positive attitude will be a great help...hoping to hear from you soon! emoticon

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MICKEYMAX 11/13/2013 9:29PM

    I am keeping you in my prayers. Thank you for happening along onto my blog.

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UNICORN212 10/27/2013 3:09PM

    My husband had Burkitt Lymphoma 2 years ago - another aggressive lymphoma. We found the lymph nodes in his neck Wednesday, went into the GP Friday, and were at a ENT having a needle biopsy on Monday. Then it was lymph node removal, PET scan, port installation and in the hospital for inpatient chemo - all in under 5 weeks. Chemo was 17 days in, 7 days out, 18 days in, 7 days out, then 18 days in. Very intense. As soon as his blood levels were high enough, he was in for the next round. After the third, his PET was clear. I do not think he would have survived (or even agreed to) a 4th round. So far, he is 2 years in remission.

Lymphoma is usually very treatable if you catch it in time. I wish you luck and health.

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REBBYREB99 10/23/2013 12:33AM


As others have said, thank you for sharing your journey with us. I will not go into a long story but I believe that there is more you can do for yourself to prepare nutritionally wise. There is a book out there from Dr. Richard Becker called "Foundations for healing." He is a doctor who also had cancer and found out that no one told anyone who had cancer how to help your body fight cancer. I have friends who prepared themselves for the battle by their diets and with supplements and then I had friends who did not. The friend that did fight this with nutrition and supplements is now 10 years in remission. She was stage 4 ovarian cancer. Please do not give up the fight and battle this cancer. Prayer and information are your weapons. God bless you

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KIMALEE54 10/20/2013 11:31PM

    I clicked "Like" on this blog because I'm glad to have an update. Sending strength, and prayers, and a big hug your way. And in the words of the late Lawrence Welk, hope you're feeling A-Wonnerful real soon.


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HEALTHYSLIM2 10/18/2013 9:10PM

    Sorry I've been away - just took a moment to touch in with you and read this update.
emoticon emoticon emoticon emoticon
Hope you are doing better and better each day!

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FISHER011 10/8/2013 7:32PM

Love, Hugs & Prayers!
emoticon emoticon emoticon
Your Son is the greatest !
Bless You & Yours!

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LINDAM.1 10/4/2013 3:05PM

  emoticon emoticon and strength.

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PAULINLIM 9/30/2013 10:54AM

    Thank you for your share. The way you talk about your son is very moving. I'm sending healing thoughts your way.

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LINDAM.1 9/30/2013 12:07AM

  Thank you for the up date. emoticon

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4KWALK 9/29/2013 5:21PM

    Good to hear how you are doing. I was wondering how things were. I was thinking "wonnerful, wonnerful" was Ed Sullivan but I'm sure it must have been Lawerence Welk. What wonderful memories of that time in history.

Praying for you.

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TREE57 9/29/2013 3:12PM

    Frank, I'm so glad to hear from you and what's happening. I've been thinking an praying for you.
You are courageous and strong! I'm so pleased that your son is with you while you are going through this, I'm sure it's a comfort to you to have him near.

emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

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NAYNAY69 9/29/2013 12:08PM

Wishing hope and love be with you every day and every evening when you are feeling down.

You have such a wonderful spirit that shines. I am so happy to hear you have the support of a loving family.

Thank you so much for sharing your thoughts and feelings with us.

NayNay emoticon

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CATLADY52 9/28/2013 4:12PM

    You are showing the human side of cancer. The part the has been through the radiation, chemo and it's up and downs. The part that says 'I'm going to kick this if it's the last thing I do' and means it. emoticon You are very fortunate that your son can be with you now.

I'm sure Lawrence Welk would be proud to supply the background music to your drama if you want. emoticon

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REXTINE1 9/28/2013 11:42AM

    I'm thinking good thoughts - and hoping that you respond better to the current treatment. It's hard to keep up with all the doctors, and when you have a serious problem, you want the treatment to work right and fast. Best wishes for a good recovery. emoticon

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WEGENERCS 9/28/2013 11:14AM

    It is always delight to hear from you. The infomation you are sharing has taught us so much. What powerful stuff! In a nutshell, I cannot imagine going through a serious illness without the support of a spiritual center. And you project that so clearly to your readers. Keep your family, friends, and God close. They will sustain you.

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MOM1014 9/28/2013 9:22AM

    If you can write about it you can fight about it Frank. And you are doing both so well. You are being prayed for in the Over 70's group and am sure all over SP. Thanks for keeping us posted!
Big Hugs,

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QUADCMOM 9/28/2013 9:08AM

    Thank you for sharing what you are going through. I'm Julie and I'm going to add you to my friends list. I am praying for you. God is with you through all your journeys.

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GARDENCHRIS 9/28/2013 9:02AM

    you will get through this and glad your son is stepping up.

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FUNLOVEN 9/28/2013 8:10AM

    I am so glad to hear from you no matter what the news is and thanks for the update! My mother had cancer and we lived 2000 miles apart so I am glad you and your son can spend as much time as possible together. Keep strong and remember we are here for you emoticon

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MT-MOONCHASER 9/27/2013 11:51PM

    And a one, and a two...

Let the squeeze box music begin...

It was Lawrence Welk. He had some great dance tunes. And those marvelous Andrews Sisters.

I hope that your treatments go well and you get great results.


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LESLIESENIOR 9/27/2013 11:23PM

    I went back and read your first blog regarding your cancer diagnosis. I'm so sorry you have been presented with this serious challenge in life. Your openness and honesty about your diagnosis and the feelings that surround your journey will help you and so many others. God has your back and I'm glad to hear that you are doing the footwork and leaving the blessed results in His hands.

Consider yourself prayed for from here in Southern California.
God Bless You!

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DOVESEYES 9/27/2013 11:09PM

    Thinking of you lots of hugs.

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ALIHIKES 9/27/2013 11:02PM

    My thoughts and prayers are with you emoticon

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CAT-IN-CJ 9/27/2013 10:51PM

    Lawrence Welk.

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TOONIE 9/27/2013 10:20PM

    Lawrence Welk

emoticon emoticon

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JACKIE542 9/27/2013 9:58PM

    Ed Sullivan, big emoticon to you.

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1CRAZYDOG 9/27/2013 9:55PM

  Hang in there. My little sis has Lymphoma as well. It is a hard fight, but you're a fighter (she is too! So is her big sis -- me!) HUGS and prayers. I am thrilled you have such loving support. That makes all the difference.

HUGS to you and your family.

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NEVERORNOW 9/27/2013 9:54PM

    Ed Sullivan, of course! :) emoticon and prayers headed your way!

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DIANNEMT 9/27/2013 9:47PM

    Ed Sullivan and you WILL beat this--you have the right attitude!

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