We woke up Saturday morning to find out that my niece, hubby's oldest niece, had been very jaundiced and fell into her bathtub on Friday and knocked the faucet off the wall with her head, fainted a few times and could not walk. Her husband carried her to the truck and took her to the ER. Her blood pressure was critically low. (71/41) She was put in the ICU and they were saying Saturday morning that her kidneys and liver may be failing completely. She has had several blood transfusions and ran a fever Friday night. They gave her an 80% chance of not making it through. Then later that day they said her liver and kidneys had failed, they gave her 8 blood transfusions, IV's in both arm and IV ports in her groin area with multiple med's being pumped into her, oxygen on her yellow face, slurred speech, blood pressure dangerously low and eyes struggling to focus. The docs told her husband that if she makes it through the weekend there may be a chance she will make it, but they caution she can turn on a dime.
Early Sunday morning during quiet time sh ripped out her feeding tube and took off her oxygen mask. They had to put the feeding tube back in and were told that she couldn't be left alone anymore. Things looked a little more hopeful as she was moved from 80% mortality to 50% mortality. She was taken off of blood pressure med's because she was able to keep it up on her own. She wanted some juice and was given some. She was able to be moved from her bed into a chair beside her bed while they changed her bedding.
Early Monday morning Amber's breathing became labored, she had edema and possible pneumonia. Her kidney's had not improved and discussed whether to do dialysis or not. Liver still wasn't functioning. Her body was still trying to get rid of the toxins that had built up. They brought her mortality rate back up to 80%. They removed one IV port this evening and she removed the other one.
Tuesday, there was a microscopic improvement in her lungs. The liver and kidneys still aren't functioning. Breathing is still very labored. They were giving her Valium to keep her calm. She would panic when she would get short of breath. At this point, they were still detoxing her and everyone thought she would recover, albeit a long road. Yes, this was all caused from alcohol abuse.
Wednesday, her mom said she seemed different. She seemed like she had given up. Her mom was going to paint her nails in hopes that it would help her feel a bit better. The kidney specialist said that her kidneys were working a tad bit better and they took her off the kidney IV. They said that they would not have to perform dialysis for the time being. The liver doctor said that he still didn't know the extent of damage that had been done to her liver but he did know that the damage was extensive and if the liver does start to recover it will not be very much and she will only be a little better than she was right then. He talked to the family about what she would want in the event she doesn't make it. The liver doctor also said that even though she was conscious and responsive with simple yes / no answers, the toxins in her blood were prohibiting her from being cognitive and and therefore does not know or understand what is happening and that is why she cannot carry on a conversation and stairs blankly most of the time.
Thursday, she seemed more alert. Found out though, that her liver was still degenerating. We talked to my BIL (Hubby's brother that he's closest to in age) and the liver doctor painted a pretty bleak picture!
Friday, they talked to Amber's liver doctor this morning. He said her liver was more enlarged now then has been in recent days. And it was caused by the continuous deterioration of her liver. He talked to my SIL again about talking to Amber and her husband about what we wanted to do if things were to go bad. He didn't have a lot of encouraging things to say unfortunately. She is however in very good spirits today, she got to eat real food tonight, and she's more conscious and cognitive than she has been in the last few days. She actually spoke a little bit this afternoon to my SIL in short sentences three or four words long. Her moments of being lucid are short but more often today than in the last few days. I was told that you could tell by looking at her face she was really enjoying those green beans she got to eat today. Within a 2 hour window they took her out of bed and sat her in a chair and back into bed, gave her some dinner, removed the feeding tube, removed some IV's, and said they would be probably be moving her to another room. At 2 A.M. her husband, who is sleeping in the room with her and going to work in the morning from the hospital, texted her room number as they had just moved her. Her poor husband is starting to show the stress and strain of all of this...poor guy!! On a good note she did talk yesterday and seemed more alert, but her ammonia levels were higher than ever and her liver was continuing to swell.
I've known Amber since she was 10 years old. Although, I can't say that I ever really knew Amber. I do know that she was never confident. She wasn't overweight or ugly or anything but she just had this kind of inferiority complex. She liked to be the center of attention. Whenever my BIL and SIL would have parties she would most likely be there making sure that everyone had a drink. She always went for the hard stuff first. My BIL makes his own beer and had to put a lock on it because she and her friends were always coming over and drinking all of his beer. A few years ago she had a pancreatic attack from drinking too much alcohol. Her mom and dad should have talked to her then about drinking too much. They should have talked to her about this and asked how much she was drinking. They should have insisted she get help! Now, it's too late. Unless a miracle happens the outcome of this isn't good. My BIL and SIL are going to be burying their daughter! Her husband of just 7 months is going to have to bury his wife! I don't blame him really. He's only 28 years old and she hid the alcohol from him. He found alcohol stashed in tons of places. I'm mad because this is all so senseless! There are people whom are born with disabilities and will fight their whole lives to live and to live the best life they could possibly have. Whereas Amber, whom is only 29 years old is going to die without having ever done anything with her life. I'm mad because I feel like my BIL and SIL failed her. She is my SIL's daughter from her first marriage but her biological dad was not much of a dad and my BIL was really more her dad than anything else. He gave her away at her wedding. I feel like my SIL was more of an enabler to her than anything. She let her start drinking while she was still in high school. Alcohol abuse runs in their family. No one was an alcoholic but they did drink quite a bit. I'm sad because of all the things this girl is never going to experience. I'm sad for her brother that will be graduating this month. I'm sad for her little sister whom is still in grade school and I'm sure looked up to her big sister. I am sad for her husband. They've only been married for 7 months! I'm still sad of course, that my SIL and BIL are having to go through this.
This whole just is so utterly and completely senseless!!! I keep going between mad and sad. I can't stop thinking about the whole thing.