Wednesday, May 29, 2013
good morning, still tired. LOL but had a good sleep.
Now my news, Not good news. The diagnosis has been confirmed, I have got a renal cell carcinoma (kidney cancer) and my Nephrologist has already consulted with the Urology team at another hospital and they are going to take my kidney. This is the hospital that did the partial Nephrectomy 3 years ago. I was told I will end up on dialysis straight away.
I go down to see the Urology team on the 7th June and then go down again on the 17th to have my fistula raised up. then it will be after this that I will lose the kidney.
I hope it is not before my next grandchild is born in July. I would love to be here for that. (where I live).
What I have been told is that I will be in Adelaide on dialysis until I can get a spot back here at the hospital as it will take me some time to get over this operation. Then I will be going back to Adelaide to learn how to do home dialysis so that I can do this at home.
Doing home dialysis gives you so much more freedom as you can work around anything that you have planned. Hospital system, you get the times and this is what happens.
So by the sounds of this, this will take many months of running around until it all gets sorted out.
Now I have to get my sons in to rip up carpet and lay tiles and paint the room that I will be using at some point. Going to be busy.
Scary stuff. But I will be okay eventually.