Friday, August 30, 2013
Update on yesterday's blog.
I am confused and will now explain.
I stated the things he said to me, used words like maximum life expectancy of 5 years. Would not see 60. Discussed about option 2 and when he said up to 10 years I said that is a lot longer than the 5 years you just talked about and he said "yes".
This morning I rang and spoke to a women from the home dialysis centre in Adelaide, I have had a few phone calls from her and wanted to be kept in the loop.
Well I told what I had been told, she was really disgusted as the life expectancy has increased by many years now as there have been so many improvements. She said she would ring the Neph and sort all of this out. Rang me back after about 15 minutes and told me that the Neph stated that I have misunderstood him. It is not what he said but he also said that he feels terrible about this. I told her again what he said and she commented that she does believe me.
Why did he ring up and leave a message re the trial and he also rang the surgeon and spoke to him about trial and said the same thing as the 5 years.
She advised me to get the kidney out as this can spread at any time and I will have many years of life on dialysis.
I am really disappointed because I know what he said. I am not that dumb to misunderstand what he had said.
now it is all up in the air again and I really don't know what way to go.
I have even spoken to my local G.P. and told him what has happened and his answer was " Dr. Carroll does not usually make those mistakes" and he will wait for the letter from him, which takes approximately 2 weeks. This is not going to help me as I go to the surgeon in just over 1 week.
I admit now I am confused LOL.