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    MAGGIEROSEBOWL   27,218
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A Better Day

Thursday, March 21, 2013

We are going to the Cancer Treatment Center of America (CTCA) for consultation next month! Our insurance will cover it in full, and hubby has agreed with seeing what they have to offer. They do more than just the latest FDA approved medical treatments there. They address strengthening your immune system, which helps fight cancer in ALL of us, and will counsel us (including massages? YIKES!) for stress, and tell us what foods we should be eating, and hubby will be put on supplements to strengthen his bones to help keep him healthy as long as possible. Of course this is all, IF we decide to do our treatment there. Hubby was worried this would offend his urologist. I called their office and told them what we were considering and the nurse there assured me our doctor will be fine with us seeking another opinion and possibly getting treatment elsewhere. He will also accept hubby back at any time, either if he decides to discontinue treatment at CTCA or if he just needs help quickly, locally, like the other day when his catheter was clogged. So that took care of that worry.

Yesterday son and I drove around town looking for a place to fax the medical history and authorization for medical records release forms back to the CTCA. We tried a library, but they don't have a pubic fax machine, so we went to the FedEx office and got it done there. I also dropped off a request for release of medical records to his Urologist's office. CTCA suggested we carry a copy with us, in case there is any problem with them getting faxes from the Urologist. So we will have a back-up.

Then we met hubby for lunch. I had a very delicious petite sirloin steak lunch at Ruby Tuesday's--only 349 calories! LOVE IT! We stopped at a grocery store and Sam's on the way home, where I found the beautiful grapes and strawberries. I made a Bisquick shortcake last night, using skim milk. I had a very small piece of the shortcake, strawberries sweetened with Stevia and then skim milk over all of it, with a dab of low fat whipped cream on top--only 5 calories for 2 tablespoons! It was probably a 200-calorie dessert in total, and I may have another serving of it tonight!
Son & Hubby grilled burgers last night.

I like to chop red or green bell pepper and add it to the hamburger mixture before grilling--it is delicious that way! I use 93% lean hamburger, so the burgers are a little tough, but still delicious. I also cut up some mushrooms, peppers, Brussels sprouts and asparagus that they grilled in a grill basket. Everyone agreed the vegetables were very tasty. This is not something I expect to hear from any of the men in my family, who HATE veggies. I guess it depends on how they are prepared and grilling them is a winner!

I heard from my sister-in-law who lives near DC, after my e-mail to her describing hubby's health situation. She offered hugs and agreed (with my request) not to talk about it while we are there. She also mentioned they have a time share in Aruba and also belong to a travel club where they get some very reasonable deals that they would be willing to share with us. I am so excited to hear what kind of inexpensive travel they might be able to share with us. I told hubby we will travel until the funds run out! I feel like we need to do it NOW, while he still feels pretty good. He is even going to bowl tonight, for the first time since he went into the hospital and had the catheter put in, back in early February. It just feels so normal.

I do NOT want to waste any more time mourning and grieving, when THIS is the time we have left to LIVE, to enjoy all life has to offer, including each other and our family. Hubby may feel good for years to come and that is my greatest hope. But if not, I don't want to have regrets that we wasted this time when he was still healthy.

I replied on someone's blog earlier this week, that my greatest fear is regaining the weight I have lost. THEN....I realized that is no longer my greatest fear. The fear of losing hubby has taken precedence over everything else in my life. When I hear people complain about minor health problems, I just want to scream, "If it's not killing you...it's just not that important."

But we are working our way back towards leading normal lives again, or at least trying to do the normal things that we enjoy. We grilled last night and today it is snowing. I am so tired of winter.


Son & I took Lola for a nice long walk last night, and hubby got home from work as we were getting close to home. Lola jumped in the car with him...she loves a car ride...
....and rode on home with hubby. But soon, I looked up, and there was hubby & Lola walking back down the road towards us. That made me feel so good to see him out walking like he used to. Then he grilled our dinner, and it was as if cancer was not a part of our lives, even though we can never forget about it.
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  Member Comments About This Blog Post:

ROSCOEKR 3/22/2013 10:16AM

    So sorry about your hubby, but hang in there and pray for the best

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KANOE10 3/22/2013 8:02AM

    It sounds like a productive day. Lola is adorable. I am glad you are seeking other opinions. You are doing a wonderful job of appreciating this precious life and seeking ways to be happy with your husband.

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CLPURNELL 3/22/2013 4:29AM

    Glad you had a better day!!!

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MSLZZY 3/21/2013 11:21PM

    I think you both have accepted the fact that you have a tough road ahead of you but will do whatever it takes to fight this. Do take care and I will be praying for you!

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LINDAK25 3/21/2013 7:57PM

    I'm glad you had a good day!

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DOODIE59 3/21/2013 6:26PM

    Sounds like you had a great day -- of discovery, of support, of helpful news, and, yeah, grilling helps everything taste better:)
Hugs,
Deirdre

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DUXGRL1 3/21/2013 6:23PM

    Sounds like a great day! Glad that you will be able to go to CTCA...their commercials seem very hopeful!

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LJCANNON 3/21/2013 6:16PM

    What a WONDERFUL Day you had!! I believe most Good Doctors are Fine with you getting Second Opinions or seeking Advanced Treatment. I am glad that your Doc is one of those!! Treasure these Days/Memories and in Valerie Bertanelli's Words -- "Don't go to the Funeral until the day of the Funeral". Seems like Good Advice for ALL of us.

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JAOTAO 3/21/2013 5:36PM

    emoticon emoticon Glad to hear there are good options for you and your husband. Sending you a bright Ray of Hope.

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LIBBYG7 3/21/2013 2:07PM

    I'm so glad you are finding your new 'normal' and have come to realize that NOW is the 'important'.....It's a hard lesson to learn - and you're doing beautifully.

As a cancer survivor myself, I looked into CTCA, should the need ever arise again, and was shocked that they did not accept Medicare. Enough said about our two-tier medical system (BTW-I do have access to some of the TOP doctors in NYC - others aren't so lucky).

Please, Maggie, please ---- don't lose your empathy for others who are sick, but not terminal. There's sick - and then there's SICK!!
I live with chronic, acute pain, can't walk worth a damn, am almost house-bound, prognosis is mixed and depression comes and goes. Sometimes I think death would be preferable. If I didn't have folks around to provide reasons to go on ---- I'm not sure I would.
Keep your heart open ---- and others will open theirs to you!

Hang in there--- take it a day at a time - enjoy the moment - and

------- Big Hugs!!!

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Comment edited on: 3/21/2013 2:09:10 PM

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JEANNE229 3/21/2013 1:40PM

    When it is life/death, we don't worry about offending anyone, but glad you are headed that way. That treatment center gave my sister her life back!

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WORKNPROGRESS49 3/21/2013 1:02PM

    Sending thoughts/prayers along with GREAT BIG virtual emoticon

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DIANNEMT 3/21/2013 12:46PM

    So glad that you are finding a way to live with the situation instead of letting the situation dictate everything. This isn't easy--but living every day is what you need to do!! Keeping you in prayers!!!

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KERRYG155 3/21/2013 12:41PM

    Glad things are looking up! A good doctor will always be happy to have you seek a second opinion-it's the not so good ones who get offended. Believe me when I say that you will love the massages-they really do relax you. I didn't really believe that until I got my first one and now I get one every 3 weeks. If you've never done a time share type vacation you'll also love that! I wish they had some up in Lincoln so we could use ours to visit family.

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NOTABOUTHEFACE 3/21/2013 12:33PM

    I've heard nothing but good things about that place. It's a multi-faceted approach instead of come in for your chemo/leave until your next treatment. I think you should go for Hawaii for the travel club thing but I'm biased. If Pahio at Kauai Beach Villas are available, those are pretty!

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CMRAND54 3/21/2013 12:33PM

    You are such an inspiration as you deal with this time of trouble. You are so right that most health problems that we complain about are not really serious. Your issues put things in perspective. I hope you do get to do some traveling. Hang in there!

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