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Update on my niece - unexpected news

Tuesday, May 14, 2013

Today we were told some "good news"; Amber will be moved to a physical rehab center, in the same hospital on the same floor, where she will begin rebuilding her muscles. Right now she can not open a pudding cup or stand on her own without help . They hope to help her to be able to toilet on her own as well and be able to shower; she has not had a shower in a long long time!! They told us too, that if in 6 months she has NO drinks she MAY qualify for a liver transplant. If she does have a drink she will die. She could also end up back in the regular hospital for just a simple kind of infection like UTI or anything like that. She remains extremely fragile and frail and in no way is she out of the woods, but doing better. Less confused and able to converse with more and more cognitive ability. She has been brought down to a 50% mortality rate from an 80%. All I can say is that this doesn't make a lot of sense to me. The last several days the liver doctor had been talking like this was a done deal. I don't know if the liver doctor doesn't what in the heck he is talking about or if there is something that someone has been missing when they've talked to the doctors or what?! Yesterday my BIL and FIL both talked like she had sealed her fate and that they were going to be burying her before long. I don't know, I guess I'm too much of a math and science and factual kind of person to understand this. I'm just glad that she really is getting better and that there is hope. I just REALLY hope that she doesn't ever take a drink again!!! This is going to be really hard for as everyone around her drinks. Her parents always have alcohol whenever they have a party or social gathering. I'm just hoping and keeping my fingers crossed for the best. emoticon

Member Comments About This Blog Post:

    I am sorry your niece isn't doing too well but improvements are definitely a good thing. I know the situation isn't good but hopefully, the improvements will keep coming.
I'm sorry your BIL and FIL seem like they are giving up hope. Maybe deep down, they haven't. Sometimes, people talk like that to prepare for the worst outcome.

Alcoholism is a very horrible disease and addiction. People take drinking so lightly
& it's very serious. I hope for the best possible outcome and in that case, I also hope your niece will find new friends who don't drink or at least who will be supportive and not drink around her. As for the family, I hope they take this as a wake up call and think twice before serving alcohol. Alcohol is not what makes gatherings fun. People and music and laughter makes things fun but it's not as black and white and as simple as that, I know.

I really do hope for the best possible outcome and my fingers are crossed for your family.

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RFJSJ50 5/16/2013 1:25PM

    The odds are improving - there is always hope. Maybe this is a wake-up call for all those around your niece to think about how much alcohol they consume also. God does work in his own way.

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BARBIE176 5/15/2013 10:35PM

    This definitely sounds like good news although 50% is still not very good odds. The power of prayer however is amazing. I will be continuing my prayers for her. Definitely praying that she gets the family support she will be needing.

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MELAMA210 5/14/2013 10:30PM

    Prayers for you and your family and that your niece continue to improves emoticon

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CHUBRUB3 5/14/2013 3:34PM

    Hugs Cathy.
Prayers for you and your family.

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CATHYGETSFIT 5/14/2013 1:36PM

    This is definitely good news. Like you said though JUSTME29, she is far from out of the woods! 50% chance is still fairly high odds. Yes, needing a transplant is scary stuff for sure! There is still a 10% - 20% chance that even then the transplant will not take. I hope that those around her do indeed make changes to their lifestyle for her benefit.

Yes, I think that being able to use the toilet and shower on your own will definitely help her improve as well as being able to feed herself. I too hope they bring in AA or an addiction counselor for her too.

Please do continue to keep her in your thoughts and prayers because she is definitely not in the clear yet.

CHALLENGER75 - Yeah, the liver can sometimes regenerate and I think they are hoping / thinking it's going to regenerate enough for her to use it until she can hopefully get a transplant. That is, as long as she stays away from the alcohol. I just hope / pray that she can stay away from the alcohol!

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CHALLENGER15 5/14/2013 1:00PM

    The liver regenerates sometimes, doesn't it? Not sure....

It is nice that there is improvement, and I do so hope she can leave the alcohol alone. Some people do indeed do that, just as some smokers do indeed stop.

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WOUBBIE 5/14/2013 10:51AM


Hopefully her health continues to improve and her will to live overcomes her need to drink.

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BIGPAWSUP 5/14/2013 9:28AM

    Sounds like things are slowly moving in a positive direction. I will just keep hoping and praying thing continue to get better.

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JUSTME29 5/14/2013 8:54AM

    I don't want to bring a gray cloud, but 50% is still pretty low odds. Maybe it's easier for them to plan for the worst and hope for the best? I know that some doctors do this too - they give the patients worst case scenario news and then when it doesn't happen everyone is happy but if it does happen it's not totally unexpected. The "liver guy" is looking at one piece of the puzzle and giving you the news from that front, the other doctors are giving you news from other areas. Needing a tansplant in six months is pretty scary stuff too, and everyone that cares for her will have to make some changes to their lifestyles as well it sound like.

That's not supposed to be all doom and gloom. I am very happy for your good news, and it is great news. Being able to shower and toilet on her own, not to mention feeding herself and moving even a tiny bit will make such a difference in your niece's outlook. I hope that they will bring in AA or an addiction counselor too. I'm so glad to hear that she is improving.

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BEFIT016 5/14/2013 6:15AM

    'Divine' intervention? Her survival instinct kicked in? Who knows but that is good news. I hope she gets the family support that she will DEFINITELY need.

My prayers & thoughts are still with her.

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