Sunday, March 24, 2013
Yesterday morning started with a 3 mile run up the California Coast. It was a great way to start the day. I then spent eleven hours straight at the hospital with my son. He is being very cooperative. I eat my meals when he eats his. He eats with the other patients with eating disorders. Hard to believe, but there are patients there way skinnier than him. He will stay there until he gets to 120 lbs and then he will switch to day treatment. He was 104 two days ago. He gets weighed every morning - they keep the number covered. They are counting all his calories and looking for that magic total so he gains (just like us with losing). I eat breakfast at my brothers; lunch and dinner at the hospital cafeteria. Yesterday I had a veggie burger and fruit cup for lunch, and salmon with potatoes and broccoli for dinner. It was pretty good.
I got a lot of walking in. The cafeteria is in another building and my son was allowed to walk 2 ten minute times yesterday. His heart rate is still low so he had to stay in bed the first day. He is a speed walker and I went with him around the floor he is staying on.
His creatin level is coming down but his BON is too high. It means his protein isn't breaking down right. He is still real dehydrated. They are concerned he is having muscle breakdown. They can't get a needle in him due to dehydration so he is drinking a lot. He had to wake up a lot last night to drink water.
This morning I am going to run with my brother then head back into the hospital. I am not sure when I will leave. My husband is going to fly out then I will head home for awhile. My son likes one of us to be here with him and I don't want to throw this all on my brother.
Thanks for all of your support and prayers.