Wednesday, May 08, 2013
Anyone else on here with FM? If so, do you have any strategies for overcoming the pain and exhaustion so that you are able to work out? I've tried forcing myself, but most mornings it just doesn't happen and in the evening, after work, I'm usually worse. Thanks.
Member Comments About This Blog Post
We (doctors and I) are thinking that I have fibromyalgia, but since I haven't known about it for long and have not "officially" been diagnosed, I'm afraid I have no advice or recommendations for you. I just saw that this was the subject of your blog and decided to stop in and see what others were saying. I hope you find a way to deal with the pain so that you're finally able to workout.
1263 days ago
Thank you all for the wonderful (and quick) responses!
1264 days ago
I have fibro and life is hell!!!!!!!!!!!!!!!!!!!!!!! I find working on a stationary bike helps when I can do it and I have aero pilates and I do that when I can. I feel like a barometer when the low pressure systems come in, rain, humidity, snow, cold I'm in severe pain. I wear sunglasses constantly because my eyes are so sensitive, my neck gets raw from trying to deal with the pain with warm neck wraps, icy hot, motrin and tylenol 3 to take the edge off.
Your totally exhausted, frustrated cause you can't do the simple things in life, I tried Cymbalta and it made things so much worse , my MIL tried Cymbalta and had a seizure it's not a good med to be on, none of them are for fibro once you read the symptoms who the heck wants cancer? I'd rather deal with the pain then having a side effect of cancer or death.
I wish you well, it's a tough path we're on I'd like to add you as a friend , feel free to vent there are others out there just like you!
1264 days ago
I don't have it myself, but my 17 year old daughter has juvenile fibromyalgia and it's a struggle a lot of days. She's on Cymbalta and Savella and various other meds and they work for a while and then seem to stop. She's young so she does have that going for her but between the fibro and other conditions she has it amazes me she is able to get through school and full time work and still have a smile on her face most days. Hang in there!
1264 days ago
I have quite a number of things that have helped me over the course of 40 years of having FMS.
A number of years ago, I found a Chiropractor that uses a Drop Table and the Activator methods. I hadn't slept through the night for a good 25 years. He started treating me and of course it began with 3 times a week for the first 2 weeks then gradually cut down to once a month. Anyway, he used the drop table each time to put everything in the was being pulled out. Then he worked on all the pressure points. At first just lightly touching me brought the tears but I knew I had to go through with it to get relief. After a few weeks, I could tell the pain wasn't near as bad. He was pushing the pain away from the surface of my body. After about 4 weeks, I also began sleeping through the night! If any of you can afford it or have Ins. and can go to one like him I highly reccomend it. He also reccomended massage therapy but said no Deep Tissue massage as it would create more damage. I couldn't afford to go so never got to find out. To find a Chiropractor like him, start calling the different offices in the phone book or go on line. He also had a movable table that he moved in different directions and it loosened up my low back where I had, had surgery and was all jammed up. The Chiropractor Office here that has the drop table is I believe a chain and its called Simpson Chiropractic and Sports Medicine if that is any help. My old one is Dr's. Marty & Sharon Thornton in Independance, Oregon.
I'll send the rest in a Spark Mail plus there are a couple of great FMS Teams on here.
What foods should fibromyalgia patients avoid?
Sue Ingebretson CHHC
An author, health coach, and former fibromyalgia patient, Sue helps others find healing solutions that work.
That's a wonderful question. Nutrition is one of my favorite topics and I get all excited to discuss the healing potential of foods. That's something that I didn't understand when I was very sick. I had no idea that what I ate really made any difference.
There are some general things that most of us should avoid, more specific things that people with fibromyalgia should avoid, and then even more specific things that depend on the individual. We're each different and have different nutritional needs.
Most people know they should avoid what is often called the White Blight - white sugar, white flour, white rice, white potatoes, etc. These foods are highly processed making them nutrient deficient and hard to digest.
In general, it's best to avoid processed/packaged foods and those with a lot of food additives/preservatives/dyes, etc. When you look at a package label and see a whole lot of ingredients - in general - there's a good chance that that product doesn't provide much in the way of nutrition. Whole, healthy, nutrient-dense foods are always a better choice.
There are two food additives in particular that appear to have a connection to worsening fibromyalgia symptoms — MSG and artificial sweeteners. It takes a bit of food detective work to make sure that the foods and products you use do not contain these additives. Artificial sweeteners can be found in sodas, salad dressings, baked goods, cereals, etc. MSG is also found in many products that you may not suspect. It's used as a preservative and taste enhancement in soy sauce, salad dressings, soups, preserved meats, snack foods, and many other items.
I hope this helps as a good place to start your healthier eating journey. Let me know if you have any other questions
Fibromyalgia: It's Real It's Manageable What You Can…
1264 days ago
A good friend of mine has fibromyalgia, and she tends to take it day by day depending on how she's feeling. You might want to check out whether there are any Spark teams for people with fibromyalgia via the "Community" tab at the top of the page. Hopefully you could use those groups to tap into some good advice and support there. I hope it helps!
1264 days ago
Disclaimer: Weight loss results will vary from person to person. No individual result should be seen as a typical result of following the SparkPeople program.
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