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Latest test results/pancreas issues??

Thursday, April 04, 2013

So after being told to eat whatever I wanted for an entire week (which actually caused me to "binge"(?) more!), I finally have the test results. Celiac = negative. I figured that would be the case, it runs in my family, yes, but it doesn't develop until you're in your 40s. I have time. But I'm still not eating gluten. I feel better not eating gluten. That isn't changing (except when I binge...). BUT, my stool sample showed that I did have steatorrhea (aka, fat in my stool, causing it to float). The gastroenterologist asked if my stool has ever floated before (symptomatic of Celiac), and I simply told him I've never observed my poo before. But during the week of eating too many bad foods, 2 or 3 times, my stool was floating. Sometimes it followed gluten, sometimes it didn't. It varied a lot. So did my stomach pain. Sometimes it was unbearable, sometimes it was tolerable, sometimes it wasn't even there. It varied a lot. But what else did my stool show? That I'm insufficient in pancreatic elastase 1. No, I can't find much about it on google, yes I can find a lot about exocrine pancreatic insufficiency (which I would be diagnosed with in the end). So next week I'm giving another stool sample and they're doing more detailed tests to confirm that I don't have a lot of this enzyme. I'm not really sure what it means yet. I can only assume what I find based on exocrine pancreatic insufficiency, which is most commonly defined as being insufficient in amylase or lipase. Maybe they're going to test for that, I don't know, they didn't really tell me a lot on the phone. Maybe this is going to mean a low fat diet, maybe this is going to mean no alcohol (can I really give up wine? NO!!), maybe this doesn't mean anything (which obviously it does...). So I really don't know. I'll see what the next stool sample test shows next week...

I'm OFF of the medicine I was on to prevent me from fainting that almost caused me to faint. That's a huge deal. I have energy again! But my tunnel vision is back. I haven't had it for a few months, but it comes and goes. It's coming right now. Hopefully it won't get really bad again, I can deal with once or twice a day, but all the time is just annoying.

As far as weight loss, working on it. I'm maintaining around 145-155 (depending on how bloated I am after eating gluten/dairy/high fat foods now??). I'm meeting a personal trainer once a week. I LOVE the stair master. I'm starting a 10K training program OUTSIDE this coming weekend!!! I'm really excited about that. I'm meeting everyone tomorrow at a wine bar. How exciting!

That's about it. Other than that, life is pretty much good (except when I partially dissociate because I'm so ashamed of the "binge" that I do... I promise I'll bring it up in therapy next week. I know I have to. It'll happen though, I can't continue to live this way!).
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Member Comments About This Blog Post
    I know that fat in the stool can also be a sign of gallbladder issues, which are also really hard to diagnose and would explain a lot of your symptoms as well. Gallstones are apparently more common in women who are overweight (or were) and have recently lost a lot of weight. Probably not your issue as I don't know how the pancreatic enzymes would fit into that. But, might be worth looking into as well. Hope you get more answers soon!

    1806 days ago
  • LYNSEY723
    Ugh. I hate medical issues. I really hope you get everything taken care of quickly!! Those fainting episodes must be scary!!
    1812 days ago
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    1812 days ago
    I hope the results simply mean you need to take the enzymes you are lacking? I'm glad you're finally getting some answers! Could the tunnel vision and fainting somehow be linked to this?
    1812 days ago
    I have been thinking about you a lot lately. I will pray for you.
    1812 days ago
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