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    WENDYJM4   161,501
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31th August 2013

Friday, August 30, 2013

I thank you all from the bottom of my heart.

This is what I have found out before. Survival rate is a lot higher when you are doing home dialysis as it is not as harsh as the hospital system. Hospital system is 6 hours x 3 per week. But home dialysis is adjusted to what you need and when you need it. Plus H/D is adjustable for when you want to do it. Hospital setting is rigid.

The woman I spoke to yesterday is the head of the home dialysis training unit. So she should know what she is talking about. (Hopefully). She said there has been so many improvements in the last couple of years and they keep making them.

At this stage I feel that she is the one to trust.

As Aped said these cancers can spread even is they appear not to be growing. Not good option when you think about it.

I will be ringing the Pharmacist at the hospital on Monday morning to talk about the fluid tablets as I have lost 700 grams in 2 days. Feels good but I cannot keep this up without damaging me more.

I also need to be a lot more careful on my diet of what I can eat, I am pretty good but nowhere near perfect. My levels are too high usually a couple of times per week. This is mainly protein and sodium.

Meanwhile on the weekend I need to do a lot more researching on the Net.

I have also started going gluten free from advise on the Net. No I do not have Celiac Disease but I have inflammation and this can apparently help this. But also I notice if I have a sandwich it feels as though it sits in my stomach for a long time. So I am giving this 3 months to see if this has helped my blood tests or not and to see how I feel after this time. Funny thing is that I do not have to change many things as most of what I eat is gluten free anyway. The biggest change is the bread which I usually only eat a couple of times per week anyway.

Oh well I had better get myself organised as we are having a B-B-Q lunch for Father's Day today instead of tomorrow.

thank you once again for all of your advise, support, love and encouragement that you have all given me.

Have a great weekend.

love
Wendy


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  Member Comments About This Blog Post:

FATFREEMEBY23 9/3/2013 12:10AM

    A gluten free diet is wonderful because it encourages very healthy eating - and there are so many amazing cafes and recipes that are GF. Best of luck Wendy!

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ORCHIDLADY56 9/1/2013 9:07AM

    Hubby did home dialysis for a while and preferred it over the in center. More relaxing, felt better and a little leeway on the diet.
Good for you for checking things out.

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EFFIEANNIE 8/31/2013 9:12AM

    I love your interest in researching and finding the best options for you. So many people just sit back and do nothing. I am hoping for the best. Enjoy your bar-b-cue.

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GOANNA2 8/31/2013 7:26AM

    I know you will do very well at home Wendy.
I pray that you will manage everything and
that you will feel better soon. emoticon

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POPSY190 8/31/2013 3:29AM

    On the whole people do better when at home and where they feel they have some control over what is happening. So I agree that you are heading in the right direction there. I agree with MOTLEM that web advice needs to be backed up with information from other sources but I know that you will do all that's necessary to ensure you make an informed decision about diet. Take care.

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ARTJAC 8/31/2013 2:20AM

    emoticon

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RDEE22 8/31/2013 12:53AM

    You've got a plan. HD seems the way to go, you would be more in control of it all. emoticon

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FIFIFRIZZLE 8/30/2013 11:35PM

    My stepson did HD for many years, you can exercycle while you do it so it can be part of your fitness regime!
emoticon

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SUSIEPH1 8/30/2013 9:06PM

    Great you are going this way Wendy Love ..
emoticon emoticon emoticon Especially checking up on the dose of fluid tabs ..
A cealic based way of eating should be good ..
Thinking of you xx
Always in my heart.
Have a lovely day xxx
Much Love Susie xxx

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1CRAZYDOG 8/30/2013 8:58PM

    I would agree with you for sure that it seems the home dialysis would be more suitable for you.

Dietary changes -- well you can do it for sure! Look @ all you've done so far.

HUGS and know you're thought of and are in my prayers.

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MOTLEM 8/30/2013 8:58PM

    Just a word of warning too, Wendy .. never believe everything you read on the NET!

I also agree that home dialysis is a far better option than hospital attended. My cousin was on hospital attended, but long gone days now ... home is good. Stick with that.

emoticon

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FELINEBETTER 8/30/2013 8:50PM

    You've got everything under control and haven't lost your head. I'm glad to see that! You've come through so many things before this, Wendy - I have no doubt you will get to the bottom of this and make a wise decision for yourself.

Have a great BBQ! emoticon

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