Friday, March 22, 2013
First up was with my specialist. I felt my medicines weren't working, that it was time for a change, considering all these new areas of disease activity and the fact I was requiring painkillers. She once told me you shouldn't need painkillers because the disease modifying drugs will control the disease and therefore you shouldn't get a lot of pain. This was true when I was on the Remicade I felt the boost every time I got an infusion. But I don't feel the same with with the Humira. That weekly painful poke in the abdomen has not been worth it! But it fell on deaf ears as once again, because my blood tests look so great, I really don't have disease activity in spite of the bone scan showing otherwise. Actually, she suggested the lower back pain must be a different form of arthritis. Swell. She also said the trouble I am having with my elbow will be difficult to fix. I will see the surgeon who did my elbow replacements April 4th about it.
My family Dr. got all over my pain concerns. She immediately upped my evening dose to 300 mg of gabapentin and said to try taking 1 capsule during the day as needed. I will for sure try to take the barest minimum because I dislike the thought of being on drugs like this. She too, wasn't too thrilled for having someone as young as me needing this powerful medicine so soon :( She has also declared me allergic to hydromorphone and suggested I get a Medic Alert bracelet for it. That is a bummer because it really helped with breakthrough pain and the implications are not good as thats the codeine family, a wide variety of painkillers would be useless to me :(( But she said she wasn't willing to go that far yet..I looked it up and its $40 a year for the service, and the article you wear starts at $75 for the cheapest thing and that was for a dog tag with a beaded chain that looks like your bathroom stopper one lol. You want something nice it jumps to 300!! It was requesting appliance serial numbers and things like that which I don't have and are probably long gone as one surgeon in particular dumps your file after two years. With all my medical issues maybe I should consider this just so they have my history there instantly, but this form they give to fill out sure isn't big enough for all the stuff I have lol.
This horrible weather continues and that strong wind the other day blew out someone's window in my building! I am lucky not to have that happen although I might have welcomed it now. My window has been stuck shut for the last two days as the the snow pushed into my screen melted a little and then froze it shut :( Its stifling in here and with the smoke making it very hard to workout, I get tired so quickly without fresh air. More snow and cold and well below seasonal temps on the way. Only bright spot this weekend is our Gardenscape starts, so want to go to it and see all the fantastic flower and tree and shrub displays.
I am so worried about my Mom though, she has been feeling poorly since her fall a month ago. She finally went to see a Dr., wasn't able to get into to see mine though :(, had an uncomfortable internal exam only to be told there was nothing there. But poor Mom has had bad diarrhea since the incidence and bad gas at night :( I think she really hurt herself when she fell in her pelvic and groin region. She is having to take tylenol just to get going she is hurting so much. My Mom absolutely hates taking pills so that is bad. This Dr. never even suggested tests for any microscopic blood in urine or stool. No tests at all to try find out why she is like this.
So that is what is going on in my world, thanks for stopping by,