Latest test results/pancreas issues??
Thursday, April 04, 2013
So after being told to eat whatever I wanted for an entire week (which actually caused me to "binge"(?) more!), I finally have the test results. Celiac = negative. I figured that would be the case, it runs in my family, yes, but it doesn't develop until you're in your 40s. I have time. But I'm still not eating gluten. I feel better not eating gluten. That isn't changing (except when I binge...). BUT, my stool sample showed that I did have steatorrhea (aka, fat in my stool, causing it to float). The gastroenterologist asked if my stool has ever floated before (symptomatic of Celiac), and I simply told him I've never observed my poo before. But during the week of eating too many bad foods, 2 or 3 times, my stool was floating. Sometimes it followed gluten, sometimes it didn't. It varied a lot. So did my stomach pain. Sometimes it was unbearable, sometimes it was tolerable, sometimes it wasn't even there. It varied a lot. But what else did my stool show? That I'm insufficient in pancreatic elastase 1. No, I can't find much about it on google, yes I can find a lot about exocrine pancreatic insufficiency (which I would be diagnosed with in the end). So next week I'm giving another stool sample and they're doing more detailed tests to confirm that I don't have a lot of this enzyme. I'm not really sure what it means yet. I can only assume what I find based on exocrine pancreatic insufficiency, which is most commonly defined as being insufficient in amylase or lipase. Maybe they're going to test for that, I don't know, they didn't really tell me a lot on the phone. Maybe this is going to mean a low fat diet, maybe this is going to mean no alcohol (can I really give up wine? NO!!), maybe this doesn't mean anything (which obviously it does...). So I really don't know. I'll see what the next stool sample test shows next week...
I'm OFF of the medicine I was on to prevent me from fainting that almost caused me to faint. That's a huge deal. I have energy again! But my tunnel vision is back. I haven't had it for a few months, but it comes and goes. It's coming right now. Hopefully it won't get really bad again, I can deal with once or twice a day, but all the time is just annoying.
As far as weight loss, working on it. I'm maintaining around 145-155 (depending on how bloated I am after eating gluten/dairy/high fat foods now??). I'm meeting a personal trainer once a week. I LOVE the stair master. I'm starting a 10K training program OUTSIDE this coming weekend!!! I'm really excited about that. I'm meeting everyone tomorrow at a wine bar. How exciting!
That's about it. Other than that, life is pretty much good (except when I partially dissociate because I'm so ashamed of the "binge" that I do... I promise I'll bring it up in therapy next week. I know I have to. It'll happen though, I can't continue to live this way!).