Tuesday, February 12, 2013
I have worked in the medical field, got a degree in it as well, but I'm currently without a clue on how to proceed. I have 2 very rare conditions at baseline. I moved to Colorado about a year and a half ago and it took me a long time to establish care for my rare conditions. I also started to develop a list of new symptoms that are not related to my current conditions.
I have gone from doctor to doctor and my case is so unbelievably complicated at this point no one knows what to do and no one wants to take personal responsibility for my case. My primary care has his heart in the right place, but the system is set up where he can only keep referring me to specialists.
I'm getting sicker and sicker. I'm knowledgeable for both being a patient and working within the system, yet I'm out of answers. My last chance resort would be to go to the Mayo Clinic, but reality is, I can't afford it. I'm on my own here, completely and utterly. My roommate helps where he can with the household stuff, but he shuts down with the medical stuff. Other than that, it's me fighting this battle alone. I've always fought my battles alone, but I'm getting so sick and I've wracked my brain and have run out of options.
Tomorrow I have an appointment with my primary. I am literally going to beg him to admit me. I KNOW there is something really wrong with me and I'm pretty sure it's my endocrine system. If someone walked into the ER with only my recent symptoms & had a clean bill of health prior, they would get a full work-up. Unfortunately, these docs can't see past my other conditions. I know there are a ton of insurance legalities to get admitted & I'm not familiar with this state's rules, but it's all I can think of. They need to be stuck with me and put the puzzle pieces together. Otherwise, I'll be referred out to more specialist and I don't know how I'm going to keep going.
If anyone has any suggestions, I'd love to hear them. I need out-of-the-box ideas. There aren't any diagnostic departments I can find in Colorado. My problem with the Mayo Clinic is the money to travel there & stay in a hotel (I'm on a disability fixed income). Also, just trying to get all of my medical records requires money and me driving to all the hospitals in Colorado, plus getting all my records from Boston. I can't cook, clean, hell even showering is a problem. I've looked up advocacy groups, but they all cost money that I don't have.
I need help and I feel like I'm screaming for it and no one hears me. This (as in the new symptoms) have been beating me down for a year and a half and are becoming, quite literally, unbearable. I'd be thrilled to be back to my 2 rare conditions and that's no bed of roses.