150,000-199,999 SparkPoints 190,535

A change in chemo and starting radiation again

Tuesday, June 11, 2013

Today has been a very long day.

I went in for my chemo appointment, which was at 10:15, and after my blood was drawn for labs, my oncologist came into my room to talk to me. I knew that wasn't a good sign if he had to talk to me before my next scheduled appointment. Anyway, the x-rays I had of my shoulder confirmed bone mets there.

He is taking me off my current chemo, Gemzar, and putting me on Abraxane. I will start that new one in two weeks. Some of the side effects are the same as the Gemzar, but there is a strong possibility I will lose my hair on the Abraxane. That thought is something I'm having a hard time with now. I lost all my hair when I had chemo the first time, way back in 2003, and that was such a hard time for me. I still cry when I tell people about it, about how all of a sudden one day it just started coming out in clumps.

He also said he'd would be sending me to the radiation center. I made my appointment for the next chemo, and went out for lunch with my best friend Rhonda, then she took me for groceries.

I was really not expecting a call from the radiation center today; when I got home, I got into my pjs. Then at 2pm, the radiation center called, wanting to know if I could come in at 2:30, today! They were pretty booked up and if I couldn't get there today, it would delay the time I could start treatment. So, I called Rhonda and asked if she could take me, and she said she was on her way, so I called the center back and told them I was coming.

My radiation oncologist remembered me, he practically met me at the door, lol! I had the scans on CD ( good thing I stopped by the hospital to pick them before we went to lunch) and he took them and started looking at them before I started registration. One of the nurses told me he said I was one of his favorite patients, and when he talked to my doctor, he wanted to see me ASAP. I had my CT scan today, (not one where they are looking for problems, but to guide them in planning the treatment), and also two more tattoos, tiny little dots, one in the middle of my chest and one under my left arm which will help them line up the machine. I will start the radiation in about a week, and will get 10 treatments. The goal of the radiation is to control the pain.

This will be my 6th time going through radiation treatment since 2003.

I didn't get back home til almost 6pm. So glad to be back home, and glad I don't have to go anywhere tomorrow. I just need some time to decompress and process everything.
Share This Post With Others
Member Comments About This Blog Post
    I'm so sorry that you are having to go through this again
    Shari. I will be thinking of you and praying that all goes
    well for you. emoticon
    1715 days ago
    Keep good thoughts about your hair. I think that was one of the worse things I had to deal with when I had my treatment. The Dr said by the 3rd treatment it would start falling out, he was right. I don't remember what I was on, but it was a very rigid schedule, 4 times a week for chemo and my radiation was every day for just over a month.

    I have you in my prayers and I know you are a 'strong' person! You will get through this! emoticon
    1715 days ago
    Aw heck, I'd have gone to the center in my pj's! Glad you were able to get in so quickly so you can start treatment. You'll be in my thoughts.

    1716 days ago
    I'm sorry, but I'll pray you get some pain relief from the radiation.


    1716 days ago
  • ASTRA58
    I am so sorry you are going through this again. My thoughts are definitely with you and I will be wishing for your easy transition through the radiation (Mine was worse than the chemo) and your full recovery afterwards.

    Gentle hugs.
    1716 days ago
  • ENG_TV
    Keep the spirits up! My prayers are with you.
    1716 days ago
  • NOMIS1
    So sorry Shari. I will be thinking of you.
    1716 days ago
    You have had to deal with so much, and i am so sorry reading this.I hope that you will not lose your hair and that the radiation treatments will help control your pain.
    And Rhonda sounds like a fantastic friend who is there to help and support you.

    1716 days ago
    I will keep you in my prayers! emoticon
    1716 days ago
    Prayers all around.
    1716 days ago
  • WILDKAT781
    You are in my prayers my new friend! You are a very strong person and you can get through this. Try not to focus too much on negative of losing your hair - you will still be a beautiful lady without it emoticon
    1716 days ago
    We will just make You some wonderful Chemo cap and such! You will get through this again with flying colors! When You see Rhonda again give Her a (((HUG))) from Me! She is a true Friend! You are in My thoughts and Prayers!!! Love You!! ((HUGS))
    1716 days ago
    Thinking of you and keeping you in my prayers.
    1716 days ago
    Geez, I am so sorry to hear this news!!! It is a lot to process! You are in my thoughts and prayers!
    1716 days ago
    I hope you take the time grieve the knowlege of the change in treatment so you can find acceptance of the changes. I know losing your hair has been difficult in the past, so I hope it won't happen; but if it does, I hope you know you'll always be beautiful to us!

    Good to know the radiation oncologist not only remembers you, but has a place for you in his heart. Best wishes that with his help you'll have the chance to feel better in whatever ways possible.
    1716 days ago
    Sounds like you might have to get your pink wig out dear one. Know that we are all here for you in any way you might need us. We love you bunches and are praying fiercely for you!! XOXO Pat
    1716 days ago
    Oh darn! How frustrating and difficult for you. I am sending love and prayers, but wishing I could do more.

    1716 days ago
    I've got tears reading this. I am so sorry to see you suffer so much. You are in my prayers.
    1716 days ago
  • Add Your Comment to the Blog Post

    Log in to post a comment

    Disclaimer: Weight loss results will vary from person to person. No individual result should be seen as a typical result of following the SparkPeople program.