Thursday, January 24, 2013
My last blog post in Nov a lot has happened. Let's just say it took five doctors not being able to figure out what was wrong, and doctor #6 saying I needed to go to the hospital. Was admitted an hour later and spent 17 days there. If he hadn't sent me, things would have been a lot worse.
As it was each day my platelets were dropping in number while tests were being done to figure out what was going on. An hour before I was to have a bone marrow biopsy, the diagnosis came in and saved me from that ordeal.
Histoplasmosis, a fungal infection, probably from breathing in the dust when cleaning my bird feeders that we got this summer. Most people who get it don't even know it. Due to being on Remicade, which suppresses your immune system, it took over and spread quickly.
I had 10 days of IV treatments in the hospital (the meds were too toxic to be given on an outpatient basis) and was finally released on Dec. 24, Christmas Eve.
I have to take anti fungal medication and be under an infectious disease specialist for at least a year. A long recovery period.
Due to being so ill for most of Nov. and Dec. and having no appetite (in fact the smell of food often made me sick) I lost 10 pounds. I'm now down 13 pounds and need to lose another pound or two to get into the 160's . Right now my exercise consists of walking around the block. Running errands tires me out. Doing anything too physical tires me out. I've given up my piano students and mainly stay at home now.
I went to Music Club on Tuesday and was exhausted the rest of the day.
Hopefully by summer I'll be back to my old energy level! Meanwhile I take it one day at a time.