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Ongoing saga of 'The Lift" for a disabled DH

Sunday, March 03, 2013



I am so frustrated with this lift problem! It brings me to tears. Everyone says I should not be transferring him without a lift. For the past month or more I have done my best to use the lift we have. I don't try alone--always when an aide is here. I hired an aide for Sat. evening and demanded she use the lift. It was a disaster 3 Sat. nights in a row, After it was obvious we where getting no where and getting physically and mentally exhausted (both of us), I just transferred him myself with no lift. Yesterday (Sat.) in the morning, John again refused the sling on his wheelchair. He came out without it. I told the aide we had to put him back in bed and get the sling on the wheelchair first. She was really mad at me. I did most of the work. Sat. evening the other aide would be arriving and she'd need the sling on the wheelchair. Alas! Even when the sling was on the chair, when she arrived we again tried to use the lift. It was impossible! The sling under John was not positioned right and it was unsafe. We tugged and did everything possible (with him yelling) but we could not get it hooked up correctly. The top of the lift almost scrapped his head and I tried to raise it and the whole thing tipped from the floor! He was seated firmly so he was fine.

The aide in the morning(Sat.) almost walked out, saying she never would have accepted this Hoyer lift and the sling with it! I said Medicare paid and they won't just buy a different lift!

It has been at least 3 years on and off of my struggling to have a lift for him. A team is now working on it! I hope the result is better . What a long haul. Medicare does not take the caregiver into consideration only the patient. They say that very clearly!

emoticon chris
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Member Comments About This Blog Post
  • v KYLIESCHELLE
    Prayers said for you. Hugs.
    1174 days ago
  • v SAGARINO
    Oh Chris-the Hoyer lifts are so hard to use--I had many of the same problems you seem to be having--except I had no one to help--with my husband missing his leg (above knee amputation) it was so hard to get the balance right-. The Hoyer seemed to be too light for his weight & we were both afraid I would dump him on the floor. I was so glad when they brought me in another one that was electric too (I don't remember the name though). The sling, too was so easy to fit on him and to hook up.

    emoticon Sandi
    1177 days ago
  • v DUSTYPRAIRIE
    I am praying God delivers you a proper lift. You're in store for a miracle!
    1177 days ago
  • v 1STATEOFDENIAL
    Unfortunately, that's the way it now works. People who are relatively healthy and are rolling in money get to make or not make decisions that hurt, even kill, thousands to millions of people while they ensure they have every opportunity to come out ahead. Politics, corporations, and insurance companies can be dirty words. All we can do is keep asking questions, trying new ideas, and fighting as long as possible.
    1178 days ago
  • v ANGELA76H
    I hope this can be resolved for you quickly! This is so tough.
    1178 days ago
  • v MISSG180
    I am just in anguish for you. I'm so sorry.
    1178 days ago
  • v DJ4HEALTH
    If you have a store that sells those type of products then you can go in and talk to them and tell them what they problem is and maybe they can steer you in the right direction of what to get. That is what I did for my husband and would also research it on the web too. I knew what I was looking for but did not know what it was. Just plugged in what I thought it would be called and then looked at what came up. Then take it to the doctor and have him get it from our insurance.
    1178 days ago
  • v ALIHIKES
    So sorry that it is so difficult navigating the medical system in order get him what he needs -- and what you and the caregivers need! Without the lift or with the wrong lift, you and DH face serious injury risk due to a fall. I hope and pray they are able to get you the RIGHT lift.
    1178 days ago
  • v EVWINGS
    I'm so sorry you are going thru this. My mama was in the nursing home for three months, then they said they had done all they could for rehabilitation. i went there everyday for a week to learn how to exercise her limbs that were paralyzed and transferring her. I told my brother, we'd have to have help, I'd have to quit work, etc. in order to bring her home. We decided together to keep her in the nursing home. I'm so glad we did at the end. In the 2nd one, she had excellent care and the doctor was there everyday checking. Had she been at home, the doctor and hospital are 30 miles away. But the transfer part is what got to me most. I couldn't do it on my own. Long story to let you know you aren't alone with your problem.
    1178 days ago
  • v 123ELAINE456
    Sorry You are having this problem with the lift etc. Let's hope the Medical Team can come up with a solution for it very soon. Hope things will improve for you this week. God Blessings to You and Everyone on this Lord's Day. Let's All Of Us Enjoy It. Take Care. Hugs!!!!!!!!!!!!!!!!
    1178 days ago
  • v TIME2BLOOM4ME
    emoticon
    1178 days ago
  • v TXMEMAW6
    Chris, Continuing to pray for a sensible solution to your problems. Even though I can't help, I can pray for you both as you try to work out something that will work. Sending you lots of hugs and love. God bless you!!
    Sharon
    1178 days ago
  • v PEZMOM1
    emoticon
    1178 days ago
  • v GRNDMOM43
    I hope that you are able to have some answers from the new team very soon. emoticon
    1178 days ago
  • v DONNA5281
    I hope that things get better for you real soon.

    emoticon
    1178 days ago
  • v TAZZIE1
    emoticon
    1178 days ago
  • v SWIMLOVER
    emoticon and emoticon
    1178 days ago
  • v SAMMIESMOM13
    I am so sorry to hear about your troubles. I can't help but I can say some prayers. Starr sounds like a good one to ask if you have any troubles, she sounds like "the voice of experience"!!! Hugs, Carol
    1178 days ago
  • v CELIAMINER
    Chris, {{Hugs}} and blessings in this tough time. I've never heard of a Hoyer lift, so I had to look it up, and it does indeed look difficult. Hoping for an easier time for both you and your DH in the future.

    Celia
    1178 days ago
  • v DOTTIEJANE1
    Just a suggestion put the sling under your husband while he is in bed .Roll him from side to side AND position the sling , then hook it up and transfer him.IF the sling is not correctly placed when you hook it up lower him back down on the bed and readjust the sling . emoticon
    1178 days ago
  • v CHRISTINASP
    emoticon I am very sorry. Thinking good thoughts for your peace of mind.
    1178 days ago
  • v TEENYSMOM
    Chris,

    The lift can be difficult to get John into just right so that he is lifted off of and in to as comfortably & safely as possible.

    It took me a good dozen times of lifting Alan with the lift before I could do it at least somewhat good. The last time I had to do it, oldest DD was here helping, and I think that made a huge (good) difference. But she is not here all that often

    One tip I can give you is: before you lift John make sure that his head is completely under the sling & make sure that the sling is stretched out, as much as possible. And, when your hooking up the hooks which attach the sling to the lift, put the bottom latches (the ones down by John's feet) on the lowest latch and put the top latches (the ones by his head) in the highest latch. That should help with the transfer. Also, in case you have not already figured it out, you need to guide with your hands where John goes as your transferring him with the lift. Alan's body is so long, that I have to keep an eye on his head to keep it getting whacked with the arm of the lift.

    I hope this helps you, my friend.

    hugs,
    Starr
    1178 days ago
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