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    PUGRAD1995   59,677
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Pain Specialist

Saturday, June 29, 2013

Well, the appointment with the pain specialist was a little disapointing. I'm hoping things improve.
We went over what had happened since surgery, he watched me walk, and pressed on points to determine pain. Then he started his recommendations. Physical therapy with an SI specialist (existing issue but not one that I have energy for right now), and then ordered a CT of my back. He's not sure he agrees with my back surgeon and he thinks it may be the knee causing the pain so he also ordered a TENS unit. So he wouldn't schedule my back injections ordered by my back doctor nor would he extend the presecription for my pain medicine until we get that resolved (I will have to go back to my GP for more).

I'm pretty disappointed with him-but hopefully he will change his mind when he sees the CT. IF not, I'm back to the GP asking for more help. This has been a 3 month nightmare!

TAke are everyone, Diana
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  Member Comments About This Blog Post:

JUST2MUCH2 7/7/2013 3:31PM

    I think the pain management doc is way off base if he won't give you pain meds until there is (hopefully) a permanent solution. To make you suffer is cruel.What is his reasoning for not providing pain relief? I'd find a new pain doc myself. Another thing to consider is having your spouse come to appts. w/you, if you are married or another family member.

My husband tries to come to all my neurology, surgeon & pain doc appts.--esp. pain doc to let him know I am really in acute pain.I guess there is a huge problem of people trying to get pain meds that don't need them.They must have a different effect as I surely am not getting happy on them & morphine just made me too sleepy so back on Norco even though it is not as effective.

Been at this pain thing about 7 YEARS now. Had to quit work.Only social life is doc appts. , physical therapy & "head" therapy--depression pretty severe.

In process of going to Mayo Clinic. One dx ix Complex Regional Pain Syndrome (also called RSD) but it affects both arms & hands, touching a piece of paper hurts. Have to wear several pairs of gloves. But also it is affecting my right foot (think pain signals originating from lower back issues)...

That has been successfully treated twice w/series of injections at surgery center. Was in a wheelchair; walking now.

But arms & hands getting worse (had surgery on both for carpel tunnel which helped some for 6 mos.).

Had surgery on right foot for plantar fasciitis which healed fine but stirred up my nerve pain impulses like crazy & caused the Complex Regional Pain Syndrome to start there.

Sorry for typos & errors. Writing on phone w/stylus as have gloves on; doesn't work too well.

But wanted to encourage you to find pain relief.Living w/chronic pain has caused me to get suicidal at times.Nothing to fool with.

Take care!

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JUST2MUCH2 7/7/2013 2:39PM

    I think the pain management doc is way off base if he won't give you pain meds until there is (hopefully) a permanent solution. To make you suffer is cruel.What is his reasoning for not providing pain relief? I'd find a new pain doc myself. Another thing to consider is having your spouse come to appts. w/you, if you are married or another family member.

My husband tries to come to all my neurology, surgeon & pain doc appts.--esp. pain doc to let him know I am really in acute pain.I guess there is a huge problem of people trying to get pain meds that don't need them.They must have a different effect as I surely am not getting happy on them & morphine just made me too sleepy so back on Norco even though it is not as effective.

Been at this pain thing about 7 YEARS now. Had to quit work.Only social life is doc appts. , physical therapy & "head" therapy--depression pretty severe.

In process of going to Mayo Clinic. One dx ix Complex Regional Pain Syndrome (also called RSD) but it affects both arms & hands, touching a piece of paper hurts. Have to wear several pairs of gloves. But also it is affecting my right foot (think pain signals originating from lower back issues)...

That has been successfully treated twice w/series of injections at surgery center. Was in a wheelchair; walking now.

But arms & hands getting worse (had surgery on both for carpel tunnel which helped some for 6 mos.).

Had surgery on right foot for plantar fasciitis which healed fine but stirred up my nerve pain impulses like crazy & caused the Complex Regional Pain Syndrome to start there.

Sorry for typos & errors. Writing on phone w/stylus as have gloves on; doesn't work too well.

But wanted to encourage you to find pain relief.Living w/chronic pain has caused me to get suicidal at times.Nothing to fool with.

Take care!

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THINTWIN2 6/30/2013 9:53AM

    That is so frustrating! I understand about having so many doctors and then they don't all agree, etc. I have learned I have to be my own advocate and be more assertive when necessary but it's hard to not push so hard they get mad. After all, they have the knowledge and experience ( or so they think). But it's your body and you know what is normal and you deserve to have the best care you can get. My pain doctor is the one I see the most and at first I didn't think I liked her but after some time, I learned to trust her and she sees that I am cooperative and appreciative and now we have a good relationship. Hopefully in time this guy will be a great help to you. My dr did things that frustrated me in the beginning but after she was satisfied and had her questions answered and got the results she needed from procedures, she then proceeded to other treatments. It's just not the quick fix I wanted either. Hopefully time will give you the answers you need. It's unfortunate he didn't give you the pain meds you need in the meantime though. My pain dr has been great about that. She knows I don't take them unless I have to but she keeps me supplied just in case I need them. Hang in there and let us know how things turn out. We care about you.

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KATHYJO56 6/30/2013 12:29AM

    Hang in there Diana. Not every doctor is the right doctor for every person. Hold on until after the CT scan and if you aren't satisfied, talk to your GP and see what further recommendations they can up with to help you. emoticon

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NANCYPAT1 6/29/2013 8:57PM

    Hang on - I am so sorry you are in so much pain. You do know that it doesn't hurt the pain specialist one bit - after all it isn't HIS body, is it? Will pray you get some relief soon.

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JULIACOLLINS62 6/29/2013 8:26PM

    Hang in there Diana. I feel like a ping pong in the doctor game. So sorry you have to go thru this. I will be praying the right path is found quickly and you have strength to travel the correct road to better days of less pain and more freedom. Sincerely, Julia

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ENUFF81020 6/29/2013 7:40PM

    Hi there,

i have always wished that my doctors could sit around a table together and discuss my needs and situation--of course, that has never happened when it involves so many different folks. I use my PCP as a clearing house for prescriptions and treatments and see him regularly to run my health care by his knowledge. He can, will, and has checked on things that didn't quite fit together. He also has pushed for better care or service for me at times with the right doc, pushing up an appointment or whatever. My case is different than yours because my pain doc is my helpful, go-to guy. He and I have been together for 15 years and he has been able to clear out a lot of the doc talk and get to the bottom of things.

You need my guy because he also has had chronic pain and issues and he goes those extra miles. I do know there is a connection between the knee and back because my back started after the RSD in my right knee tried to ruin my life. Then, things unfolded and went to the place where I now am. I am guessing that it may be your back guy who is your go-to guy. I hope that you can get what you need soon and that you can have some relief.

I'll keep you in my prayers, my friend.
Gentle hugs,
Sylvia

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CINDHOLM 6/29/2013 6:49PM

    So sorry for you pain.. I hope things work out for you and get some relief soon emoticon

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