Monday, February 25, 2013
Took DD to E.R. this afternoon when I returned from work. VERY good nurse and intern there were horrified that nothing further has been done over the years for this disease for DD. They took it upon themselves to call U of M Medical School in Ann Arbor, to see if we could take her down there and let interns learn and test her. Anything to regulate this thing. SH now cannot see, barely open her mouth, barely walks, skin looks like lizards...
We were in and out, I talked to staff where she will be seen,, I called in for work to tell them I wil not be there tomorrow.. We will leave extra early due to the projected six inches of snow predicted.
Please pray hard for her and the staff that will see her. I am getting close to wondering if she will ever get the right treatment..
We have a long drive to southern MIchigan and back tomorrow. I have never been there, so this will be an adventure..
If ever we needed prayerful intervention, this is it.