Life with MS and taking Tysabri
Thursday, July 04, 2013
This is my first blog, and honestly, I don't really know what I'm doing. My life isn't that special, but I started thinking that maybe some of my experiences might be beneficial to someone (if anyone bothers to read this). My name is Ronda, and I am 55 years old. I was diagnosed with Multiple Sclerosis when I was 40 years old. I think I had it a lot longer, but it became quite evident at that time. I dragged (literally) myself along and continued teaching. Finally, in 2008, my symptoms kept getting worse until my foot dragged, causing me to fall and break my ankle in 3 places. That was the beginning of a major downward spiral for me. I had taken Avonex (every 5 days instead of 7) and Rebif since I was diagnosed. I am allergic to Copaxone. My regular neurologist didn't know what to do, so he sent me to a MS Center in Charlotte, NC. I was living in Gastonia, NC at that time. It that there that they started me on Tysabri in February, 2009. I was terrified when I read all of the literature. But, that is the best thing that ever happened to me. I had flu-like symptoms every time a took an injection for all of those years. It was horrible. I am doing so much better now with Tysabri. I don't mean to sound like an advertisement for them, but I know how scary the idea of changing medications is. The other life changing event for me occurred on May 20, 2013. I had been using MS as an excuse (and the depression that goes with MS) to do anything about my weight. All of a sudden, that day I decided that enough was enough. I did an Internet search on "free on-line weight loss programs." SparkPeople came up as one of the first hits. I absolutely love the program. It has changed my life and attitude. I realize that I've only used it since May 20, but I haven't missed a day. I was so excited to find a blog for MS patients.