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Gaining Weight With Being On Strong RA Meds!

Sunday, March 24, 2013

I've been putting on weight with being on Enbrel and now Humira, for my Rheumatoid Arthritis. Can anyone else say that that has happened to them? Although I do feel that I want to eat all the time and I never had this much of an appetite before the biologics, with even being on Prednisone. Can it be that I have more time on my hands too with not being able to do alot because of the pain? I try to eat healthy with lean protein, freggies, my water and I still feel hungry. All the time. I exercise all I can on my recumbent bike, about 35-40 min/day. I'm getting frustrated with these biologics not wanting to work with me and are hoping that once Spring comes, Humira will have kicked in too and I can really walk more and because of being able to do that, I'll be able to lose weight once again! I guess I just needed to vent.....once again! Life is not very easy at this point in my life!

ps.......I wrote this on the RA team and thought I could write it here too and reach my SP buddies this way also! Thanks for listening! I will get a handle on this but in the meantime............I need you all more than ever!

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    1431 days ago
    Hi Karen, I read your last three blogs. I have never had to be on the RA meds and pray I never have to be.
    When I go through a hunger spell I do look at my nutrition and fitness trackers to see if I am possibly doing something wrong. Then I have to look at my anxiety level to examine if I am worried about something. For me it usually is something that I am worried about that is causing the hunger or what I have mistaken as hunger. In one of my blogs I had posted about seeing a psychiatrist and how he told me what I was feeling was anxiety not hunger. That was a big wake up call for me and has really helped me analyse whether I am hungry or worried or thirsty.
    Right now I would say that it is probably your meds that you are fighting with. I do not envy you at all. I have been very fortunate in my journey that I have my sister Thoms1 who I live with along with her husband (who is the pickiest eater I have ever met!) . I usually do Batch cooking for Becky and myself. I finally got her to allow me to make a veggie chili to show her we didn't need no stinking beef, or ground turkey in our chili. I am a meat eater but I knew veggie chili would and could be fantastic! We eat a lot of whole wheat and whole grains to help fill us up cause we love to eat! I love my cheese! We eat some of the best chicken sandwiches adding cheese (right now we weigh approx 28 grams of cheese out and add it to our sandwiches (let the cheese melt) we are using a two yr old sharp cheddar (Tillanook) and a jalapeƱo jack. Before I never would have thought that one ounce of cheese would be enough to satisfy me but that combination give me so much flavor! I make some roasted veggies (I guess mine come out really steamed but it is the seasoning that is used that makes all the difference. I guess my point is that we needed the whole wheat and whole grains to fill us up not out. I know Tom will never eat like us and that is too bad. He does his own meals except for the weekends and occasionally during the week. Then Becky will make them. You have really had some excellent advise from your spark friends. Keep plugging along and you will do just fine. Please think of yourself and never ever give up. Your Midwest neighbor! Susie
    1433 days ago
    I have not taken any R.A. meds. Mine has always been controlled by motrin, aspirin, or prednisone. But I do gain weight with the prednisone and often want to eat when I have to take it which has been rarely.
    1433 days ago
    Hey there, lady! You will kick this in the butt, just like you do all things. I do believe that I recall (and here comes my short-term memory loss issues as well), but I do recall my doc telling me I would gain weight on Humira and Embrel if I went on them. Since I was 287 pounds and BROKE, it wasn't an option for me. But I have seen and heard this issue from several people on the site.

    Did you send DEDICATED2HIM (Cynthia) an e-mail? She's been on every medication that there is for the PSA, and I know she has taken these at least.

    I wish there was something insightful I could say, or a button I could push. Bu tno such luck. Just know that I was gaining with you, and am in the same place and have only gained since February and am just getting back to where I was then. I gained a RECORD 9 pounds this month!

    Stress... you think?

    And how does this effect the car purchase? Tell me he's already bought it and that it is in the barn waiting for you this spring and that it is sweet yellow or something! Please tell me the car is still a go??!?!?

    Love you bunches and {{{{HUGS}}}} (My hugs have a spare tire around the middle! HAHA)
    1434 days ago
  • 4CYNDI
    I haven't tried either of those two treatments yet but I do know how frustrating it is to so easily put on weight after working so hard to get it off. I'm back on steroids while they change up my meds and I think it's messing with me too. Ah well, at least it's healthy foods for the most part. Hope you find a solution for your munching mania.

    I don't know if you can do a project like needle work, knitting, sewing or anything to keep your hands and mind busy. It sometimes help me quell my hunger even when I can't move as much. Great job on doing what you can for exercise, even if it isn't the same as you normally do.
    1434 days ago
    Hi! You must be soooo frustrated. Go right ahead n vent ....baby vent! I don't know if there's a place near you where you can fit water exercise into your daily plan but think that's an excellent idea. I sometimes run around in circles in my pool to make a whirlpool and the n turn around and fight the current. I doesn't feel like much work at all! Obviously being in the water OUTSIDE in MN right now will not be an option...but hang in there baby...summers a coming (I think...I hope!) maybe theres a body of water to swim in when the leaves finally turn green again...just swimming feels great. And maybe by then your meds will have kicked in! :)
    U know I also once read...that SP comment about more calories n exercise situation and I said "self...that sounds nuts lol" But SP seems to be onto something in the weight loss situation here soooo good for you, you changed ur tracker 4 exercise. And u haven't given up yet, and its been a tough road!
    Don't lose faith, this plateau or whatever you wanna call it will pass. AND your still a lot smaller than your old self...its not really your fault, w the weight gain right now...its RA dammit. So keep doing all the right things, go find a bathing suit perhaps and rock that thing...you'll be sexy! :)
    Remember....10 minutes walking in a circle around your couch is better than just sitting on it!
    Hope those meds do something soon. Fell Better!

    1434 days ago
  • _LINDA
    I am sorry to hear you think you are gaining weight being on Humira :( I have had no problem with it and have been on it for eight years now. I don't think it was as effective as the Remicade was though. The thing about doing the same things day in and day out for exercise is your body does get used to it and burn calories far more efficiently doing it. I agree with the others, change is needed. I would suggest water aerobics as something that doesn't bother our joints, but is a killer workout. It was my go to exercise when flares and other bad things kept me from normal impact exercise.
    Nothing beats getting the hot tub or sauna after, what a feel good workout!
    Hang in there, I think spring might be coming now :P
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    1434 days ago
    Oh, you sweet precious items! I love you all and I'm crying as I'm reading your precious comments. There's really nothing like our little SP world, is there?! I really don't know you lovely people and yet I feel like I've known you forever! I know that I can get through this. I did go onto my fitness tracker and changed my cardio to 10 min. 3x/week is all. Maybe that will change the nutri. tracker to help me out. I just don't know what to do. SP told me that I was burning more calories with exercising than I was eating and that's why I wasn't losing. Really?! I guess it can happen, just never to me! Thanks sweeties! Tomorrow's a new day and I'll take a day at a time!

    emoticon That's all I can do!
    1435 days ago
    I'm sorry you are struggling with your RA meds. It's a "Hard Row To Hoe". Just keep in mind that God does not put more on us than he thinks we can handle, he has high expectations for you. Just remember to pray as much as you can that he will replace your hunger for food with hunger for something less counterproductive.

    Hope you have a better week this week. Don't give up all your SP buddies are routing for you.

    Best regards,
    1435 days ago
    Oh sweetie - I'm sorry! emoticon

    I wish I had good advice for you. I don't know much about medication for RA but I think maybe your other SP friend has a good idea to set your nutrition tracker at little/no exercise and see what happens. It might help you lose weight while taking your meds.

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    1435 days ago
  • NANT406
    I can relate to what you're going through. Although I havent experienced weight gain with Humira, I have gained A LOT of weight while on Prednisone. I know how frustrating it can be to be hungry all the time. Maybe you're plateauing right now and just need to mix up your routine a little. Have you checked out the SP videos? They're great. In the meantime, keep venting. I think it helps, and we're all here for you. You have a strong heart, so I know you can do it.

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    1435 days ago
  • CHERYLA2012
    I'm wondering if just for the time being, you might want to consider adjusting your nutrition tracker to reflect no exercise? Yes it would remove a few calories per day but overall it might be a tipping point for the time being until you feel better and can be more active.

    Or maybe check your caloric intake via BMR Calculator http://www.bmi-calculator.net/bmr-c

    Then when calculating your Daily Caloric Needs underneath, choose sedentary or lightly active to see what caloric figure comes up. By subtracting 250 calories per day, you may lose a half pound a week, 500 calories a day may result in a pound lost.

    Every time my doctor changes my asthma and thyroid meds I have problems so I sympathize. And that time will be coming up again soon and I dread it.

    I hope you're feeling better soon!


    1435 days ago
  • WINNIE1978
    1435 days ago
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