Wednesday, March 27, 2013
I have been absent for several weeks. My health took an very unexpected turn, and I now am on Oxygen all the time! It has left me very depressed for so many reasons. I am stuck on a 100 ft. oxygen tube for the distance I can go anywhere in home (my home is much bigger than this! I no longer can be near the stove or oven due to my increased risk of catching myself on fire. That leaves my son and husband having to always cook now. I still can cut up things, mix things, but nothing near a source of heat. I would not mind, but neither my husband or son like to cook like I do, and my husband refuses to follow my directions on how to cook certain things... he has his own idea of how to cook things and will not follow my directions or even a recipe! My son just does not want to cook! His extent is to put things in the oven for me and hope my husband will take them out when they are done! Forget cooking anything on the stove top! As a result of all the sudden changes, my depression, and in general losing my motivation, I am sure I have picked up some weight now over the past 2-3 weeks. I plan to weigh tomorrow and try and get back on track some. I hoping it will not be too bad that I just want to give up! But I really need to stay online here and get myself back on track! I do have a Physical Therapist coming in to home twice a week, so I am hoping that will help me get back some energy to be able to exercise. They have told me to just pace myself and quit before I become tired. No one has yet figured out why I suddenly have a need for oxygen all the time, but without it I am very short of breath anymore. My endurance is terrible. Though they did an X-Ray, it was unable to even give them any clue what happened. All anyone knows is without the oxygen, my oxygen saturation drops to 70's to mid 80%. A normal is above 90%! I am at the point they are probably going to be sending me to a Pulmonalogist to figure out my problem. Though first I have to see a Dermatologist for a Biopsy of a Rash that the Doctor has no idea of the cause, but it is continuing to get worse, and spreading, which is what they had Home Health come in to help with to begin with. All I know is it is very itchy and hurts a lot whether I am sitting up or laying down. Everyone thought at first it was Shingles, but then the Doctor determined it was not because I had the Shingles Shot and the Rash does not follow the pattern of a Shingles Rash. Also I have had this same Rash 2 yeas ago, and they never did figure out what it was, and it took a week of hospitalization on IV antibiotics and weeks of oral antibiotics before they cleared it up. I am just ready to be well and get rid of this oxygen!!!