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    WENDYJM4   162,592
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29th August 2013

Thursday, August 29, 2013

This is where I am at this moment, Was not the best of news and so hard to write.

As you know I travelled to Adelaide to see the Nephrologist, my visit unfortunately did not go well. I was given the facts and told to make up my mind what I want to do before I see the surgeon.

It is a high possibility that it is cancer (because I have had kidney cancer before).

Option 1. if I lose the kidney, I will end up on dialysis which I knew. But I have been given a life expectancy of no more than 5 years. He then asked me how old I am and I said 56, he commented I will be lucky to see 60. This is because I have had high blood pressure for a lot of years, it is only in the last 15 months that it has come down. Also I have had kidney disease for 29 years. Too much damage has been done.

Option 2. Kidney cancer is usually slow growing so do nothing and if I am lucky the kidney will last for 5 years then removal plus another 5 years. Total approx 10 years.

There is another option if they can get approval, there is a trial in Melbourne that looks promising and that may kill the cancer. But they do not know if I will get in. My Neph rang and left a message for the trial and he also rang the surgeon I see on the 10th September and told him the same thing and asked about the trial. So hopefully between the 2 of them something may happen.

Second or third option sounds the best, I will need to be checked all the time to see if this is growing but that is okay.

I was told to think very carefully as I am too young.

The way I am looking at it is that I keep the kidney I still can fight it. Take the kidney and unfortunately I wait to die. Not good. I have been fighting this for the last 29 years, I was told about 25 years ago I would be on dialysis within 5 years. I have been told that many times. This still gives me time to lose weight, get fitter and stronger and thus a better chance of survival.

No possible chance of getting a transplant.

cheers
Wendy
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  Member Comments About This Blog Post:

GEORGIAK25 8/30/2013 7:31AM

    I have read both blogs and feel sad that this so called professional was unprofessional.Praying you get into the trial and that someone will have a better answer than thew one given.

Hugs and I believe with your positive attitude you will overcome this. (Also maybe a kidney transplant????}

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POPSY190 8/30/2013 4:00AM

    Such an unwanted diagnosis and so many difficult decisions to make. I hope you get good news about the trial in Melbourne. Your reasoning is sound and you have your determination and proven success in improving your health in your favour. All the best from here and I hope you are able to give yourself plenty of time and care. emoticon

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ARTJAC 8/30/2013 12:53AM

    SO HARD TO TAKE ALL THIS IN

MY HUSBAND HAS JUST FOUND OUT HE HAS A TUMOR ON HIS KIDNEY SO I KNOW HOW HARD THIS IS FOR YOU WE GO TO SEE THE SPECIALIST ON MONDAY TO SEE WHAT CAN BE DONE emoticon

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MOTLEM 8/30/2013 12:07AM

    Phew! Hard pill for you and your family to swallow and digest, girlfriend!

Hard pill for me to get down too, as it's getting stuck in my craw! emoticon

Can only keep us posted and all your friends can only send all their love and light and prayers, and healthy vibes, and anything else that will help you in the future!

emoticon emoticon emoticon

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PHEBESS 8/29/2013 10:35PM

    So sad to hear this news! Big hugs to you!!!

But you've fought this and lived with it for a long time, and you can keep fighting, right? You are a strong woman, you have learned skills to help you lose more weight and gain more muscle and feel better, and you now have all of us on SP to cheer you on!

Plus who knows what kind of progress the medical field can make in 5 years? There will be better meds, maybe even a cure.

Lots of hugs to you, and keep strong! (Well, maybe cry for a bit, but then go back to being strong!)

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LIBBYFITZ 8/29/2013 7:39PM

    Oh Wendy I am so sorry! Am really hoping you can get into the trial! emoticon

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SUSIEPH1 8/29/2013 5:17PM

    Wendy Dearest, I can only add to what has been said.
Your are one determined, brave and strong lassie and I know you will make the right decision for you ..
As we talked earlier.
You need to keep the kidney as long as you can ..
Medicine is making leaps and bounds and the longer you can keep it, the more chance of a cure in the future ..
We both know that we need to make a determined effort to loose as much weight as we can ..
You have done wonderfully well and need to continue to make a determined effort to loose even more.
Know that I am always here for you ..
Much love as always .. Your second mum .. Susie emoticon emoticon


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FELINEBETTER 8/29/2013 3:45PM

    Wendy - first and foremost -- you are a warrior! You've been battling kidney disease for all these years already -- there's no giving up now! I wholeheartedly agree with you about your options, but will support whatever decision you come to. It doesn't get much more personal than this! You know what you want to do. Please know we are all here for you! emoticon

Comment edited on: 8/29/2013 3:45:28 PM

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EFFIEANNIE 8/29/2013 12:57PM

    Wow, hard news to digest. Hope you can get in the trial. God works in mysterious ways, a spontaneous cure is not impossible. Never give up hope. emoticon emoticon emoticon emoticon emoticon emoticon emoticon

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1CRAZYDOG 8/29/2013 11:17AM

    (((((((HUGS))))))) NONE of the options are good ones, obviously, but seems to me, as you say, options #2 and #3 seem more appropriate @ this time. At least with option #2 you're still biding time and hopefully new advances will be made. **SIGH** I am so sorry, Wendy. This just stinks.

Prayers and hope that you are eligible for the trial! My little sis has been told the same thing multiple times over the years . . . you have "X" # of years and you'll be on dialysis. Well, she's NOT, thank goodness.



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LIFE-FAITH 8/29/2013 9:19AM

    emoticon Wendy and continue to learn information about your options and take the process one step at a time. It cannot be easy - but you have been fighting a long time and continue to do what you need to do to be strong and resilient. I pray that you figure it out and that all goes well.
Continue to take care of you. Jean

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RDEE22 8/29/2013 7:48AM

    Wendy you are one strong lady. I admire you so much. Decisions, decisions, that you can only make with the guidance of your doctors. Just remember we are all here sending prayers and thoughts and vibes and light and all the rest.
Hugs coming your way!!!!! emoticon

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