Thursday, August 29, 2013
This is where I am at this moment, Was not the best of news and so hard to write.
As you know I travelled to Adelaide to see the Nephrologist, my visit unfortunately did not go well. I was given the facts and told to make up my mind what I want to do before I see the surgeon.
It is a high possibility that it is cancer (because I have had kidney cancer before).
Option 1. if I lose the kidney, I will end up on dialysis which I knew. But I have been given a life expectancy of no more than 5 years. He then asked me how old I am and I said 56, he commented I will be lucky to see 60. This is because I have had high blood pressure for a lot of years, it is only in the last 15 months that it has come down. Also I have had kidney disease for 29 years. Too much damage has been done.
Option 2. Kidney cancer is usually slow growing so do nothing and if I am lucky the kidney will last for 5 years then removal plus another 5 years. Total approx 10 years.
There is another option if they can get approval, there is a trial in Melbourne that looks promising and that may kill the cancer. But they do not know if I will get in. My Neph rang and left a message for the trial and he also rang the surgeon I see on the 10th September and told him the same thing and asked about the trial. So hopefully between the 2 of them something may happen.
Second or third option sounds the best, I will need to be checked all the time to see if this is growing but that is okay.
I was told to think very carefully as I am too young.
The way I am looking at it is that I keep the kidney I still can fight it. Take the kidney and unfortunately I wait to die. Not good. I have been fighting this for the last 29 years, I was told about 25 years ago I would be on dialysis within 5 years. I have been told that many times. This still gives me time to lose weight, get fitter and stronger and thus a better chance of survival.
No possible chance of getting a transplant.