kidneys failing, ugh, never thought what started as hormones would end up like this.
Friday, February 01, 2013
Well, I have dropped from a stage 3 to a 4 in less than 3 weeks. My docs feel this is terminal. I have had many opinions and as a well educated nurse, I have to agree with them. I am ok with this. Called the attorney handling the ssdi appeals council. he will be getting a letter this week from the doc showing I am terminal and my crappy labs. They will try and expedite before I die. I don't want my husband stuck with these bills. I worked forever while sick and because I was so sick, the savings went a long time ago. At least if they clear this, I can pay off the debt and take care of my funeral stuff ahead of time.
I am not afraid of dying. I am afraid of what will happen to my husband. We are sooo close. I don't want him following me before his time. Our friends will try and intervene. They have been awesome. I really appreciate the prayers and support from here. I am glad you don't mind me writing what I am going through while I am making this journey. Diabete Mellitus is easy compared to Diabetes Insipidus. With DI you lose all your salt and water. You can drink constantly and be dehydrated. I am supposed to take in a ton of salt, but that only works short term. The salt does lessen the muscle cramping. They are horrendous. The ones you get from low potassium, calcium and magnesium are nothing compared to the ones from low chloride levels. I just tend to scream until someone brings me a cup of chicken bouillon.
Any way. I will keep posting while I can. No one knows how much longer I can tolerate this so I will take it as it comes. I am not a candidate for transplant so I will not do dialysis. No sense in that if there is no chance of a transplant. Why make myself and my family miserable.