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    LOSN_W8   1,212
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My 16 Year Old and Kidney Failure!!!

Thursday, April 18, 2013

I debated whether or not to post this. I decided to post it because at this very moment I can talk about it and I really need the encouragement. My 16 year old daughter is having kidney failure. 3 years ago she was diagnosed with Hodgkin's Lymphoma. She had treatment and has been in remission for 19 months. The chemotherapy is a result of her having Fanconi Syndrome. She was suppose to recover from it, but she never did.

We took her to the doctor on Tuesday and they broke the news that her kidneys are failing. She will be on Dialysis 3 days a week. She is also being placed on the Kidney transplant waiting list.

I am devastated! Yes, I knew it was a "slight" chance that this would happen, but all I was focusing on back then is saving my (then 13 year old) child's life. You do what you have to do. We were told that the chances were slim, so we went with it. Would I take that chance if I had it to do all over again, YES I would! My point is, now that those slight chances has turned into 100%, I am still emotionally drained.

I find myself eating out of control for the past 2 days. I am still exercising because I feel so much better whenever I do. I feel horrible because it took me years to admit that I am an emotional eater and now here I am, eating to cover up my emotions! I feel better after I stuff my face with bad stuff. I am sorry, but I am being honest here.

Please pray for my daughter and our family. She is so strong and I know that she will make it through this. The thought of watching my child go through, once again, a very bad time in her teenage life, is killing me softly (God give me strength).

There is a site that you can visit for updates and also the ins and outs of her cancer journey. I have not been there in a while and I am definitely hesitating about going back there. I just wanted to share this information with you first. Now I am headed over there for the first time in a very long time to tell all of the friends that has been following her, the bad news.

Here is the site: http://www.caringbridge.org/vi
sit/davondrajames
Some of my SP friends may already have this site info, so I am sharing it with my new SP friends as well. Please be patient with me while I update the site. Like I said before, I have not been there since about September 2012.

Thanks in advance for the prayers and support.

Sincerely,
Veronica
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  Member Comments About This Blog Post:

SAL1512 10/21/2013 8:43PM

    So sorry that this happened to your family. I will never forget when we were told our son had a bad heart. It prevented the back surgery he needed. There was also nothing they could do about his heart. At least you have had some alternatives presented to you. I do not know what has happened since you posted this, but I hope it is good.
Sally emoticon

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NAPPIGURL 4/21/2013 10:02AM

    This is definitely a hard time for you and your family. Illness is always devastating, but especially when it affects someone so young. My mom's kidneys failed over twelve years ago and it was a difficult transition. Just be sure you are informed about the pros and cons of each type of dialysis treatment. Peritoneal will give Dee more freedom because she'll be able to do it on her own (& can even get a machine that does it overnight while she sleeps so it becomes less of a schedule dominator. But you have to be very careful to prevent contamination of the access site. My mom started out on peritoneal dialysis (home) and experienced some very painful infections that she had to be hospitalized for. Hemodialysis is a major time drag, but it can be less stressful because you're going to a center where trained professionals and she won't have to worry about doing the dialysis herself. It's still important to make sure you know what's going on though, and that the staff is competent in performing their duties and properly monitoring your daughter throughout the process to make sure her blood pressure/other vitals are where they're supposed to be.

It's a lot to take in with seemingly insufficient time to process it, but you have your sparkfamily praying for you along the way. Keep your spirits up and stay strong! You will make it through this!
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FITWITHIN 4/20/2013 9:55PM

    What a lot to be dealing with a such a young age. My heart goes out to you and your family. I will be praying for your daughter and the family. God Bless!

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D-ABBY 4/20/2013 1:16PM

    I am praying for you and your family as you minister healing to your daughter through loving support and doing all you can for her in her need. We are here for you and we / I understand stress-emotional eating. I also know that you will need all your strength in the days to come, so that means you must practice self-control in self-care to protect your health and strength in this time of your life. Nothing shall be impossible with God. This is not the end of anything. It is the beginning of a new season of trusting in God and watching to see what He will do. I will be watching with you.
emoticon emoticon Darlene emoticon emoticon

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LINDAF49 4/19/2013 11:53PM

    Gentle hugs for you and DD...have placed you and DD on my prayer list...will check caringbridge site in the next couple of days...
Be strong of of good courage ...Joshua 1:9 and much of the book of Joshua is about being strong ...I pray this for you.
You struggle with emotional eating...day by day, work at taking care of you so you are strong physically for your daughter and show her the example of that persistence in caring... be kind and gentle to yourself and fill your days and fridge with good things for you and her both!!! talk talk talk with her and with us...let us walk beside you and hold you up in prayer and in caring.
More hugs....Linda in Washington

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NEVERORNOW 4/19/2013 12:21PM

    Veronica, As a mom who has watched a daughter go thru a lot of illness over the years, my heart goes out to you and your family. I'm praying. emoticon

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MSMAKEOVER 4/18/2013 9:18PM

    Peace and Blessings to you and your family Veronica. Prayer is on the way.... emoticon

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HDHAWK 4/18/2013 8:40PM

    I'm so sorry you and your family are going through this. It hurts so much to see our children in pain. I'll be following along and sending prayers your way. emoticon

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DAWNSJOURNEY 4/18/2013 8:28PM

    As one Mother to another I can not even begin to feel your pain. I do know a mother's love for her child and what entails ..so I might have a little insight there. My thoughts are with your and your family .. I know how strong you must be for your daughter even though you hurt inside.. That is what Mothers do.. You are Strong for her.. I hope a transplant is available soon.

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WALKERRN1 4/18/2013 8:13PM

    I am so sorry your family is having to deal with this. I will be praying for peace, comfort, and that they are able to find a match and get her transplant quickly. emoticon

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STEVIEBEE569 4/18/2013 8:04PM

    I pray God will give you and your daughter strength, peace, comfort and healing! Continue to trust He will do this and may His angels guard you both!



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FELINEBETTER 4/18/2013 7:03PM

    My heart and thoughts are with you and your family. I'm sending thoughts of strength & healing your way. Stay positive and encourage all of your family to get tested for a transplant match.

God Bless You.

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MOTTAMAMALOU 4/18/2013 6:43PM

    My heart goes out to your daughter and your family. I will pray that she goes through this ordeal with little discomfort and lots of love. She is a beautiful girl and you must be so proud of her.
I'm an old dialysis nurse from way back...peritoneal and not hemo.
It's a good thing that you are able to write about this ordeal so that it may help you feel a little better.
Please keep us updated with her progress. We care.

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Comment edited on: 4/18/2013 6:44:11 PM

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