Saturday, May 04, 2013
So both of my doctors came to visit yesterday and decided to take me off the IV now that I have my food prepared and diarrhea has stopped. So woo hoo, freedom! I slept well despite the fact that the doctors confessed to me that I was a hard case and they really don't have a diagnosis yet. They really don't know why I am not absorbing foods. The thing they are most concerned with is the low level of Vitamin B. Normally it should be 170 and mine is .2. That is way low. So that is why they have been giving me a B shot (ouch!) every other day. but now they are putting me on these special pre digested drinks with enough B so I won't have to have the shots. I will drink 3 of these a day as well as eat Carmen's meals. Carmen delivered enough meals for a week and will deliver more. The doctor instructed Carmen the cook to make my meals without nightshade veggies, no dairy, no gluten, no sugar (agave is okay) and no real spicy anything...so no garlic, onion, etc. So just imagine trying to make things with those rules! What else is there? Anyway I had my first meal from her last night. Chicken veggie soup and tapioca pudding made with almond milk. Everything was delicious. She was also instructed to make the meals at least 1800 calories and the 3 drinks will add more calories. So I should be able to put some weight back on.
The other thing that they want to treat is that my brain is not making enough lithium. Not sure if that is a symptom of the lack of Vit B or not but I know my brain is off as I am really fighting hard to not be depressed. I don't want to go on antidepressants so I am trying to fight it by just positive thinking. I will admit it's hard when you are worried and have no diagnosis. They want me to see a "head doc" who might prescribe lithium.
And the final news is that the GI doctor wants me to have a colonoscopy. He is going to try and schedule for Tuesday. More fun. This will be like my 4th one and I doubt they will find anything there but will do it just to eliminate things.
So that is my update for today.
I will try and catch the Kentucky derby today. I always think of my Grandfather today as he was a racehorse owner and had a stable of like 12 horses. It was fun to go to the races when his horses were running. He has some very good ones as well.
Hope all my sparks buddies have a great day.