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Tuesday, May 07, 2013

I dropped by my local endro and got 95 percent of my thryoid tests. He wants to see me next week. Then called the endro at Duke. now she wants to change my meds again. In Nov she started me on 125 mcgs of levrothryoxine. I stayed on it for 90 days and then she changed it on January 26 incfeaseing the dosage to 175 mcgs. it was then to strong and she reducted it to 150 mcgs. Now she wants to put me back on 125 mcgs as my numbers are really really low ( 0.105 on a scale of 0.45 to 4.5. this is the same doctor who told me in March she believed I was having issues with this drug and yet wanted to try it one more time. This time I put my foot down with the nurse and asked if we could try another drug since this one obviously is not working. I gained 6 lbs in one weight, and 24 overall since she increased my dosage in Nov. I can't live like this.

there is still the issue of my pitutary which she really does not want to address even thought the problem exists.

Somewhere out there, only God knows where thought, is the endrocrinolgoist, who truly can help me. Just tied of dealing with the ones who say they are super in their field and actually know squat. that is what I like about my local guy, he loves to explore and admit he does not know how to treat something and asks for help which is where the Duke doctor came in. He was keeping my weight in check even though we would have to play with numbers each month
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    All this must be very frustrating for you.
    1777 days ago
    I can't stand when a MD won't listen. Who knows our bodies better than us? I take .175 mcm and my new endo thinks it is too high, but my levels in my blood are fine. He thiks I am probably taking it at the wrong time of day and with food. He wants to see if me changing when I take will help me lower it. I've never gained that much weight on it tho. Everyone thinks the docs at Duke are perfect, but they are all just doctors; just humans and they don't call it practicing medicine for nothing! Good luck with it all!
    1777 days ago
    I had my thyroid removed 13 years ago. I find that my weight really affects my thyroid levels. I started at .175 mcg, and am now down to .125. If my weight fluctuates more than a few pounds, I can feel it.
    1777 days ago
    Here's hoping wisdom will lead the way to finding out what's what...
    1777 days ago
    How hugely frustrating! I hope you find that wonderful endocrinologist.
    1777 days ago
    I hope you get it worked out. I ended up giving up on my doctors and couldn't even talk reason into switching to another med. I quit taking meds altogether in 2009 for my hypothyroidism. oh, how fun it is. I despise doctors and pharmaceutical companies.

    I'm keeping you in my thoughts and prayers. ;)
    1777 days ago
    I hope that you find someone who can help you! emoticon emoticon
    1777 days ago
    Have they considered Armour thyroid? It is more natural then the chemical, levrothryoxine?
    1777 days ago
    Pam, I hope this get taken care of soon.
    1777 days ago
    Sorry about the doctor and the not listening with your meds, but I also like what you said about your in town doctor wish they could all be that honest and then ask for help so we wouldn't have to be ginipigs (sorry emoticon ) But hope it gets better.

    P.S. I haven't been feeling right in awhile, but no one listens It always comes back to losing weight, but even when I did I still felt , but I figure things will just go? emoticon emoticon emoticon
    1777 days ago
    You are in such a tough spot! Good luck getting this all straightened out! You need a good doctor who you like!
    1777 days ago
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