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Finding My Way Around a Speed Bump

Tuesday, March 26, 2013

In my house, we have a standing joke that as soon as I click "send" on a race registration, something happens. Since I recently registered for the half marathon in October, I'm really not laughing this time.

For the last few years, I've been suffering from undiagnosed fatigue. Not just "tired" fatigue--overwhelming "I need to take a nap" fatigue. Despite the fatigue, I had always been able to push through the day and get my workouts done. Until last week...

Now the fatigue has turned into almost falling asleep at my desk or while driving. Scary. Last week's attempts at working out were terrible, and often left me in tears wondering if, even with 7 months time, I could possibly be ready for a half marathon. I've had so many tests, and just completed another round of thyroid blood work and an ultrasound. The ultrasound shows a few nodules on my thyroid (I don't even know what that means); the blood work came back as 4.87--which they said is normal. Everything's normal. The nurse even indicated that I should be "fine" to wait until my follow up with the doctor on April 29. I quickly snapped that I am definitely not fine.

I don't really know where to go at this point. The doctor's office indicated that the earliest I can see my primary dr. is April 29. I'm not sure if I should push to see an endocrineologist since I have all the symptoms of hypothyroid. Or do I just let it go and wait until I can see my primary?

Meantime I have to develop a new plan for working out. The easy answer would be to just throw in the towel and give in to this fatigue. But I refuse to give up on the progress I have made. If I can't do a whole long run, I will try to break it up into a few shorter runs, and hope that helps me continue to build my endurance until I feel better. I tried that on Sunday, and it worked pretty well. Hopefully, as I do that, I will be able to continue to extend the distance a little at a time until I get back to doing it all at once.

So, I might not be the same exercise maniac that I have been, but I am making adjustments so that I can hopefully be that person again. I could definitely use some positive thoughts and healing vibes sent my way.

I am NOT giving up!

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  Member Comments About This Blog Post:

RICKISMOM1 4/7/2013 2:49AM

    Just saw this now. I agree with the others to try a sllep study (if you haven't already), and get a second opinion. If it was your CHILD you would not wait-- and you are your FIRST child!GRIN! Hang in there and feel better!

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-VIXEN- 3/31/2013 10:54AM

    Saying a prayer for you that you get the help you need in a timely fashion. Hang in there!!

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LRSILVER 3/31/2013 8:02AM

    Hope you feel better

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WENDYDANCER 3/30/2013 5:40PM

    I'm glad that you're seeing a dr on Monday! Please let us know what happens!

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VTRICIA 3/29/2013 11:52PM

    Good luck! I need to go in. The women of my family have many thyroid problems, and I'm having dry skin and trouble sleeping.

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AEHEGE 3/29/2013 4:48PM

    Pattie, is it possible that you could get an order for the thyroid tests now and have the doc look them over? After seeing these results, you may get squeezed in much sooner. Otherwise, there are also the drop in clinics and ER's that could evaluate your condition and get you an appointment sooner. Just a thought and what my DH's doctor advised him to do when he couldn't squeeze him in for an appointment.

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HZGLORY 3/27/2013 11:36AM

    Pattie, I am so sorry you are going through this, what a totally scary thing. I would think you have already had a Sleep Apnea test but if not that is agood place to start. I have it and I wake up 27 times an hour so I never get Rem sleep without a machine to help me breath right at night. I spoke to the person that delivers my oxygen and he also has it and he said he was getting sicker and sick for years and did not know what was causing it. He fell asleep in the car while driving many times he said and it was starting to affect his organs. He was finally diagnosed with sleep apnea and got on the machine and it took him a few months to get all his health back but he has no problems at all now. He was waking up about dbl what I was.

I am also Hypothyroid and take pills to do the work of my Thyroid because it completely stopped some years ago. You do feel complete fatigue like you just can't even walk without feeling exhausted. You will have your neck swell up where the thyroid area is. You will have lots of sore throats. I swelled in all my face as well and looked like I was beat up when they finally did a simple blood test to find out I was Hypothyroid. The pill does not work as good as the organ but it really helps.

All this to say yes pursue another doctor if you can and insist on it!! I had to insist when a medical assistant said I was okay and I should check back in 6 weeks. I had to say I do not look like this normally and I need help now to make her try more tests. I never even got to see a doctor about it in the end. It was a few years later when I changed insurances and saw a endoctrinologist that he told me everything that was wrong with my thyroid and how to improve my health.

Hang in there girl and fight for help. They should hear that you are falling asleep at the wheel so they know the seriousness of you getting help. If they don't they can be libal if you ever have an accident because of it. That is one weapon to use to fight for what you need!

Keep us updated. Love you too much to see you let them win and do nothing about it.
Susan

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CHANGINGSEASONS 3/27/2013 9:58AM

    I'd go see an endocrinologist..and I'll tell you why...I had nodules on my thyroid and it was basically left ignored (watching and waiting) for years. They eventually took over the job of my thyroid and my thyroid grew until it was considered a goiter. My levels were always normal when they tested me..but didn't do it that regularly...I felt flipping horrible for 4 or more years while my thyroid just got bigger and bigger. I was hormonal..big ups and downs..I was fatigued..but not ALL the time..it fluctuated..but I just generally felt like crap...but not so bad that I wasn't functional. But, you shouldn't have to spend years just waiting for them to figure something out. My primary Dr. don't have a clue where thyroid is involved..other than the basic testing and stuff. If I'd went to somebody who had a clue sooner I wouldn't have had to have it removed. I have no thyroid now..am on a synthetic thyroid pill. I have a large scar. BUT, I feel great..so I guess it was worth it. BUT, if you can avoid that and still feel great that would be the way to go.

Also, my best friend has fibromyalgia and she has extreme fatigue. Takes an anti-depressant that has the added benefit of energy..it's helped her a TON. Also, have you ever done a sleep study? I have another friend who has extreme fatigue and she was waking up darn near constantly when asleep but didn't remember it. Had something to do with her legs moving..that she was unaware of during waking hours.

Def. don't put this off because it IS something and you deserve to enjoy your life!

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KELLIEBEAN 3/26/2013 12:49PM

    I second everyone's second opinion opinion. Most likely everything is fine but you need to make sure and a month is too long.

I'm thinking about you!

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MOMMA_BEAR_69 3/26/2013 11:20AM

    Please take care of yourself and see the endocrinologist if possible. Do not let this go until something else goes wrong. A lot can happen in a month. PLEASE....
Keeping you in my prayers.
Blessings and hugs,
Helen

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LESLIEJEAN43 3/26/2013 11:15AM

    I agree with the others: definitely get a second opinion from an endocrinologist. You shouldn't have to suffer for another whole month!!

emoticon

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GOOZLEBEAR 3/26/2013 11:15AM

    Sorry to hear you are feeling so tired these days. I think sometimes doctors want to wait things out but I do agree with Janet that you go on to see an endocrinologist. I don't know about your insurance, if you have to have a referral or not from your primary. That may be tricky since your primary seems to think you need to see them first. I would do what you think is best for you, these days, we have to be our own health advocate.

Hoping you are feeling better soon and will be ready for your marathon.

Sending hugs and prayers,
Sandi emoticon

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MARILYNROBERT 3/26/2013 10:53AM

    Some doctors are adhering with the old readings of up to 5 on the various thyroid tests but newer guidelines are that you need to be under 3 on the tests for your thyroid to be considered normal. I know I'm not saying this correctly especially since there are various thyroid tests but my point is that I do think you are hypothyroid based on your reading.

Get a second opinion and see an endocrinologist that is up to date on the latest findings. Good luck and let us know how it goes. Don't give up on getting proper treatment. You're fighting the impossible by trying to slug through this on willpower alone.

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BIGPAWSUP 3/26/2013 10:41AM

    I have to whole heartedly agree on you needing a second opinion.

Can you take Ginseng? It help me through a few year of chronic fatigue where "nothing was wrong".

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CANDOK1260 3/26/2013 10:37AM

    can you get a differnt primary opion i would wait for the endocrinologist

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JANET552 3/26/2013 10:12AM

    I suggest another opinion so go to the endocrinologist if you can. Something is not right and if it is affecting your day-to-day functioning, waiting a month isn't going to help. Good luck!

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