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    MARCIAC10   31,355
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Getting better: One month from my release from hospital

Thursday, January 24, 2013

My last blog post in Nov a lot has happened. Let's just say it took five doctors not being able to figure out what was wrong, and doctor #6 saying I needed to go to the hospital. Was admitted an hour later and spent 17 days there. If he hadn't sent me, things would have been a lot worse.

As it was each day my platelets were dropping in number while tests were being done to figure out what was going on. An hour before I was to have a bone marrow biopsy, the diagnosis came in and saved me from that ordeal.

Histoplasmosis, a fungal infection, probably from breathing in the dust when cleaning my bird feeders that we got this summer. Most people who get it don't even know it. Due to being on Remicade, which suppresses your immune system, it took over and spread quickly.

I had 10 days of IV treatments in the hospital (the meds were too toxic to be given on an outpatient basis) and was finally released on Dec. 24, Christmas Eve.

I have to take anti fungal medication and be under an infectious disease specialist for at least a year. A long recovery period.

Due to being so ill for most of Nov. and Dec. and having no appetite (in fact the smell of food often made me sick) I lost 10 pounds. I'm now down 13 pounds and need to lose another pound or two to get into the 160's . Right now my exercise consists of walking around the block. Running errands tires me out. Doing anything too physical tires me out. I've given up my piano students and mainly stay at home now.
I went to Music Club on Tuesday and was exhausted the rest of the day.

Hopefully by summer I'll be back to my old energy level! Meanwhile I take it one day at a time.
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  Member Comments About This Blog Post:

MELBBART 2/11/2013 9:30AM

    Oh my goodness! I was wondering how you were doing. I'm glad you have some answers, but I'm sorry it has been a tough road. Take care of yourself and I hope you recover quickly. Big hugs!

emoticon emoticon

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LYNNIERN 2/10/2013 11:02PM

    Oh my gosh, I'm so sorry to hear you were in the hospital but so glad to hear that they came up with a diagnosis. emoticon

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THEBESTISTOCOME 2/6/2013 6:18PM

    I'll pray for your recovery.

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JTREMBATH 1/25/2013 1:50PM

    Glad you are recovering emoticon

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ANNIE1114 1/25/2013 11:37AM

  I am glad that you found out what is causing all of your health problems. I hope that you start to feel better soon. emoticon

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DEBPRE16 1/24/2013 10:05PM

    So glad your doctor found out what was wrong. Glad you have such a good attitude too being sick. I hope each day you feel better and better.

Debbie

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LJCANNON 1/24/2013 9:42PM

    emoticon So glad that you are recovering!!
emoticon Take it slow, but keep pushing a little bit more each week and your Energy WILL Find you. I guess you could say "Keep Pushing, But Be Gentle". Resting is just as important as Getting in the Exercise. Listen to your Own Body and it will let you know when it is time to progress.


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ANASNEWBODY 1/24/2013 9:23PM

    Feel better soon. My prayers are with you.

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SUSANS706 1/24/2013 7:17PM

    Welcome back, so glad they discovered what you had, and that you are on the road to recovery!!! What an ordeal! Take care of yourself and take it easy, one step at a time. Prayers to you. emoticon

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DOINITRIGHT2012 1/24/2013 3:31PM

    emoticon Back. You've been on my mind.

I'm glad you're ok, at least on the mend.

Take care.

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NEPTUNE1939 1/24/2013 3:02PM

    emoticon Your on my prayer list, Earl

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