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    ALASKANMOMOF2   35,502
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Choices. Oh, so many glorious choices!

Friday, May 03, 2013

I have the glorious responsibility of raising a child with multiple needs. They're mild needs, but they're still needs. When 2000 6th graders will be creating a wall of sound using their orchestra and band instruments, and my overly sensitive child dealing with a sinus headache is supposed to be right in the middle, I have a choice to make. I started by talking with the resource room person, made, late, a note to attempt to explain, attempted to take the child to the building against her will...

I talked to my husband and asked, "Am I shooting myself in the foot?" There was no hesitation before he responded, "yes." We went on a road trip instead.

I faced a choice earlier in the spring of continuing to let my eyesight slip while attempting to find a new eye doctor office, or follow my loyalty back to the previous office. I followed. The office is now closed, less than 2 months after I paid for new glasses. What made it worse was that when I picked them up and put them on, I almost passed out. The prescription was flat out wrong. I was given no information at either of those two appointments that the office would be closing mid-April. Tonight, I had to drive over 30 minutes with a headache and extra blurriness to pick up glasses that could not help with the pain already going on. Half an hour later they did, but certainly not at first! :p If nothing else, it gave the three of us the chance to look around a different grocery store, find some new cool things, and then drive back. We attempted to go by the concert again. No place to park. We tried. Kindof.

Back to the concert. Her grade will not be what I want it to be, and that really is okay with me. Being part of a wall of sound is not on her "this could be interesting" list. Getting a Lego set that has a recycling bin that's on fire, though. Now that's interesting. www.amazon.com/LEGO-6021
697-City-Motorcycle-60000/
dp/B00A852QE0/ref=sr_1_1?i
e=UTF8&qid=1367565565&sr=8
-1&keywords=lego+motorcycle+fire


I have to be the mom I am to the kids I have. That brings about some smiles, some laughs, some guffaws, some fears, some tears, and many moments of frustration. I'm proud of who they are becoming, and will continue trying to be the best mom and advocate for each of them.
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  Member Comments About This Blog Post:

FIMBRETHIL 5/5/2013 12:39AM

    I have been raising four special needs kids - one has reactive attachment disorder, two have aspergers, one a learning disability. I can tell you that raising them has been totally exhausting and exasperating and many times I have worried, fretted and despaired. But, I also have persevered, believing God put them in my life because I need them and they need me and that we are all diamonds in the rough who buff each other out. I can tell you, now that they are 21, 19, 18 and 16 that they are all reaching levels of maturity and functioning that I didn't think possible. You keep going, Momof2, making the best choices you can and the time and trust God to take care of the rest!

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WEARINGTHIN 5/3/2013 6:17AM

    Being a caregiver does require sacrifices. I know. I care for my wife. I used to work with families of special needs kids. It's hard not to feel for those parents and what they go through. I know you said "mild needs", but still, it can be difficult. Best wishes to you, and always remember to take and schedule time for yourself and for your other family members. Glenn

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