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    AWESOMECHELZ   29,164
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Hearing Loss and Multiple Sclerosis

Thursday, September 12, 2013

Hi everyone! Thanks for stopping by my blog today. emoticon

About 3 months ago, I was awaken in the middle of the night by a loud, high pitch sound so I go up to see where it was coming from. After looking around my apartment, I decided to plug my ears with my fingers to see if the sound would disappear and it was then, that I realized, that the sound was inside ME and both ears were involved. Since I have allergy problems in the Spring and Fall, I decided to ignore it and go on with my day, expecting it to go away sometime in the near future. That hasn't happened.

I told my primary care doctor and she referred me to an ENT, a doctor who specializes in diseases of the ear, nose and throat. After some tests, he told me to come back to do some evoke response tests of my hearing nerves from a specialist since I have multiple sclerosis (MS). I met with my doctor yesterday about the results. The high, pitch, buzzing sound in my ears is not going to go away since it is due to nerve damage from the MS. I never, ever thought that MS would do that to me! I kept waiting for my legs to give out or severe balance problems or go blind but not this. emoticon And since MS is progressive, it may get worse and I may lose my hearing in the future. I say "may" since MS is unpredictable so it may not happen (lose all my hearing ability completely).

I have thought about my situation very, very carefully since the buzzing started in my ears, what it would be like to live like this and I have been practicing a lot of cognitive therapy skills to deal with the anxiety, and I am doing okay with it most of the time. Nighttime is the hardest and I am working in therapy to help myself with that. emoticon

The diagnosis I received is sensorineural hearing loss (SNHL). Wikipedia says SNHL "is a type of hearing loss in which the root cause lies in the vestibulocochlear nerve (cranial nerve VIII), the inner ear, or central processing centers of the brain. Sensorineural hearing loss can be mild, moderate, or severe, including total deafness."

Wikipedia also says that "the great majority of human sensorineural hearing loss is caused by abnormalities in the hair cells of the organ of Corti in the cochlea. There are also very unusual sensorineural hearing impairments that involve the eighth cranial nerve (the vestibulocochlear nerve) or the auditory portions of the brain. In the rarest of these sorts of hearing loss, only the auditory centers of the brain are affected. In this situation, cortical deafness, sounds may be heard at normal thresholds, but the quality of the sound perceived is so poor that speech cannot be understood."

Since the doctor is 99% sure it is my MS causing since the decline in hearing has been rapid and acute, I will be meeting with my neurologist next week to discuss what to do about it. I may get IV steroids to see if the inflammation can be reduced significantly to improve my hearing.

As to my response other than sharpening my cognitive skills, I will treat this problem like I have all the other problems I have had with MS since being diagnosed over 20 years ago - one day at the time - and I will not destroy my sense of hope nor my faith in my Higher Power to help me cope and live my life as fully as possible. I may have tears some days, complain others but laughter and perseverance will be kept alive. I have learned to cope from others with more severe problems than mine and I can continue to do that too. emoticon







Like always, my friends, thanks so much for your support and love and care and compassion and examples.

Love, Chelsea emoticon
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  Member Comments About This Blog Post:

IUHRYTR 9/29/2013 8:50PM

    yes, sad news. As one who often has a difficult time hearing, I relate, but commend you for your positive, optimistic outlook. May mine become like that. Stay strong. -- Lou

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PROVERBS31JULIA 9/29/2013 8:18PM

    Chelsea -
I've been out of state past 2 weeks, and so sorry you are losing hearing! I have has snhl all my life (RH blood factor incompatibility that was not properly diagnosed by my Mom's doctor - thus, I was not started on the proper series of shots after my birth. Long story).

I recently had a bout of tinnitus from loud singing and improper hearing aid adjustment, and really it is still going on - will write more later.

I also notice I will have flair ups after I eat certain (usually processed) foods - I know for sure unfermented dairy foods set it off.

Sometimes I will hear it go off and go looking for the sound - and will ask my husband: "I need a reality check - is there a loud (description of sound I hear at the moment) sound, or is it just in my head?" And he will listen and tell me he hears it over here or there or what it is, if he hears it. Or if he doesn't hear anything, then he tells me it's all in my head....and I'm happy. Then if its me, I usually drink a lot of water. Dunno if it actually helps but it makes me feel like I am being proactive! Haha! And usally I do need to drink water anyway...


More later!

Hugs!!

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CYBERCITYSHELL 9/27/2013 10:20AM

    Sorry to hear that Chelsea. emoticon
My mum had MS back in the 1970's. She was approximately 29 when she got it. But back then they didn't have as much knowledge of MS. Mum lived in a geriatric ward in a hospital. I have no idea if she had any or what meds she may have had. Mum was blind, in a wheelchair, and couldn't use her hands or legs. Her hearing was fine though. I have met quite a few people with MS and none have had it as severe as my mum did. Although way back in the 70's things were very different.
Stay strong emoticon

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TIME2BLOOM4ME 9/23/2013 10:06AM

    emoticon

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GRANDMABABA 9/21/2013 8:41PM

    Blessings! Ms can be so surprising. We must be encouraged by all we are yet able to do day by day. Be well and strong!

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ROSAMARCELLE 9/21/2013 5:40PM

    So sorry to hear about your hearing problems. My DH has had hearing problems since infancy and has now had a cochlear implant which has given him some hearing back, although not normal. He also suffers from tinitus, and it is something that has to be lived with, one day at a time. I hope they can find something that will help you too. emoticon

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PIMPINELLAN50 9/20/2013 10:49PM

    As always, your inner strenght and positive attitude in the face of adversity
blows me away.I hope that your doctor can help you keep your hearing as long as possible.
Sending you warm thoughts and healing vibes.
Hugs,Marianne. emoticon emoticon

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KENWANNE2013 9/20/2013 12:18AM

    Chelsea, I was so sorry to hear your news. Please let me know if there is anything I can do to support you. As always I am in awe of your positive approach and strength. Lots of love xx

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AUTUMNHOPE 9/18/2013 8:23PM

    HOW emoticon am I to read this .
I am SO glad you shared it, but sad it is happening to you.
Let's hope the Doc is wrong & it will not be permanent !
PLEASE keep me updated on this. Know HOW VERY much I care & that I am here for you whenever you feel the tears coming on. We are Sisters in Christ & should comfort each other in our trials , as well as supporting the accomplishments.

emoticon emoticon emoticon emoticon

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KADULAC 9/18/2013 3:39PM

    I'm sorry you are being affected by this. I hope an answer can be found to help ease that high pitched squeal. emoticon

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TREV1964 9/16/2013 5:30PM

    Aww Chelsea,

I thought you were going t say that the ringing sound was tinnitus which eases somewhat as it is usually brought on by close exposure to particularly loud sounds of over 110db.

This sounds pretty nasty being linked to the MS really puts it into a field of mystery. I don't know what to say or as a musician how I would personally begin to cope with something like this. I really hope that something can be done to curb this or regress this, if not now then in the near future. Research upon the immune system is being carried out all of the time which can only give us hope.

Thanks for sharing this - you have really taught me something regarding the MS and how it can be linked to hearing. The way you deal with this is nothing short of divinely inspirational.

Love and cheers

Trev

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THIMBLER 9/15/2013 9:30PM

    Chelsea, I am so sorry to hear of this new twist.

I don't have MS, so I can't even to begin to relate to all you have gone through. The one thing I know is you are such a positive force. You know what you have to do and you do it. And when things do get you down, you don't hide from it. You accept it as part if the process and move on.

I am truly blessed to know you and your courage.

Sending you positive thoughts and prayers. emoticon

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SNOOPYMOMMA72 9/14/2013 12:11PM

    I feels so bad about you and the hearing. I never thought that would be a problem like I told you.
But I know you and you will figure it out do what needs to be done!
You have such a strong will and spirit to keep it moving no matter what is going on. That is such a wonderful gift from God and a strong attribute in your personality! emoticon

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BELTONWALKER67 9/14/2013 9:10AM

    Thinking of you & sending hugs your way. Your positive attitude will help you wade through this setback. Keep the faith! emoticon emoticon emoticon

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-SEVEN- 9/13/2013 7:43PM

    emoticon Chelsea!
It amazing the curve-balls MS throws at us- things we never thought even existed! (Did you know I also have MS?) I had false feelings of "hot" feet and times when I would be writing something and my hand would simply stop- where 30 seconds later (after a brief rest) I could start writing again. It's bizarre!
I hope you can find some relief- I have a high pitched noise in my ears, but it doesn't wake me out of my sleep. I truly hope that recedes for you. I have had some great success with altering my diet to help stop the MS symptoms, along with 6 months of Copaxone, and have essentially been (mostly) in remission for the last 5 years. (of course I got leukemia a few years back, and it kinda put that little MS problem in perspective. LOL! As in, I had bigger fish to fry at the time!)
But... I understand- and everyone's MS is different. I will be sending up some prayers for your healing. Keep doing your best, and read up on the internet for natural ways to help yourself. My biggest help was to eliminate sugar and yeast from my diet.
Yours,
Madam Seven emoticon

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PATTYKLAVER 9/13/2013 8:13AM

    I am so sorry that you are going through so much. I am impressed that you did your homework, that you know kind of what to expect, and that you believe in God and know that things will be okay. Sending hugs and well wishes.

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KARENKANDO 9/13/2013 7:16AM

    I am so sorry to hear this news, Chelsea. Truly I am. But I have to say - your attitude about it is refreshing and inspiring. That you can go through this and still have faith and hope and determination to live fully and not let the MS get you down? Speaks volume about you as a person! Not just anyone could be so determined to live - fully - and accepting - living life on life's terms. I think it's wonderful! I think you are wonderful! I know the last thing you want or need right about now is alot of naturalists bombarding you with a bunch of home-remedy mumbo-jumbo. I know that you are in the hands of some very educated and knowledgable doctors. As well you should be! But with that said, I have a suggestion. Do with it what you will - it will not hurt my feelings if you dismiss it outright, ok? I'm simply sharing information because there is nothing I wouldn't say or do if I thought it would help a friend. There is a book - and a DVD - called "The Secret". Get a copy for yourself and read it or watch it. I think it just might help. The basic premise is this: we are what we think about - we attract into our lives that which we think about. If something as simple as changing your thoughts might help your current medical crisis. . . well. . . I know you'd want that. Anyway, like I said - it's just info. Do with it what you will. Above all - know that I'm here praying for you - praying that God will restore your hearing stat! And if that is not His will, then I'm praying that he helps you find a way to remain happy and hopeful and faithful regardless of what is happening in your life. Big hugs and much love! Karen.

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PATRICIA441 9/13/2013 6:54AM

  Chelsea, You are handling this new MS crisis just as you always do with dignity and knowledge of the best way to cope with it. You have the determination not to let this overcome you which is so very important in dealing with life in general. I am very proud of you dear friend. Much love, Pat

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DALMOM2007 9/13/2013 6:36AM

    I'm happy to see that you are keeping your postitive attitude about this. I hope that the doctors can make it better and prevent it from getting any worse. emoticon

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POPSY190 9/13/2013 12:30AM

    This is rotten news for you, Chelsea. However, if anything is going to help it will be your attitude of developing strategies to cope with whatever develops. Take care. emoticon

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LADYSTARWIND 9/13/2013 12:18AM

    Will be hoping that the steroids help in the short term; and that perhaps "Mr. MS" will relent so you don't lose all your hearing. My partner has worn Hearing Aids for some 20 years now---it is amazing what they can help with; but as you said, if its nerve damage, there's not too much to circumvent that....

Your situation gives me pause to consider how fortunate I am...and also...some of the "what If's": would I choose to go blind...or lose my hearing.... ??? Don't really have an answer. As a friend who is dealing with Acute Leukemia recently told me: we deal with the world as it is, not as we wish it to be. That is all we are given to do.... Take Care!
patti

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MOTLEM 9/12/2013 9:58PM

    Whew, heavy news, Chelsea. emoticon

Yes, one day at a time and staying positive is the only way to travel. emoticon

Sending loads of love and light your way today, girlfriend! emoticon

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MICKEYH 9/12/2013 8:59PM

    Dearest Chelsea, so sorry to learn about your possibility of hearing loss. My Hart goes out to you. And praying for your well being. But girl friend, I know you, you will fight this challenge like brushing your teeth. (*^^*) You've got this and You can do this! Let me know of anything that I might be of your help. " Much Love" Mickey.
emoticon emoticon emoticon

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KATWELL88 9/12/2013 4:07PM

    My dear friend Sunshine,

Having a new mecdical issue is not fun, and believe me there are days when having moderate to servre hearing loss is no fun especailly when tinniusss KICK in LOUD!!!! Drive me Thundering Bonkers!! emoticon

For me big time stress, weather changes and allegries can trigger it. When that rinning happens --- take it easy!!!!!! So i pay attenation to how my body is better than i did in the past. Usually i write notes, text and gestures too if needed face to face is best which i miss sometimes -- that what i enjoy going to workshops classes etc. emoticon

Oh yes you can tell me of your congtive thearphy hints( im curious to know some of your streagties that are working for you) AND you can vent cry cheer on a lettter anytime on variuous issues or just brainstorm ideas compare notes etc.. emoticon

You have been there for me in many ways girlfriend and i appericate your support for me. Let me know what can i do for you...???? ( return the favor) emoticon

Also i like you go forward despite the obstables HOOO.....!!!! ( movtational mode) --- just have do things in different way--- ( remind me what do i deal with on hearing loss and issues that comes with it!-- might be another page?? If you need advivce) emoticon

From my heart to yours , emoticon Dolly



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1MIN17SECB412PM 9/12/2013 3:58PM

    Oh, Chelsea, this is the worse news and yet, your attitude and your faith gives me HOPE there is a total cure for you!! I'm sure you have done alternative research over the past years, but I would sooo love to see a breakthrough (medically) on not using the Avonex, Betaserone, and Copaxone (chemo based drugs). Have you heard of Naltrexone? You probably have already found that yoga is your best form of exercise and eating lots of ginger and turmeric regularly helps too. emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon Be well, my new friend.

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MOM2ACAT 9/12/2013 3:47PM

    emoticon I hope the doctor can offer some helpful solutions, so that you can keep your hearing as long as possible!

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1BEACHWALKER 9/12/2013 2:53PM

    Sorry to hear you have that diagnosis...having that is rough. Since I have tinnitus, I know your pain! You have such a positive attitude and that is what will keep you going. Hope the Dr. will give you some help! Hang in there my friend! We are here for you! emoticon

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MSLZZY 9/12/2013 2:34PM

    You maintain such a positive attitude. I hope the doctor can help you in some way. HUGS!

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FELINEBETTER 9/12/2013 2:10PM

    Chelsea - as always -- you are so inspirational & resourceful -- you should be holding meetings! I have heard of hearing issues with MS but it was told to be a form of "tinitis" that only affects people with neurological issues. I'm not sure if this is the same thing or not. But Girl -- you NEVER cease to amaze me with your inner & spiritual strength! I'll say a prayer for you and want you to know I'm here for the long haul. Please feel free to whine, vent, complain or whatever else it takes to relieve some of your stress!

You ROCK, Chelsea! emoticon

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MLDRLD 9/12/2013 12:40PM

    Chelsea, my thoughts and prayers are with you and the doctors as you continue to research and investigate what to do with this problem. I hope and pray that there is relief and that your hearing will be sparked.

I admire your courage and positive attitude. If you need someone to listen, I'm here for you!

Hugs, Mary Lynne

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SUPERGREENDIET 9/12/2013 11:52AM

  Hey Chelsea: Thank you for sharing your journey. Wishing you hugs and continued strength in dealing with your reality. From the heart, H. Raven emoticon emoticon

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1CRAZYDOG 9/12/2013 11:25AM

    Sorry to hear about this! It's a lot to deal with. Hope that if corticosteroids are prescribed that helps. **SIGH**

HUGS

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SUNSHINE192DAY 9/12/2013 11:08AM

    I'm so in awe and inspired by you my friend! Most people would be crying out, "Why," and deny their Higher Power but not you! Amazing! I'm praying to God that you can get the steroid IV and that it significantly improves your hearing. Keep on keeping on my dear because you are a WONDERFUL example!

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SANDRALEET 9/12/2013 11:01AM

    There are many problems in life With God we get trough them Life can be a mystery Why some and not others Do not tell me there faith is not strong That is just how life is

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LIVINGFREE19 9/12/2013 9:53AM

    Wow, I haven't heard of this yet with MS, but anything is possible with this disease. That would be very sad to lose your hearing. I hope they find a medicine to help slow the hearing loss down if they can't stop it.
Let me know what comes of this, I am really interested to know.

Big (((HUGS)))


~Denise

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LOFLLAMA 9/12/2013 9:43AM

    You really are an inspiration to us all, Chelsea! Stay blessed! I love you!

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