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Anyone with AutoImmune issues/disorders?

Sunday, February 17, 2013

I wasn't going to really "put this out there" but it's weighing on my mind.

A few weeks ago I whined to my doctor that I was just not losing weight despite big effort. She sent me off for bloodwork - testing thyroid, blood sugar, Vit D/B, etc. Came back with high levels of inflammation markers, too much protein in urine, and ESR. (I've Googled so much lately, I've forgotten what that means now.)

So back I went for different blood tests, and an excersise stress test as the high CK levels can indicate recent heart attacks, and I have to worry about that in a first-degree relative. Stress test was fine, blood test was not. I had the test for AntiNuclear Antibodies, and it came out positive.

Basically what that means is my body is attacking itself rather than an invader like bacteria or viruses. I have the "speckled antibody pattern" which generally indicates Sjogrens' Syndrome (the dry thing), lupus, or rhuematoid arthritis. I get a referral to a rheumologist today, have no idea how long it'll be before I get in to see them. I hope it's not long!

Of course now I feel all symptomy and sorry for myself. My hands hurt, my knees feel swollen, I've had a headache for a month and a half, and about two months ago my hips felt ready to detach from the legs and wander off on their own. I still haven't fully regained flexibility from that frozen shoulder episode almost two years ago so it might all be connected.

The doctor feels that my body hasn't been willing to release weight because of the big fight going on inside. Now I'm worrying that even with treatment, it won't give up the fat. Sigh. I need to make this be about HEALTH and not vanity!

I derailed this weekend and ate a lot of wheat products. I guess it was rebellion. So of course I feel icky from that. Such a child! But today I yanked up the bootstraps and sternly told myself it was time to get back to doing what I need to do. That means weighing and measuring, eating healthy foods, and being as active as possible.

I would really welcome any insight or experience you might have with this issue! It's all so new and really scary.
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Member Comments About This Blog Post
    You know I'm in your corner, even at this distance. I see another blog up above, so I'm going reading that next.
    1854 days ago
    Autoimmune problems, mostly psoriasis but I have an aunt with rampant in my family. I didn't even know what I have is psoriasis until a sister talked about hers, one of my daughters has it so badly in her scalp she has lost a lot of her beautiful red hair. I have it on my elbows, one leg (where it flared after a scratch from a raspberry vine!), face...

    But as with every autoimmune disorder the outside is the least of the problems. It's what is happening inside the body that makes everything go haywire. I've never saught treatment for it, mainly because I have no insurance. I never thought about it being a reason I can't get the scale to budge no matter what I do. I'm not giving up, though.

    I liked the advice about the teamas dealing with this. I have seen quite a few. Give a couple a try, and find the one that's the best fit for you.
    1855 days ago
    Oh, dear.
    I would be worried, too-
    the fear of the unknown is horrible.
    Hope you get it all figured out soon.

    1855 days ago
    I don't have your issues, but there may be teams for people with autoimmune disorders. I hope you get it all figured out and start to feel 100%.
    1855 days ago
    You can do this. I couldn't walk for nine years, but suddenly I could again. I have multiple sclerosis which is kind of unpredictable. I also must medicate thyroid each day. Chronic migraines are becoming less frequent and arthritis doesn't interfere too much. Good nutrition, adequate rest and exercise have really helped. I hope you find good treatments, solutions, and advice so you can be the healthiest you. Great success! emoticon
    1855 days ago
    I hope it all works out for you
    1855 days ago
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