Tuesday, September 17, 2013
I ask this more because I know this week is just going to get more and more stressful and Iíd certainly appreciate some input/feedback. I am co-organizing the Conquer Chiari walk in Dallas area. There is so much to do before the event on Saturday. I know the only way that I will even come close to getting it all done is to make a list and put one foot in front of the other. I still have donations to pick up today and a few other things so that I can help my dear friend/evil twin be prepared for Saturday. At this point, we have just under 350 people registered for the walk at our location. I am excited that we will be raising awareness about Chiari and the other sister conditions, including EhlersĖDanlos syndrome, Syringomyelia, just to name a couple. The people that I have met since participating in this walk have been amazing. You would never imagine what they go through on a daily basis just to move and function. Something that so many of us take for granted. I want to do everything that I can to help those who suffer with these disorders, but to be honest, there are only so many hours in a day. I know that I have multiple issues with this week. I need to find a way to continue to move even when I donít feel like it or feel like I should be doing something else. I need to find the time to make my lunch the night before so Iím not trying to run around at the last minute. Right now, Iím just doing what I can to put one foot in front of the other and to try to keep moving forward with marking things off my list. Have you ever helped to organize an event such as this? If so, how did you handle it? I know this is not my last year to help with this and I sure don't want to eat my way through it. So far, at least, that part has been successful.