Friday, June 21, 2013
I am not totally 100% back but good enough to travel to Florida tomorrow for Disney World. I got off the IV last night around 8pm and am feeling pretty good. According to my doctor it's the nature of my autoimmune disorders to have set backs. It's hard to wrap my head around that but will just have to accept that I will have good days and then could simply crash and burn and need IV. I think I will look on line for some support groups with similar disorders. We can at least support each other. For someone who has been healthy their whole life this is a bit hard to accept. But it is what it is and I will deal with it. I must say that my DH has been incredible supportive and says that we will just take it one day at a time and if I need to go to an ER while in Florida for IV we will just deal with it. My doctor is going to write an email explaining that I am her patient and what I have and what to put in the IV for me to carry with me just in case. Hopefully since I will be prepared, it won't happen.
I bet you all are getting tired of my continuing saga but it does help me so much to blog about all of this.
Thank you all again for your continued support and positive thoughts and prayers.
Have a terrific day.