Tuesday, September 17, 2013
I last blogged May 19, 2013, my life has been a world wins since, the end of May, my sister who has fought a fight with Lupus for the last 11 years, had her last episode and flare. She was ready and prepared to receive her Angel wings in mid June. This has been a hard time for my family. I miss her daily and trying to work through the grief. Earlier in the year, I had another bad case of Bronchitis, that it what it was called in , but after going to the ER due to prolonged SOB, I was diagnosed with Obesity Hypovenilation Syndrome. This causes you body to swell, in particular my legs and stomach was swelling, my knees were hurting. It was not Bronchitis, but this OBHSyndrome. I have been placed on 24 hour oxygen. This causes a lack of oxygen, because my lungs were not getting the message to produce enough oxygen for my size. Some of the medical literature that this may be connect to a brain defect. I had a brain tumor removed in 2009. I have my first episode of swelling within six months of surgery. I gain 10lbs in four days, during a time when I was tracking and writing my food. This weight gain was insist with my food, but my md treated as I was just gaining weight. My shortness of breathe was to bad and my pulse was dropping to treat this weight gain was just bad diet. I am applying for disability. I am working to rebuild my strength. I am seeing a nutritionist and I have a set of new meds with new doctors.
I am trying to grief, my loss of my sister, it is hard we start a million times a day!! If any one has experience OBHSyndrome, please let me know what helps, what does not. I am hoping to begin water aerobics soon.